{{{{{{{{{hugs}}}}}}}}}} I'm getting so frustrated with things, it's not even funny. I don't qaulify for medicaid, and I'm working on the disability but I'm sure most of you know how that goes. No...
I haven't posted in some time. I've been having even more problems popping up. I was in the hospital on Christmas and 2 days afterwards, because I started to have numbness and nueropathy pain and...
How much cellcept are you on? One of the side-effects from that medicine is anxiety, but before I started taking all these medications and I was even diagnosed, I was extremly moody as well. Like...
Yeah, I take the antacid 2 hours before I take my cellcept, I also take the phenagran in advance as well.. I'm on 1000 mg of cellcept, and I've had to go up on my prednisone as well because it's...
You are not alone, at all.. either medications, the lupus, or just the fact that you have to deal with having a very chronic illness can cause you to be moody. I have an AMAZING family, that take...
I'm with the others, it sounds a bit like kidney stones to me.. I have renal stenosis in both kidneys and chronic kidney stones. Like Gidget said, they really need to do a CT to totally rule out...
I'm sorry you had to deal with that, I'm with everyone else.. I'd steer clear of her. I totally understand that though. I've lost friends, because of things like that. I was actually with someone who...
Thank you very much, for the advice, I saw my rhuemy and he did say that it was the cell-cept, but he told me to continue on it.. he thinks I might have an ulcer as well, so I'm getting tests done...
Close to, 2 weeks ago when I was in the hospital for a bad lupus and arthritis flare.. they upped my plaqunil and prednisone and put me on cell-cept. Large doses.. and every since then I've been...
I've been tested negative and positive a few times for ANA.. it'll be ridiculously high, then negative. Like the other people said they're really unpredicatable. As for the medications, do you have...
I needed to whine again.. it's been a bad few days, I just got out of the hospital recently, and now I'm throwing up.. having horrible acid reflux, the sores in my mouth are really bad.. and it's...
Ack, we're getting the freezing rain and ice storms as well. It's been a horrid pain in more ways then one. I hope you get to feeling better soon, and you get some good rest in. I know it's pretty...
I have a lot of problems in the winter as well, but it's generally when it's damp.. I have raynauds too, which causes a lot of pain.. but lately the cold has been horrid on my arthritis.. but, it's...
I haven't ever been on Lamictal, but I know when I started taking depakote, it made not only my hair fall out on my head but also my eyebrows and eyelashes.. (I still don't have any) and apparently...
Thank you, very much. I appreciate the thoughts and prayers....
Thank you, it's been hard trying to stay upbeat, when I was in the hospital they gave me large doses of auto-immune suppressant drugs that caused the rest of my hair to fall out.. so I had to shave...
I'm sorry you're having a rough time, I am too.. I just got out of the hospital recently. I've been having a really bad flare, not only with my lupus but the FM, and my OA.. They upped my prednisone...
Update: I was in the hospital for only 2 days.. thank goodness. I was hoping it wasn't going to be worse than that. It was one of my worse flares to date. I was having to use a cane because of my...
Thank you very much, it's been really hard lately. Actually I just got of the hospital, fun fun. This time of the year is never fun for the joints....
Thanks so much for the understanding and well wishes. It's been really hard on me lately.. and this place is amazing, I was just thinking about how I felt before I even knew I had lupus.. and how...
I'm going to have to do that too, sometime hopefully sooner than later. I hope it all goes well....
Sometimes I feel as if I can't complain around my family.. and although they're amazing, especially my mother dealing with me being so sick I still feel horrible for complaining, sometimes she feels...
Yeah, between the stress and the medication, etc I'm sure it's something. I was just wondering how it would somewhat fall out.. but grow right back in. When my eyebrows and eyelashes fell out they...
I was told earlier today, that possibly my hair broke off at the roots, but it's generally in large patches. I just don't know what's going on.. and I'm starting to feel as if I'm insane, as I'm sure...
I'm one of the odd ones too.. I got a flu shot last year, I got the pneumonia shot 2 years ago.. I still have gotten the pneumonia every year, like it's clock work.. and as far as the flu shot, it...
I totally understand your situation. I can't afford private health care either.. I was diagnosed with FM a while back, but that was after doing a lot of tests I couldn't afford to rule out everything...
I'm sorry to hear about the headaches, I totally understand though.. I've debilitating headaches since I was about 13 years old. Sometimes I'll get them so bad for weeks at a time, that I can't do...
Like I've said before, my hair, eyebrows, and eyelashes fell out.. my eyebrows and eyelashes haven't at all grown back, but my hair grows back almost as soon as it's gone.. as if it's shaved, but it...
I get muscle twitches quite often, but I have siezures.. and they generally come before I get one.. although sometimes certain things will set them off. When they're ongoing they're usually called...
They were going to put me on plaqunil (sp) but, they were worried about giving me that with the seizures, and I've had shots of cortizone but it's made my heart rate go up, so right now I'm waiting...
Yeah, I'm looking into doctors I can see, and tests I can have done because it's really worrying me, quite a bit.. but it just started after I started new medicines, but I called one of the nurses...
Actually, I was told I needed to have my thyroid checked, but I haven't been able to, so maybe that is it.. and I do have very very pale skin... I'll for sure try the vitamins though. Thank you. In...
Thank you very much, I will look into that.. I appreciate it. It's really hard to get into all the doctors I need too, since I can't work and I have no funds.. and we won't talk about all the...
Actually, a site or numbers to call would be awesome if you could. I'm currently having to go to a free clinic, who sent me to a rheumotologist (sp) and I've been too a few other doctors, GI.. ect,...
My hair has been falling out, for years.. lots of it, but just recently my eyebrows and eyelashes have been falling out, quite a bit of them.. I was just wondering if I'm the only one... or has...
I realized in the past few days since I started the depakote, I have less seizures but it's emotionally screwing with me.. I sleep a lot during flares, which is what I normally do, but it's made me...
Thank you very much... and thank you with all the welcomes. There were other things I wanted to say, but sadly enough I'm pretty drugged up at the moment. I was wondering though, if anyone has used...
Thank you all very much for the kind words.. I've really needed them, I'm having bad flares with both lupus and FM...Even down to using the good ole' cane. Thank you....
Actually, my mother said I've been on depakote before.. (for migraines) but it was a smaller dose, and it wasn't ER (which this is) and that it made me a bit groggy and zombiesh then too. My...
I got to thinking.. everyone has their own ways of dealing with pain and chronic illnesses. Eventually overtime, you tend to build up a tolerance to pain and you try to see past it.. for me, even if...
I've also had a lot of problems getting diagnosed, I know it's hard to deal with. I went through over a decade of doctors and ER's making me feel as if I was crazy. I was diagnosed with FM at a...
I was very recently diagnosed with lupus.. which doesn't mean I haven't had it for years, I've been sick on and off since I was about 13 years old, and I'm now 25. In the past few years I've been...
I was put on Lyrica for my FM, it helps a bit.. not as much as I was hoping for though. My only problem with the medicine though is that I have to take it at night, because it makes me a bit more...