Hello - long time no see. It's been a while. Just wondering how you're doing? As you can probably guess, since I'm back on the forum, nothing has changed with me. Still have LD & struggling. I've...
Acutally- I meant do you see dr x, in city y - I didn't want any rules to be broken. But I will email you instead....
So who do you see and in what city? Do you think it's helping?...
Hi Melody - How have you been? I'm still hanging around. I don't get on the board like I used to . Sometimes it's just too tough to keep reading info about LD. It seems like people stay ill forever....
Martha's Vineyard - I've been contemplating going to Hansa also. I'm still up in the air. Also, I too live in SW FL, Sarasota to be exact, where are you? Lisa...
bcaring - I took an info sheet to my LLMD and after reading it he wrote a script . I know it is supposed to boost the immune system, but I'm not sure if it is helping. My LLMD believes in high doses...
Hi Dowa - My LLMD didn't say if this was Lyme related. 5HTP is not a prescript ion - but I'm not sure how it increases seratonin....
Yes I have that too. My doc had me purchase 5HTP - 100 mg -twice a day on empty stomach. Lisa...
Hi CherylSue - I too take this and I think it has helped me sleep better. I used to take ambien but wanted to stop taking it and I tried LDN - it seems to work good for sleeping, at least for me. Lisa...
Hi Jennifer - Yes I was going to see Dr. Jernigan. Then decided to give something else a try. I was glad I emailed you and we conversed. I don't want to keep "wasting" money on different protocols....
Hi Runningirl I run Lyme, EBV, general health. I'm going to run parasites too. I've added bart and plan on adding more when I feel up to it. I use mine everyday. I know they say to take a day off,...
Hi Razzle - Yes I use a rife machine called a PERL. I think it helps. Many people in my LD support group use rife technology also. Lisa...
Thank you all for your responses. I don't want to take abx anymore, I don't think they are helping me. Plus, I just received my bill for IV's (10K) and that doesn't include oral abx that I pay for...
bump...
I can't remember who went, but I was wondering if they had to make any more trips to the clinic and how they are feeling now? I'm going to make an appt and would like to hear how they are doing....
Is this common? Do you find yourself saying everything that is wrong (every symptom) with you has to do with Lyme? Lisa...
I had the burning in my hands. Not sure if this is the same but I still have it, just not as much. Lisa...
Before I was dx with LD I tried all types of docs. One was a hand doc because I had pain, swelling and burning in my hands. He looked at an MRI and saw nothing out of the ordinary. That was the...
Hi Denise - thanks for the info. I did print the info you listed a while ago, but I'm glad you posted it again because it is in one of my many LD folders & I would have to search for it. I...
Hi dt31 - I belong to a LD support group in my area and a handful of us are using rife technology. Some people have made great progress. I purchased a Perl and believe it is helping. I'm doing so...
Hi Hiker 53 - Maybe it's lyme brain, but what is CNS/PNS? Also, good luck and let me know how things are going from time to time. Hi Denise - I stopped all abx. I do have a couple questions, what...
Any advice would be appreciated. /community/emoticons/smile.gif Thanks Lisa...
Fishfartus- I too started out with abx (IV & oral). I'm now trying alternative. Lisa...
Hi Noelle - I have a Perl and think it is helping. A few people in my Lyme Support Group have various machines and they all believe in them. Lisa...
I've been trying to call them for over 1 week to ask questions and place an order. I've left messages and get no reply. Has anyone had this problem? Not sure I can post the phone # - but here it is,...
Thanks Ticker and Denise - I read past threads and I think it was you, Denise who said everyone you know who has tried this is in remission. That statement spoke volumes to me. Denise, do you mind...
Anyone using this - 1. Did you have to visit his center? 2. Is he the one where you get a free phone consult? 3. Anyone use this protocal and not have good results? 4. How much does this cost per...