Congratulation's. I do remember how sick you were last time I always read your post's as I got pregnant a few months after you. I hope this time is easier. It's amazing what we can go threw for the...
In my 6 year battle I have never quite figured it out. I test positive for Lyme and my MRI and spinal tap show MS. My local Drs will only treat my MS and I also take antibiotics for Lyme. I find that...
Congratulations! I know the feeling of being so happy and so scared. My OBGYN would not perscribe my antibiotics at first but I have a very good GP that would and an LLMD that was happy to talk to my...
Hi you said you were positive for CPN at one time were you treated for that. I have been diagnosed with MS, then Lyme and now CPN, We treated Lyme heavily at first went into remission for over 2...
I have been very happy with all the brands I have got from Vita Cost online. I think there prices are better than any of my local stores. I stock up every time I order because it is a flat rate...
I tested positive for Lyme 8 times but was always told it was a False Positive. I am Dxed with MS and Nuero Lyme from an LLMD. I did very well on IV antibiotics and showed almost complete...
My Nuero call herself a MS Specialist and she says shes never heard of this. Even though there is a MS Clinic at the Vanderbilt College that has started this protocol and made many people with MS...
My last appointment my my LLMD he believes he has gotten rid of my Lyme and is now treating me for c.pneumonia. I also have an MS diagnosis most of my symptoms are Nuero. He put me on the...
You are too young to have to go threw this I am so sorry. I am 33 and I feel just like you alot. I can't imagine if my 10 year old had to do this, it is a very hard disease. It's not fair to any of...
Thanks for posting I have been wondering what was going on. We need this to change so much. I would love to hear if any one has any ideas on how we can better fight this fight. I have written all my...
I have been diagnosed with MS by 6 Drs here in Oregon. I also have 8 CDC positive Lyme Tests. I tried there Ms Drugs they did not work. Antibiotics have always worked keeping my symptoms at bay. When...
Good Luck it is all so confusing. I started with a MS Diagnosis very typical symptoms. Had an MRI lesions in my brain and spine. They tested me for lyme it took them about 4 months to admit to me...
Congratulatons, another baby you must be so happy. I hope things are easier on you this time. I have always been lucky and not had morning sickness more than a few times with my 2 babys. My Husband...
Not sure about Mexico but have you seen Dr.H in California he is an LLMD and I think there is one other guy in California....
In the Documentary Under Our Skin there is a great part on a Dr Diagnosed with ALS who was treated for Lyme and recovered. Great movie you should buy it. I am diagnosed with MS but the only thing...
Back in July I flew all the way to Connecticut from Oregon to see a Lyme friendly Nuero I had seen years before. The appt. was weird my flights were all delayed I barely made it there and hadn't...
I have been looking into trying it, but the good brands seem expensive. My husband wants to buy a machine that makes your own. But I use to deliver food to the guy that was on Oprah that turned...
Hi, I am from Oregon and have had a hard time finding close Drs. I have been to Connecticut and California. Would love to know what you find out. My email is in my personal info if you cllick on my...
I went there a couple of times and really liked him as a Dr. He was there for me when I had my Baby and was very helpful. I have since had problems with the staff saying I owe them money that I have...
It can be passed from mother to child. I waited till I was symptom free and stayed on antibiotics during pregnancey and breastfeeding. So far we have a healthy one and a half year old little girl. I...
I was diagnosed with MS, I had a very typical case. I had lesions on my brain and O bands in my spinal fluid. But I also tested positive for Lyme. After a year and half of fighting and traveling 3000...
I had a spinal tap to rule out Lyme and Diagnose MS. It came back negative for Lyme dut I had a few O'bands can't say the whole name sorry. So they said all my positive Lyme tests from blood were...
I have had those alot. My first 4 episodes lasted a solid 2 months each and were considered Optic Nueritus spelling wrong sorry. They did an MRI and I had lesions on my eye nerves and was diagnosed...
Yes, I was on Amoxy during pregnancy and breastfeeding. They also dosed me with IV antibiotics not sure what while in the Hospital in hopes it would not come back. Well it did, make sure to take very...
Just thought I would share my story with you. I had a Baby Girl a liitle over a year ago and so far she has tested negative and been very Healthy. I had been symptom free for over 6 months and stayed...
I Have never heard not to execise, I think there are some of us that at times are to sick to exercise. But if you can get up and do it you should. I have areally bad tolerence to heat it brings on my...
Good Luck with your DR today. I am not a Dr but it looks like a perfect bulls eye rash to me. My Mother just had one and her first Dr also gave her steroid cream. Then she got a fever and went to...
Yes, I have lesions in my spine they have been playing havok with my walking and bladdar. I have tested CDC Positive for Lyme 8 times, been diagnosed with MS, and CPN. After 90 of IV Rocephin almost...
Sorry, I have been listening to that rubbush for 5 years now. I travel 3000 miles to see my LLMD and this last time I am not sure how I feel about his ideas. I can not afford to travel for treatment....
I am not an expert on the subject but my personal experiances have been. Always tested Positive from a Local Oregon Lab, from Igenex, and from Stonybrook. They all came back the same. I did just get...
I have also been diagnosed with MS by many Nuero's in my State. I always tested Positive for Lyme so after many months of confusion I went out East and saw a Lyme Friendly Nuero, he diagnosed me with...
You found a great place. Somebody will get back to you with better info. You really should see a LLMD and get a higher dose of Doxy. Good Luck. Feel free to ask anything....
I am Beth from Oregon....
Usually they do not give high enough dodes of doxy, what is yours and how long? If it was me and I knew how hard I have fought with this for 5 years because of delayed antibiotics I would take a very...
Michelle, I have been Diagnosed with MS, Lyme, and CPN. Doxy helped my nuero symptoms alot in the past. I just started minocycline, aztyromycin, and flagyl. Its called the Stratton Vanderbelt...
Thanks. So far as long as I eat with them I am just a little nausus all day. I will try Olive Oil. I really don't like adding more medications. Someone warned me to be careful of stomach medicine...
I think it's 400-600 mg doxy to treat Lyme. Remember I said I think. Check the ILADS sight and read there guidelines. Good Luck today....
I had an appointment with our supposed best Infectious Disease Dr at OHSU, what he said was final with all the Drs in my town. I drive a few hours to see him pay for a Hotel they call and cancell my...
Bump, Stomach hurts....
Hello, Any advice out there. I just started again 2 days ago and only half the dose and I am already having stomach pains nad serious brain fog and fatigue. I took this a few years ago maybe it was...
How can you have Positive Lyme tests and they won't treat you. Have you ever been tested for CPN, I just tested positive and the treatment is antibiotics. My Dr said CPN can also cause MS stuff. I...
Hello, I can't stand Drs some times. I am so sorry you do not have the money to se an LLMD. No Dr here in oregon would treat my Lyme with 8 positive tests. Well I shouldn't say that I found a great...
Good luck with the DR. Lyme is a very hard disease when it doesn't go away. You really need to be your own Health Advocate and remind the Drs they work for you. Keep staying informed it seems like...
I tested 2 years ago from an LLMD for CPN he never even acknowledged the test. My new LLMD which is a Nuerologist in CT. put me on the Stratton/Vanderbilt protocol and believes this will help with my...
Hello, My Mom gott lthe bulls eye rash about a month ago and was treated with to low of a dose of I think amoxy. I did get her to get 2 more weeks of Doxy also to low of a dose. She said she felt...
Hello, Just got back from Dr out East. I guess I tested positive 2 years ago from another Dr for Clamydia Pneumoiae and was never treated for it. he believes this is the biggest cause off my MS...
Jen, i have been meaning to answer alot of your questions about MS lately. But I just had the worst flying experience of my Life it took 3 solid days to go to Conneticut for a total of 22 hours. My...
I'll get back to you all when I get home. Got to go try to find Airport. Take Care...
Rd and Jen, I got to hurry to go try to find the Airport in Conneticut and go home and see my Babies. Jen my Dr really thinks Minocycline is the way to go if you have MS. I do have Obands and they...
I am not sure. I think having a combo of Antibiotics or IVs is ideal. But I am not that great at treating my own Lyme I have tried for years without a LLMD and definitly love having one. Where do you...