Thanks Lynn- When I went to the Pharmacy today I asked him what he thought and told him just what I was taking and how. He said it was fine so I'm good..I forgot I was going to the pharmacy...
Good Morning all~ I started to take Cellcept on Friday, after being in total shock over the price(WOW-why is it so expensive?) I had to get a blood test to start it and when I went to fill it, I...
I want to thank everyone for there posts, I feel a ton better about this. I read the papers they sent home, it was the same page on the CDC's web site. I just hope that the child or children that...
I can't even begin to say how angry I am..the school didn't close or anything-they just disinfected at night while the kids were at home and let them go back the next day.-I would think they would...
Mine too has gotten worse as I got older but, I do remember something a friend of mine used to do when I was a teenager. I had no idea that I had this then so- when we would go outside and it was...
Wow, what an awesome question! I've had trouble with this for so long now...and UTI's-I have at least two a month-then after I thought about it, I wondered if it ever really goes away.....
Mezz I'm not going to say a word about the reasons why you shouldn't do this, you know them, that's clear. My question is isn't there something else that you can take? There must be a anti-depressant...
I just have to say that the brain fog is horrible sometimes! My husband is starting to notice it now..The other day I was buying gas in a store..very busy. so the lady asked me what pump number? I...
Hi Jenny, The Prednisone was the only thing that helped my swelling. I had it really bad in my hands, wrists, and feet. When the doctor would try to take the prednisone down a bit, up went the...
DayMay that horrible! Why are they like that? Are they real nurses or a different health care worker..Not that it makes a difference because it shouldn't-they should help you, in the least, point you...
Thanks Gramps..I understand- So it doesn't build up in your body..you don't get a reserve so to speak to use if you don't take it by a certain time. How sad, you just want to get on with your life,...
Boy how true that is..take it with a grain of salt..the Rhumey I go to I've heard bad things about, no one liked her but for some reason we go together like peas and carrots(I just saw Forrest...
It so strange, in all these posts about Oxycontin, which is suppose to be a long acting opiate, everyone writes that if they don't take it by a certain time they start going into withdrawal? Why?...
When I went to the doctor the last time I was in a flare, I was pretty sick. My ANA for the first time was lower than 80! Every other time I had it done it was high, really high. This time nothing....
I met the doctor I see now, the Rhumey I have now finally DX'ed me. Sometimes when you have a problem when I go and you have to call your regular doctor you see another one if your doc isn't in that...
Hi Hippimom~ /community/emoticons/smile.gif That was the only question I didn't ask! I totally forgot to ask about the time to notice anything..I take one 25 mg tablet every 12 hours and I didn't...
Hi all! There was a post not to long ago about DHEA, has it ever done any good for those of us with Lupus. From what I remember, not to many people took it. Well the doctor just called and mine is...
Hi Evangeline-nice to meet you~I'm Aggie, I'm 34 I didn't even know that you could break your pelvis from birth, I never even thought about that..wow- now it's bad enough to have the pain from birth...
I was dealing with Fibro and Trigger Points before Lupus. A few bad disks in neck and lumbar area. Always had very tight skin in my back and neck too that would cause me such pain...you couldn't even...
I think I better call her come Monday..good ideas, everyone.. I went to the Library and got a few books about Lupus and in reading them I think you guys are right. Kidneys. I just woke up about an...
HI Jenny, thanks for the reply! I take Plaquenil 400 mg too, I started last November and until this past September it worked great. Then the kids brought home to me from school a cold that has...
Thanks for the reply Sandy-it's nice to meet you~ /community/emoticons/smile.gif I had blood work after being very sick only to find the protein and a really high sed rate. A few other things were...
Hi all, just a question- I've been on prednizone for over three weeks now, Tuesday of this week I started to come down from taking 15 mgs. to 10 mgs and now the swelling is coming back. Last night my...
Add me to the list of people who want to know..my doctor told me about it when I was there for my last visit but, because I was so sick and tired I don't remember if she told me to buy it and use it...
Good Luck Razzle-I really hope everything works out for you! /community/emoticons/yeah.gif Aggie...
Hi Marji- Thanks for the long post, that is some good info~ /community/emoticons/cool.gif Yes I do sometimes get hot joints-then other times freezing cold. They hurt more when there hot and feel hot...
Hi Bill & Always Rosie, Thanks for the welcome, this is a great place-lots to learn! Bill, I take Methadone not for the Lupus but, for other pain related problems. I know it doesn't treat the...
Hi all~ I thought I would ask everyone here-how do you put up with it? I've had this off and on but mostly on from the time I had that flare three weeks ago-it won't go away. In my knees it's...