Hi guys, I just moved yesterday, and my new internet is haywire, so I don't have very much time to respond to this post, though I have a lot of thoughts. I just want to thank ALL of you so much for...
Sorry if I am sounding like a lyme skeptic, but I'm just trying to understand all of this. I have been suffering from lots of symptoms, which came out of the blue, for years and have no diagnosis at...
hi rottendog - i was bit by a tick in africa, where there are no reports of lyme's, though there are reports of tick relapsing fever, which i do not have. i was also living in a very tick endemic...
Hi guys, Thank you all so much for all of your responses. I don't have much time right now but wanted to thank you for taking time to respond. I am not denying that lyme's docs do not adequately...
it seems like LLMDs almost always diagnose people with lyme's, which is one of the reasons i am so skeptical of seeing one. there are soooo many disorders that can cause lyme-like symptoms. i just...
robotkitsch- do you know what you have? i have a similar reaction to caffeine. james from missouri - that is the reaction i have as well. a small amount of caffeine, sometimes even decaf will do it!,...
i have EXACTLY what you describe. my head pressure is out of control, and it gets a lot worse when i take deep breaths. i also find that my jaw is severely clenched when i have the pressure. but i am...
caffeine makes my heart go CRAZY. cutting out my morning cups of joe was a very, very sad day indeed....
that's great!!!!! to respond to the earlier question about whether a drier, less humid climate helps, for me YES YES YES!!!! like i said, i moved from maryland to cali SOLELY because of the head...
the head pressure is definitely one of the worst, if not the worst, of my symptoms. however, i am only affected by it when the weather becomes rainy/low pressure or i am at high altitudes. in fact, i...
does anyone hear and feel a "whoosh whoosh" with your heart in your ears along with feeling an intense pressure in the head? this is going to drive me INSANE....
so funny that this is being discussed because just yesterday evening, i had a woman approach me and tell me i am so incredibly lucky that i am one of those women who only gains abdominal weight when...
is this common with lyme's?...
hi john, i'm trying to send you a private message but i am not sure how... would you mind helping me??? your story sounds EXACLTY like mind. i'd like to hear more. i too tested negative so i'm a...
wow, it sounds like so many of you guys have similar stories! my autonomic nervous system seems to be eating me alive, and i still have no answers! sounds like you guys know what i mean!...
that's really interesting! i am so glad you are pursuing your new diagnosis and treatment. i sure hope it helps you. when you said you experienced facial flushing before a panic attack --- do you...
thanks guys!!!! i still feel so unsure, but i know there is no straightforward answers when it comes to chronic, mysterious illnesses. i am not really willing to treat both a virus and bacteria at...
i am wondering if this is a very unusual presentation? i am caught in a debate between doctors who want to treat for lyme's and want to treat a virus. i haven't tested positive for either. i have...
sorry that this is a bit of a repeat post, but i think i have posted about it before and didn't hear anything back. though i might try again if no one minds. i am just curious is severe, rosacea-like...
hi daryl, thanks for your response. so the protein digesting enzymes needed to be prescribed? are there any less potent variations that can be found OTC? it sure 'feels' like the pressure in my head...
hi lf, unfortunately, i am based in california... quite a ways away from NJ! but thank you so much for offering your help...
Hi Hope, I hope you get some answers soon as well!!!!! I am interested in the fact that you had the same onset of symptoms as I. Have you had any other tests/diagnosis? Or did you go to the lyme doc...
thanks, minerals. your post was very inspiring. i too hope i can look back in a couple of years on these days able to do so much more than i can now!! the head pressure you describe is a lot like...
Thanks so much, Lisa! Your doctor is way more affordable than the other two I have looked into seeing in the Bay Area. If you don't mind me asking, without invading too much, what insurance carrier...
wow, it seems like others are in very similar boats! which is exciting because i don't feel so alone. i too am diagnosed with an autonomic dysfunction virus, but the question is, what virus? no one...
i am wondering how many people developed autonomic nervous system dysfunction from lyme's? i have read that it can happen on the internet, but haven't heard it discussed much. have any of you been...
hi chief, i would agree that the head pressure is the worst thing i have ever experienced. did you find anything triggered yours? mine is severely worsened by low barometric pressure, especially when...
yes, my blood pressure was never high when it happened. however, my body temperature would shoot up during a flush, even if it was for like six hours. it'd go from what it normally is at now, around...
thanks, dowa. i had my histamine levels checked several times, as doctors thought a lot of my symptoms sounded like mastocytosis. they have always been normal. i have also been thouroughly checked...
does anyone experience this? sorry if i have already asked this on this forum - i can't remember:) i am wondering if this is a common symptom of lyme's. i know it is on the list of symptoms, but i...
thank you so much guys. i will definitely bring these tests up with my doctors. i need to get some kind of answer for this pressure, as it is very very frightening since it is so intense and i have...
seeingstars - was tested for babesia and others through a basic laboratory. not even sure what kind of test it was. are the co-infections just as hard to detect as lyme's, or are the regular tests...
Hi Scorpio- You experience pressure in your head as well? Does anything trigger it? What kind of abrnomalities were on your SPECT scan? Are they serious? I am interested in getting one, but doctors...
thanks, karen. that is very helpful. i am wondering, how soon after treatment did you start to improve? has it been gradual over the course of the year, or are you just now starting to improve? how...
hi dowa, that is a great suggestion. it's funny, because when i complain to my boyfriend about this symptom, i always say it feels like my blood has turned into tar. like it is too thick to get...
hi dowa, and thanks for your response. i still don't have a llmd. i was waiting to meet with my infectious disease doc again, who ran a whole panel of tests like all the herpes, epstein barr,...
panic attacks were my first sign that something was seriously wrong. i had never had anxiety, ever, before and suddenly was having crippling panic attacks. i don't know that i have lyme's, but it...
i have read that neck stiffness is one of the first symptoms of lyme's. i did not start experiencing neck stiffness for about two years after i had been sick. but now it is unbearable. i feel like...
how many docs consider an indeterminate result a positive one?? does anyone know how often people without lyme's can have indeterminates, even on the "specific" bands?...
i am also looking for a sacramento (preferable) or bay area doc. i have heard of two really good ones, but they are very expensive. i am wondering if there is a more reasonably priced doc in the...
hi ticker - no, the doctors had no idea why i "suddenly" developed heart arrythmias!!! i went from a collegiate division I athlete to crippled by heart racing and pounding. i was initially told i had...
thank you guys. i guess it's actually hard for me to tell if i am "feeling better" or if some of my worst symptoms are getting better, while others are worsening. my heart racing and panic attacks...
hi all - i have not been diagnosed or treated for lyme's, though i have almost all the symptoms and an igenex test that might possibly be considered positive from a llmd's point of view (positive...
thanks, judy. i've had my thyroid checked out a bunch of times, all normal. i actually have been reading a bit about endometriosis today, and really think it strikes a chord in me. i'm going to try...
does anyone get this? i get it very suddenly, and honestly, it is connected to barometric pressure changes. today, for example, it is very cloudy and rainy (low pressure) and the pants that were...
thank you! that is a good point, however, i don't really feel like my physical or emotional stress has changed at all during the course that i have been sick, which has been two years now. and for...
i have read many posts on here about menstrual changes, but i haven't come across one about this specific problem. i spot about two weeks after, and two weeks before, my periods. for the whole two...
i am curious how many people, who were not cdc-positive for lyme, but were treated, have actually gotten better????? i know there are probably no official numbers, and the people who were treated and...
hi dorit, my docs can not explain to me my symptoms. my infectious disease doc, who is incredible, did test me for a huge panel of diseases, like mycoplasma and herpes and such - the types of viruses...
i recently posted about my igenex test results, which indicated an "indeterminate" titer, and an igg with a positive 41, and an indeterminate 31. i have almost every symptom of lyme that i read on...