Good Luck, Yes tell me how it goes. Take care of yourself....
Yes, I did some homework, I had a hip arthroscope first which is a MRI, with dye (a radio-isotope) injected into the joint. It was day surgery, the doctor partially dislocates the hip and is careful...
Hi Babs, That must be difficult with 4 children, dealing with a illness. I am a young 47, I fractured my hip in 2002 the first summer we had our pool, fell the wrong way tore the inside lining of the...
Hi there, I have been on this site before my daughter who was 17 last year suffered from CNS Lupus that was affecting her brain. High doses of prednisone wasn't helping her condition so she started...
Everyone had great ideas. I just want to add I have had a negative ANA and a positive ANA. I have more than one autoammune diseases. My daughter 17 has had many bldwk. done ( she did have a positive...
Rebecca, So sorry for your troubles. My daughter is the one that has Lupus she had a brain clott, seizures and headaches etc like all the other Lupus symptoms she has CNS Lupus affecting her brain....
So sorry for yourf news it must be devastating. On another note to any who read this post. I was told it is very important to have regular check ups to make sure any autoammune disease is not...
Hi there, The fact they disappear is a good sign. I would question you Dr. on your next appointment. Sharon...
So sorry for your loss. It is harder even to be far away. I am not living close to any living relative so it makes the grieving process harder to deal with. I hope your son has better days. Sharon...
Thanks so much I have the same mental immage of how we all have our bridges, some are in construction, some are covered in fogg, some are bumpy but you still hang on, and when you finally get to the...
Thanks, One thing I am really grateful for she has a few really good friends they have taken her out for pumpkin carving, out for breakfast,movies I am so grateful for these teen that have seen her...
Thanks guys, Everytime someone responds with kind words it actually brings tears to my eyes, like right now. I think its just so hard to see her suffer. I have my own issues, but I don't care because...
Hi everyone, I know I have talked about fatigue before. I just want to reword my question. When you are out of flare does your fatigue go away somewhat or are you going to be so extremely fatigued...
Hi there, Having a experience with my daughter(CNS Lupus affecting the brain) acting disorientated and slurring her speach that turned into something way more serious I would see a Doctor as soon as...
Hi there, Mouth sores and nasal sores can occur in autoimmune diseases or when you system is compromised. Good ol'vasaline works to keep those mucus membranes moist in the nose and around the mouth...
Hi there, Mouth sores and nasal sores are common in autoimmune diseases. Make sure you use a lubricant, good ol'vasoline will even due the trick, also there is infection. Sharon...
Hi there, Benign breast lumps are usually fibroadenoma's. Cysts are usually benign as well a closed sac or pouch with a difinite wall which contains fluid,semifluid or solid material they can be...
Hi, I know exactly how you felt, we are at a teaching hospital as well some of the res. or fellows are good some need a lesson in compassion. There was one particular appointment that they made Sarah...
Thanks Rosie, She finds she well controlled in hospital, it was the 3 days post cyclo that she felt so sick. Thanks in advance for that suggestion though incase she is really nauseated in hospital....
Thanks again to all who replied, It was great to know Kristin and Lynwood that you can relate to what we are going through about the memory problems. Sarah psyc. I would not call her a neuopsyc. but...
Hi all, As you may know its my daughter who has lupus, but I have many immune diseases. I get scalp sores all the time. I have tried changing shampoos and sometimes it helps sometimes not. The...
Thanks so much for your support Sharon...
I know it might be too late to reply, my daughter had a lower ANA than I. She was gravely sick. So the high ANA theory, I am not sure it stands to how sick you are, or going to be. Sharon...
Hi Ginny, Mother of Sarah, the newbie with CNS Lupus,SLE,APS. Sarah has been off balance for some time. We thought and she thought it was because she was a klutz. Little did we know it was part of...
Thanks all, Yes you can beleive this consumes me. I really have to remember to keep my other two teenages, 14 and 16 in my attentions as well as it is a time that they need us parents. Sarah right...
To answer the question, in a previous note my daughter has lupus, I have had reaccurant clotting disorder Thrombotic Thrombocyt openia purpura ( my daughter has APS, a clotting disorder) I also have...
Thanks so much, her name is Sarah....
Hi It started in Grade School, my daughter had Raynauds,(hands and feet purple) She went on to high school was a honour student, then in Grade 10, 2006 she found it more difficult to be active in...
My daughter has CNS Lupus and Hughs disease shis only 17 years old Sharon...