I have had two done. It really is not so bad as long as you are not flaring during the time you have it done. I was in the hospital and I was already extremely sick so my recovery was a bit...
I forgot to mention I have had cyst on my ovaries in the past. My cycle leaves for almost a day and then it comes back this has been going for a couple of monthes. some one help....
Thanks everyone for all of your comments on this topic. I have been having the most odd cycles. I was comforted to know that I am not alone. My rheumy was concerned because I am anemic so I will be...
Hi meeks , I am now 31 I was diagnosed at the age of 28. I think there is hope I am now considering going back to college myself. You are in my thoughts and prayers. I did struggle a lot in the...
I will be praying that all goes well with you and the baby....
Hi Hippimom, I understand how you feel. I have a five year old and I started really getting sick about the time she was 3. I feel robbed of two years because I spent most of them in the hospital...
HI Barbara, I am sorry you are going through so much. You are in my thoughts and prayers. Sweetie if you don't feel better go back to the ER ....
Hi Barbara, I am happy something good has happened you deserve it. You are in my thoughts and prayers....
Hi Carol, I am sorry you are not feeling well you are in my thougts and prayers...
Thanks Ginny for the great advice. I am feeling rather frustrated because according to my doctor my labs look great so I should not be having thaT MUCH PAIN. i WANT TO JUST SCREAM at her!!!!! I am...
Thanks everyone for all of the great advice...
Hi Donna, I was only diagnosed with Lupus in January 2006 but had been suffering with symptons for several years without being aware of it. I do take Cell Cept I have been taking it for several...
I agree with Lynwood do not delay go to the the doctor a rupture appendix can be life threatening or there could be an infection in your stomach. I had a really bad one last year and had to have...
Hi Rebecca, I take high dosage of Cell Cept and sometimes experience extreme nausea. I would defintely contact my rheumy. Your rheumy can prescibe something for the nausea. I see you are taking...
Hi Carol, I am doing well to today. I guess that is the weird thing about Lupus somedays everything is okay other days it's crazy. a new sympton or an old sympton show up just to remind you that...
I am sorry redrose I understand how you feel about the hair shedding. I have gone through that as well. I hated losing my hair. I know you are feeling frustrated right now. You are in my thoughts and...
Hi Barb, I am praying for you lady. I know you can become frustrated I understand completely how you feel. Feel free to email me if you would like to talk. I had to resign from my job as a result of...
I hate the fact that you never know how your body will react to a medicine until you take it. Doctors always ask are you allergic to this and sometimes unless you have had that particular medicine...
Thanks everyone for all of the great advice. I started out at 20 mg of prednisone and keep getting fluid on my lungs so dosage was increased to 60 mg. I have been in and out of the hospital since...
This is kinda scary , I was taking Benicar as well and I was having a lot of swelling as well....
Rebecca you are in my thoughts and prayers. I understand how you feel. Praying that you feel better soon....
Thanks everyone I never thought about fibro and the prednisone being a problem. I thought it was the Lupus because the prednisone being tapered down. I was on an extremely high dosage. I just have...
/community/emoticons/cool.gif I am have a rather difficult day today I have been exhausted and hurting ever where. Nothing is working today I think I may need to get some different medicines. Any...
Hi Kaal , I think it can very . I have had swelling in my left eye before it was noticable my eyes were also extremely red and Extremely sebsitive to light. I did have the something that looked like...
Melissa you hair will grow back, mine has started to grow back and I am still on a high dosage of Cell Cept still. I also take vitamin E now that helps with hair growth ....
Lynwood, That is intersting what you said about the Cell cept helping with clearity. I thought it was me Sometimes I would become confused and have difficult expressing my thoughts verbally. I would...
I was reading everyones posts . Melissa I take Cell Cept because I was diagnosed with Lupus Nepihrits. I am now taking 15 mg of prednisone. I was on a dosage of 60 mg a day. I was just wondering when...
Sorry Butterflake, Hope you feel much better soon....
Hi Barb, You are in my prayers and thoughts. Praying for a speedy recovery for you!!!!!!!!!!...
I think we all have bruising because of the steroids. My arms are the worst. I can't wear short sleeve shorts any more....
Thanks everyone you have been extremely helpful. I am still learning about new symptons. This is still so new to me. So I may be asking lot's of questions....
/community/emoticons/confused.gif Sorry you are not feeling well. You are in myprayers and thoughts....
You are not alone. I was diagnosed January 2006. This seems to be a new sympton but I also have some kidney issues as a result of the Lupus. I was wondering if this has anything to do with my kidneys....
Does any one have really bad back pain? I was diagnosed with fibromyalgia as well as Lupus among many diagnosis. Lately I have been having really bad back pain. Horrible headaches can any one suggest...
Thank you for responding. I was just wondering because I just have been feeling horrible since the sun exposure. My back will not stop hurting. I am going to call my rheumy in the morning so she can...
Yesterday I think I was in the sun to long. The sun seemed to be buring my face and ears. I felt like my face was on fire. Has any one experienced this. I thought it was kinda of weird. I know I am...
Hi Melissa, You are not alone I really got said when my hair started coming out. I got a really short hair cut. It has now started to thicken back up and it is growing back. I don't know if it was my...
I have had eye infections in the past. I suggest you go to the doctor just to be safe!...
Thanks Hippimom, It is nice to be able to talk to some one that understands the roller coaster ride. Thanks for the information about the spoon theory. I really enjoyed that story it was so true....
/community/emoticons/mad.gif Sorry everyone. I am feeling so frustrated right now. When I think everything is good here comes a reminder that I still have Lupus. On the outside I look (normal)...
Hi I am an African American. I kept getting flu like symptons that would not go away, which lead to pneumonia, and lots of swelling and joint pains. I had been having a lot of swelling and pain in my...
Hi Barb, I was reading your post.I am sorry that you are going through so much right now. I have been there. You are in my thoughts and prayers!!!!!...
I know how you feel I am curently taking 3000 mg of Cell Cept. My hair also started thinning as a result of that and the prednisone. My hair has started to grow back though the prednisone has been...
Hi Steph, I think everyone can relate to being sick and tired. Sometimes it just helps to be able to express how you feel. I hope you have a good holiday and a speedy recovery. You are in my...
I understand I hate getting shots to. Since I have started getting vacinated I a have managed to not get sick and have to be hospitalized. I keep getting pneumonia. My doctors suggested that I have...
I understand how you feel Miss Magnolia. I think the one thing most people with Lupus have in common is the fact that The diagnosis was usually very difficult to obtain. I think often all of the...
I am taking Cell Cept 3000 mg a day. I have been taking it for about 7 Monthes and I was wondering how long it took before your dosage was lowered Lynnwood?...
Hi Marji, I was reading about you and your son. You and your son are in my prayers!!!!!! Praying for things to be better for you and your son!!!!!!!!!!!!...
Hi I understand how you feel. I have went through similar circumstances. I am 31 years old and I started out with extreme joint pain and swelling, and any cold or flu like sympton would attach itself...