That's a real common side effect of Lupus is unexplained rashes. If you've ever had an allergic reaction to a drug then this is the type of reaction you'd have if you were allergic to the Plaquenil;...
I'm kind of surprised that I didn't have any side effects to taking it after hearing about all the people who do have side effects. Hopefully I'll continue without any!...
I took my first dose Wednesday evening and had no side effects at all. YAH!!! For once I'm not having to deal with a sick stomach or intestinal issues! Didn't feel tired the next day, so hopefully...
Congrats tink ... I'm waiting for my lump sum and monthly to start any time now. I've got 42 months of back pay coming. Congrats again!...
Renee, I am so sorry you're having these issues with your husband. So many of us here on the board have had to deal with someone in our family that doesn't believe we're really sick (me included). My...
I posted a few weeks ago that I was in a bad flare and that my Anti dsDNA had jumped up to 2,700. Even after the dr. increased my Plaquenil I haven't felt any better; if anything I'm feeling worse...
redrose, hopefully the contractions will stop and you'll be able to get some rest tonight in your own bed! Hospital beds, pillows and food leave so much to be desired! You'll be in my prayers. Robin,...
Hi Stacie, Sorry that you're having issues right now, I know how frightening all this is. I have Sinus Tachycardia which is a rapid heartrate. Without medication my resting heartrate is between 110...
Most important is you take care of yourself and give this baby as much time as it needs before you deliver. Do you know if it's a girl or a boy? I just found out this afternoon I'm going to be a...
redrose, Do you find taking the Imuran that you get more colds or infections? Is it likely that is what he will prescribe? As of last week and a $450 24 hour urine there was no protein, so at this...
redrose, How long did you take the Imuran before you started to feel better? Are you able to take that while you're pregnant?...
Thank you everyone, it does lift a huge weight from my shoulders. It will be so nice to not have to pay the $630 a month health insurance that isn't paying diddly squat. My lawyer says that I've...
Wonderful news!!! Hearing was great, Judge was wonderful and I was awarded disability from the date I filed which was April 1, 2005. Good news is I'll only be paying the $630 a month health insurance...
Congratulations! That is such good news!!!! /community/emoticons/yeah.gif /community/emoticons/yeah.gif /community/emoticons/yeah.gif ...
Hi MJLD, I am also a member of the LFA. Originally I joined it because my sister was diagnosed with Lupus, then over the years I developed symptoms and was eventually diagnosed with Lupus myself....
redrose, I have a wonderful rheumy that has written a very good letter stating that I have Lupus, Fibromyalgia and Meniere's disease and because of these three diseases the limitations that I have. I...
THANK YOU so much for your replies. I'll let you all know how it turns out!...
Ask your doctor to set aside the test results and what does his gut tell him. If he feels that you have Lupus ask him if he will treat you for it. Plaquenil is usually the first med they'll put you...
Do you ever feel like you're sitting on the sidelines and everyone is getting on with their life, having a good time, getting the things done they need to and there you sit because you either can't...
I can tell a difference after a couple of days. Probably what's happening is the on the downswing of the Plaquenil getting out of your blood stream it's opening the door for it to act up a little...
Personally, I don't believe that Estrogen has anything to do with Lupus. If anything my Lupus symptoms and blood tests have gotten worse since my hysterectomy (no HRT) September '06. I had a total...
I filed for disability in April 2005. My hearing is on March 20th. I letters from my gp and rheumy stating that I cannot work and why, my blood tests are off the charts. My lawyer feels I have a very...
Thanks all for replying ... I don't need any more weight and I'm so afraid it will get out of control. I hardly eat now (like a bird) it's just the not being able to exercise....
At what daily milligram doseage do you start to see the moon face, weight gain etc? 5 mg, 10 mg ????...
Thanks for the info hippimom. I should get my test results back tomorrow. Hopefully it won't be too bad....
Thank you all for replying. I should get my 24 hour urine test results on Monday. Hopefully it was just glitch with something else and it's not the lupus attacking my kidneys. I'll let you know the...
My rheumy said he's been waiting for me to go into a severe flare because my Anti dsDNA has been so high. Last week I got my blood tests back and the Anti dsDNA had jumped 500 to 2,697. Today the...
hmmmm now that is the first time I've seen that. Doubtful that it is from anything else, my lupus is active and doctors aren't considering anything else besides Lupus. Thanks for the info, I'll have...
jhmom ... you're probably thinking about ANA not the Anti dsDNA. The ds-DNA antibody, which was first described in the 1950s, reacts with double stranded deoxyribonucleic acid (DNA). While antibodies...
Over the last year my Anti dsDNA has continued to rise. First blood test the showed 1500 (normal being 0 to 99). Blood test last week was 2,697. Rheumy has increased my Plaquenil. My doctor is very...
It took two years of being positive before my Anti dsDNA was positive. Give it awhile, monitoring your ANA and you'll probably start to see a difference in the other lupus tests....
canuckgirl, I have had that problem on and off for years. It's not Thrush ... Both my doctor and dentist say that it's a deficency in Vitamin B12. If you double dose whatever the highest over the...
KaAl, Even getting a referral from someone here could leave you with a disappointing doctors visit. I received a referral from a lady in our car club who has lupus, swore by this doctor that he was...
She hasn't been calling my mother-in-law and she didn't show up at church on Sunday. One of the other members at church said that she had tried numerous times to call her but she wouldn't pick up the...
I wish it was just that easy to take a pill ... we'd all be popping those pills, instead of all the ones we are forced into taking. I found out from my mother-in-law (who lives off of our house in an...
I agree with Barbara, it doesn't matter how much your husband makes or even if you're married. It all depends on how much you have paid into S.S. over the years. I can't remember for sure but I think...
I just saw my urologist yesterday about my high Anti dsDNA. He said that if I start throwing protein or show blood in my urine to come back in and they will run tests to rule out kidney stones before...
There's a new girl at church that has decided I'm suppose to be her new best friend. About two weeks ago she called twice within 5 days and both times I was taking a nap. You guys know how it is,...
gela, The first test that is usually run is the ANA. Doctors run this when you exhibit symptoms of an autoimmune disease. It's usually used as a first step towards diagnosis or ruling out....
KaAl, I read your post the other day and it didn't come to me right away but after thinking about it I do remember having little white bubbles on my eyes at times. Also my the whiles of my eyes have...
Dr. said that even though it looks like shingles he doesn't think it is. Because I have it on both sides of my body and he has never seen it on both sides he thinks that it is just a lupus rash. He's...
Will do Rosie, I have a 3:00 pm appointment today with the dr. I'm able to call the doctor and just give them my first name and they know who I am. That is sad....
I found a rash on my stomach this afternoon. It was in a horizontal line with a red mark every 1/2 inch. The line went from my belly button to my side. Now there is a second area about 2 inches below...
Hi carol, I can understand the medical bill issue. I feel like I need to wrap up a few of my medical bills and put them under the tree from Santa to me. We pay $630.00 a month just for my medical...
No problem Rosie I understand ... I guess I shouldn't have even started the post because a enchondroma has nothing to do with lupus...
JD, I am so sorry what has happened to you. I hope that in the future you will be able to have a cornea transplant. I feel bad complaining about my health care after the things you have gone through....
Hey Fran, That's happened to me too! I attributed it to nerves in my neck being pinched but who knows. At least we know we're not alone!...
redrose, Yeah but that doesn't mean you won't have that type of a reaction this time. My allergist once told me, if you are allergic to a drug in any way, never take it again. He said that each time...
carol, frank and redrose, You guys are the best ... you bring tears to my eyes. I was having my own little pitty party. I had come home and called my niece but she didn't answer her cell phone, nor...
dazed, For almost twenty years my blood tests showed up negative for lupus. My rheumy said that your blood tests might never show anything different, then again they could go crazy. Three years ago...