That true....our true selves - inside - are still there, are still us....
That is a really good point, unwillinghostess, about our friends. We aren't the same people they knew. And yes, most of my friends now have chronic illnesses, too. It's still sad, because a couple of...
This is so familiar to me, too. I use to do art....paint, collage...I am too tired to do much of anything. It really feels like a piece is missing. I wish I saw that Oprah show, though. Because in...
Yeah patience is the key. : ) I would agree that faster treatment is not necessarily better. I started aggressive treatment in 2001 and didn't really feel better. I felt worse for a long time. You'll...
Hi Gracie, Well, I have had Lyme disease for years and you would think I'd be better able to describe the differences between IGG and IGM....my brain just doesn't work that well (My husband just said...
Hi Gracietiger, I was wondering if you have gone through any treatment yet? I'm not sure what your test means, but the double star does sound significant. I had a lot of positive bands a few years...
Yeah, that happens sometimes. Not very often, but it's sooo nice when it happens. Then I usually overdo it and feel it the next day. It's so hard not to go do things when you feel well, though!...
Hi Everyone, Thanks for the great info...I'll look into some of these things instead of the silver! There is Buhner's protocol...which includes most of the herbs Nefferdun put up. But if you want...
Thanks, Kitty!! Whoa! Maybe I should stay away from this stuff. I know Mesosilver isn't suppose to turn a person blue...but really, it seems like no one knows if it actually helps or not and that...
Mountainbiker...wow! Yikes! But that is a good story. Made me smile....
#1: Maryland - camping #2: Virginia - hiking I didn't know what was happening either time...I put the pieces together after I found out I had LD....
Hi Marie, I have good days and bad days. It's really frustrating to not really know why. I do not know why a day is good or when it's bad why. I can only guess and I'm wrong a lot of the time. I'm at...
Hi Martha's Vineyard, Yes, I really thought I was dying at one point! And I really can't even go on strong antibiotics anymore, because they put me straight into bed. My 1st LLMD was pretty much...
Maybe it is too much! What is EDTA (if you are up to explaining)...if not I'll do a search. Is that what you are doing in AZ? My 1st LLMD had me on so many abx, I really thought I was dying. I would...
Hi Tracy! Thanks for inviting me to be your friend on Lyme friends. : ) I'm Sue in WV....
Could be a herx. When I was on antibiotics and herxing I got a lot of new symptoms. And felt so, so much worse. I know there is a lot on varying opinions if herxing is good or bad. My 1st LLMD...
Hang in there! But I hear ya....being a lab rat can get very, very tiring. And that is an understatement. But you can do it....not too much longer....
Thanks, Razzle!...
It would probably help greatly to see a LLMD, too....they would believe you. Too many regular dr.'s tell us it's depression. Maybe that's part of it, but such a small part and Lyme disease is a very...
Another important fact....mice carry the deer ticks. You could have been bitten and not known it. The best test is the Igenix antibody test...a lab in CA....
Great idea, Chris!! I met my husband when I was sick. I was bitten (for the 2nd time) a few months before we started dating and I just got sicker and sicker. He stuck with me and we've been married...
Wow...when I was first bitten it itched like crazy, too...you just don't hear much about the itching. But it sounds more common than I thought. I thought I had mosquito bites...unfortunately not. I...
Hi rvnut....that is interesting (and not fun, huh?). Where I was bitten (which I realized years after the fact), I will break out again if I'm under a lot of stress....
Oh, a photo would have been a good idea! The rash is very light now. Ben's on Doxycycline...2 a day. I'm not sure of the strength. But this confirms my thinking...that nothing is set in stone and...
Does anyone have any input on how quickly a bullseye, or any Lyme disease rash could fade if a person was on antibiotics? My son has a bullseye, which is disappearing quickly with eczema cream and...
Hi All, Just wanted to say that I had a PICC for over a year (in 2001-2002) and recently did IV Cancidas for Candida. I guess it kind of gets in the way...but I really didn't find it all that...
Thank you so much, Sulma! I will get the freeze-dried garlic. What you wrote (the GI tract getting better, etc.) is exactly what I am looking for....and little has helped so far. Thanks again!!...
Hi concordefan....yes, that sounds familiar. So many Doctors in so many states down here say the same thing... "There isn't Lyme disease in Ohio" etc, etc. From what I understand, it's all over the...
Yeah, my sister-in-law got Bart from her cat....
Hi hope_29, Like seeingstarts said....YES, the western blot is pretty much useless, especially after you've had Lyme for so long (5 years?). Your story is so sad and unfortunately all too common. I'm...
Hi Beths, I just wanted you to know that these symptoms happen to me frequently on the bad days and my heart is fine. You should maybe check it out...better safe than sorry, but those are regular...
Joanne, that is good news...it's nice to have a positive test...even if we don't really need one. Absolute proof, huh?! I completely agree with bcaring....send that out! Proof that negative tests...
Hi Sulma, How much do you take of the freeze dried? I'm not sure I can eat that much fresh. lol. Susan...
Wow, Mountainbiker...that is so surprising! I've had what I would consider to be chronic Lyme for years. I would have thought it would be prevalent around that area of CT. No wonder the IDSA gets...
Thanks Seeingstars!!...
Thanks everyone! And Sulma, very interesting that they say odor free and it's not! But good to know, thanks! Seeingstars...I think Sulma was talking about the odor..not the fresh freeze dried part....
I'm thinking of starting garlic with Mesosilver. I'd also love to know if the Allicin capsules work. And if anyone has had any luck with garlic. I was going to try it for Candida...but if it helps...