Thanks Yazzer. Yeah I have Bart for sure. Had the Rash also confirmed by 2 LLMD's and also Babs which is still kicking around a bit. Air hunger, night sweats but not as bad as before I treated that....
Great to hear Trav. Have you been treating Bart recently? Just asking because of the foot pain and if you were what seemed to work for you?...
Dr. R in NYC shouldn't be too far from you at all. I saw him for a few years and really liked him. Made very good progress while I saw him too....
I traveled all the way from Boston to NYC to see Dr. R. Great guy!...
Good to hear yazzer. I like seeing posts like this. It is so slow that you don't notice any improvement from day to day but when you look back like 6 months you think wow I'm better than I was then......
Thanks guys. I've read about the Marshall, Cowden and Buhner protocols. I heard the Byron White is fairly new. Is there anyone on the forums currently using this? My other problem is a lot of these...
Anyone here treat themselves at all? Obviously you can't prescribe yourself ABX but in any other ways? I had just saved up money to start seeing the LLMD again and just got informed I have to move...
I saw him for a few years and made really good progress while he treated me. Unfortunately I lost my job and insurance so I had to stop my treatment with him early. But I thought he was a really nice...
I have heard of people having lesions and being scanned after receiving treatment and seeing an improvement in the lesions....
Border those marks are the way I found out I had Bart. At my very first LLMD appointment my doctor diagnosed me with Lyme and said he also thought I had Bart from my symptoms. He started me on Doxy...
One thing that I have heard is that if you do want to really look into applying is to consult a lawyer first and make sure you go about it the right way the first time. I can't give you an exact...
And that Herb is mainly for treating your Bart Trav?...
Hey All, Have you been tested for co-infections? I have Bartonella and one thing my LLMD told me it can cause is bad anxiety....
Just wondering who has had success treating their Bartonella and what protocol you used. I know i have it and feel like during my treatment we never really attacked it aggressively and it's still...
I would recamend Dr. R in NY. I saw him for a few years and had a good experience with him. If I do not see this one in Mass then I will be going back to him... I will say sometimes it takes his...
Tammy the red blood cell thing would seem to me that you may also have Babesia......
Are you eating a full meal before taking the Doxy? I made the mistake of trying to take a dose with just water and it ended up coming back up. Yeah gross I know... lol. But Doxy is tough on the...
That's awesome. Good luck with the show. Hope to see it soon......
Neuro my e-mail is right under my name on my posts. You can just click that and should take you right to my e-mail. Lyme doctors mainly don't take insurance because insurance companies do not agree...
Neuro you are seeing a LLMD in Mass? If so could you send me the name?...
Well I finally got access to my AIM again and he's on at the moment but hasn't responded to me at all. It's bkwhite45...
I also have eye floaters. Very common symptom among people with Lyme......
I sure do... Problems with bright lights. Camera flashes burn into my eyes for like 10 mins before they go away. After Images....
Yeah I feel like my energy level did improve when I was feeling much better. After about 2 years of treatment. I was probably about 80% well but since then with this relapse I am extremely fatigued....
I have been doing a little Gingseng. Only try to buy drinks with it when I come across them in a store. What is DHEA?...
Yeah this forum has definitely helped me when I feel like I have no one. Fortunately my mother and younger sister are very supportive with me having Lyme. But my sister has a 5 year old son so I try...
Just wondering what some others might have used to help with fatigue....? My llmd always told me no caffeine so I stay away from that. He wanted me on B12 Injections but insurance would not pay for...
Can anyone help me with a link to Dr. Zhang's protocol for Bart? I never had much success treating it well with ABX. I always ended up getting the rare side effects and had to stop taking them......
Hi Brit could you e-mail me about this llmd? I have been looking for one in Mass for quite a while with no luck and you sound like you are very satisfied with this one. Thanks!...
Hi Sassy my LLMD actually had a test done for me that took pictures of my Red Blood cells and you could see the Babesia on some on my red blood cells. I wish I knew exactly what it was called. I...
Sorry I do not remember. My western blot was taken a few years back. I did have Bdubs aol name for a while but I haven't talked to him in a really long time and can't access my aol at the moment....
I e-mailed you back Jessica. Yes my eye symptoms are my worst. I have a high tolerance for pain the eye stuff drives me crazy. It seems like from my experience most people with eye issues usually...
Hi don't. Who prescribed you the 200mg of Doxy? That's a very low dosage. It may help stir things up a bit. I know when I first started Doxy I developed stretch mark like marks on my thighs which...
Traveler is Ticker not around anymore? I remember her being the old Forum Moderator and haven't seen any posts by her in a while. I also see in your sig that you have been doing acupuncture. I was...
Hi Neuro. I do remember seeing your name a few years back when I was first sick. I also seem to remember a Brian from Michigan that was around my age. Was his name on here Bdub? Me and him used to...
Yeah def looks like a Pos to me. Looks like it is some type of Lyme Antibody test. Like the others said I would get a Western Blot done. Igenex is a good one that you or your doctor can order. Also...
Thanks for all the kind words everyone. I really appreciate it. It's hard to vent to others who don't know what I'm going through. Like you guys said at least I do know I can get better. But at the...
Yeah I noticed after I posted and fixed it. Been a while since I had posted and don't know what happened to my sig since the last time I had posted... =)...
Been a while since I have posted. I treated my Lyme for a few years and had been feeling pretty good. I stopped seeing my LLMD because I was doing pretty well and needed a break on my wallet because...
Hi Brit could you send me any info you have on doctors in MA? I was traveling to NYC for treatment for a few years and have recently had a relapse and have been feeling pretty bad. Would be great to...
Thank You Dave...
All I have to say is do not go in the sun on the Doxy. I thought ok maybe ill burn a little easier... Nope. I was driving in my car and my arms and side of my face that were exposed to the sun...
Hi Mojo could you please e-mail me this doctor at Mass Generals info. I been looking for years for a doc in MA who actually knows something about Lyme......
I wonder if I already used that time up... I was out for a year with my PICC line. Not sure if it was just short term work disability I was on or not..... Thanks for the replies!...
So I live in MA but I see Dr. R in NYC... I haven't been able to see him or do a phone consult due to money problems. I am still on the IM Bicillin Injections that he last prescribed me. Well...
Thank you everyone... I'm still trying to work. I want to try my best before going on Disability. I am only 28 and the thought of being on Disability kind of depresses me. But I also feel like I am...
I'm very sorry to hear that Patti. I can't believe being bedridden and in a wheelchair and they may still deny you... Now if you were that condition from any other disease but Lyme you would get...
Hey everyone.... It's been a long time since I posted on these forums. I try not to think about my Lyme much and go about my day as normal as possible so I haven't been on here for a while. Well I...