I am fighting Medco pharmacy as they have begun denying coverage for antibiotics as prescribed by my llmd. I am going through the appeal process but a friend of mine just forwarded a California law,...
On my last visit to my LLMD, he decided to pursue the problems with my teeth and jaw bone, thinking that Bartonella may be the lingering culprit that is still causing me problems. I have pain that...
Chris, The first time the investigator checked up on me was about one month after they approved my claim. Following that, it was once a month (two consecutive days) through November. Then not again...
Even when I was very sick (relatively speaking since I know many people get much sicker than I have with this disease), I would force myself out the door most days... walking the dog, buying...
Thanks for the support, everyone. I am calming down a bit. I re-read the statements of the investigation and what I reported as far as my disabilities and the two are in sync so I don't think I'll...
Thought I'd share my experience with everyone - and maybe rant a bit. I am on a private insurance policy for disability from my last job and yesterday a guy came to my house to do an interview and...
My PCR was the only test from IGenix that came back as officially positive. I asked my LLMD about it and he said that test doesn't lie....
In addition to medical records (doctor's notes and any other pertinent medical info), mine also had me bring in my prescript ion medicines to verify....
I love this post. Everything said really resonates with me. When I have that rare day where I'm feeling 95%, I still can't resist telling my husband, this is it, I'm well!...
I've been trying to learn more about this bill and found the following analysis. It has passed in the House of Representatives and now heads to the senate. It would take effect July 1, 2009. I'm in...
Good news on passing the bill. However, it's really disturbing to read about Ann Gershon, president of IDSA, and her campaign against chronic Lyme disease. I found the letter, mentioned in the...
Numbness and tingling around my nose and mouth and in my cheeks was one of my first symptoms when I got sick. I also initially had a couple of MRIs and all was clear; it took a year for me to get...
I experienced breast pain for a couple of months, similar to what you describe. Since I have fibrocystic breasts in addition to this, my doctor did have me get an MRI, which was negative (also had a...
My LLMD just added in Ceftin, which I started on 3/27. I'm also on Zithromax and Septra - just stopped Tindamax and Plaquenil. I'm tolerating it fine as far as my stomach goes, but I have tolerated...
That's very good (hopeful) news. My husband and I just watched Under Our Skin for the first time a few days ago and it was heartbreaking and so maddening to watch the IDSA go after those doctors....
I was looking again on the CALDA site, at the blog, 'touched by lyme' and it mentions the woman who writes it is co-leader of a support group. It might be worth it to try and contact her....
I wonder if you could contact CALDA and ask them more about it, or ask them about starting one in the bay area. I'm guessing there are plenty of people out there that would be interested. I would...
Hi - I'm in the Sacramento area. I found this site on CALDA that lists support groups around California: http://www.lymedisease.org/california/california_support_groups.html I've thought about it,...
I'm in the Sacramento area and have been going to an LLMD in the Bay Area (same as recommended by lhcook) for the past year. However, I also recently started seeing a doctor in Sacramento for other...
My husband and I both have Lyme. We did not get a rash and do not know exactly when or where we were bitten (or perhaps he passed it on to me, we just don't know for certain). He's had symptoms since...
It's definitely worth pursuing with a good doctor. When I was first searching, I spoke with a doctor who said menopause wouldn't cause you to feel 'sick,' rather, just tired and lacking energy. I...
KCRA Channel 3, Sacramento (northern California) is doing a segment on Lyme disease at 6:00 pm & 11:00 pm (pacific time). http://www.kcra.com/health/18943181/detail.html ...
I've had problems with TMJ for years, long before I got Lyme disease, but it acts up particularly when I'm under stress or sick. So, when I got sick with Lyme, it did flair up and became worse again....
Mine went away after going on Rifampin. I was on this for about 4 months - pain subsided after probably about 6 weeks. I did not test positive for Bartonella but assume I did have it (hopefully that...
I am older (51) and in menopause - worst problem is the hot flashes followed by chills, which happens 24/7. I have suspected for some time that a good part of my problems may be due to hormone...
I don't know about the answer to your specific question, but thought I'd share this article I just read in a yoga magazine. I also read a clip by Dr. Andrew Weil in which he touted probiotics. It...
I'd be interested in hearing feedback on this one also. In the beginning, I was ready to try anything and everything, regardless of cost and spent hundreds of dollars on different things, including...
I think it probably is the insurance company that is denying the coverage and not just the pharmacy, and I agree that is who we need to contact. I appreciate the feedback, I think we just need to...
I'm wondering if anyone else has experienced this... My husband and I both have Lyme disease and are going through a mail order pharmacy for our abx since beginning treatment in March, 2008. It seems...
I posted my story - shortened version as they only allow 2,000 characters!...
Thanks for posting this. This link seems to just play the first 9 minutes of the interview. Is there a way to listen to the entire interview?...
I was sick for 13 months before I was diagnosed and started seeing an llmd. I've been on abx for eight months now and have seen much improvement (very gradual). I guess you could say I'm on a lot of...
My husband's acid reflux is flaring again and he suspects the cause is Doxy, which he started taking a couple of weeks ago. He's careful about trying to control it including: taking Nexium, stops...
I also think it's about the money (I've never been in my primary doctor's office without at least one drug rep waiting to see her)... but I also think it's about the ego as was brought out in Cure...
Yes, I typically get at least one an hour during my waking hours - followed by chills. During the night, I usually get two or three, but they don't disrupt my sleep too much. I don't associate it...
My first symptom was a stutter in my speech. I ignored that for a few months, writing it off to stress, and then got suddently slammed with flu-like symptoms (nausea, weakness), tingling in...
I don't eat too much pasta anymore but occassionaly have brown rice pasta made by Tinkyada. Just tried the organic brown rice spaghetti tonight and it was good....
King, Just wanted to say, yes, I did (still do occasionally) get the buzzing feeling you describe (it was very intense in the beginning) and the "toothache in the bones" - unlike anything I've ever...
I had all kinds of really wierd pains. They would just strike randomly and last maybe a couple of minutes or a couple of days. Fingers, ribs, legs, feet, etc. Once I woke up and my middle finger felt...
My symptoms started as tingling in extremities and face, random stabbing pains and a deep ache in my legs. Now, my biggest complaint, in addition to the fatigue, is pain. I have a difficult time...
My first symptoms were tingling - face, feet, legs, arms, hands. I took Cymbalta for awhile, before I was diagnosed, and this helped. But it had its trade-offs, mostly increasing the fatigue and...