Hey Lymies, Can anyone recommend a neurologist? I've been having wicked dizzy/vertigo spells--they last a few seconds and everything spins--pretty scary. I really think this is a Herx, but b/c they...
I know this post was up a while ago but I'm curious as to how you are doing now? Did you get the HIDA scan? I have chronic pain and soreness under my lower right ribs. I have a script for a...
I get sores on my scalp, the show up and then scab over and slowly go away. I have a rash (that I can't see or feel) at the base of my skull under my hair that my LLMD says in Babesia. Don't know if...
It's like bright yellow Pepto Bismol (at least that's what I told myself while I was taking it). I agree--it's not so bad....
Oh yes, classic Bart rashes on abdomen and down into my groin that I've had since about 1993. I thought these were stretch marks for years and years. Since I've had them for so long I think I was in...
Hope the tests bring more answers than questions! The only clear test result I've ever had was the Fry blood smear for Bart, my initial Lyme diagnosis was all symptom based (rashes and other...
Yes, I already had it from this summer when I was going through an unbelievable herx, but that was before I started Rifampin/zithro (was on Minocin/Amox). Luckily I have plenty left over... Thank you...
I'm so sorry that you're having this struggle. I had escalating symptoms for ~ 5 years and ended up incapacitated at home for 1.5 years before anyone even mentioned Lyme, and even then I was the one...
I got clearance from my LLMD to take up to 100mg Trazadone w/ Ativan (smallest dose, will have to look at the bottle) while I am on the Rifampin/zithro protocol. Fingers crossed, wish me luck!...
Thanks everyone for the responses--reading all of this makes me feel less alone in all of this. Sounds like adding Ativan to the Trazadone may be worth a try. And, KeepHope, this encourages me to get...
Interesting--I started Rifampin (in combo with Azythromycin) about 6 weeks ago--my feet are feeling better and my Bart rashes stopped spreading, but still no sleep. I actually have some ativan, but...
Yes--I tested negative for Babesia but I still have symptoms and had some response to treatment (Mepron/zithro). Also tested negative for Borrelia but was diagnosed via symptoms and response to...
Hey Lymies, Any recommendations for managing insomnia? I can't remember the last time I had a real night's sleep. My doctor prescribed Lunesta, which didn't do anything. Latest offering is the...
I've had good success with Mag glycinate--helped with GI issues and with muscle pain, in fact, I think I'll start taking it again!...
I'm in MD too near DC. Would be curious to learn more about this doctor. If you have his contact info, please PM me. Thanks!...
I'm right there with you--yesterday I talked about this to my LLMD again and they once again said I have to be patient and focus on the weight situation later. Needless to say, that answer did not...
Am being treated for Bart right now--have been on Rifampin everday/Azythromicin every other day for 6 weeks and am improving--foot pain is resolving and new Bart rashes stopped spreading....
Foot pain has been a huge issue for me, have been dealing with it since January--my doctor's theory is that Bartonella is now coming out since he focused on treating Borrelia/Babesia prior to this w/...
Hey Folks, I've been on antibiotics for Lyme for 2 years, and have had chronic nausea and reflux the whole time. The only way I've found to manage this is to eat starchy bland foods, and thanks to...