I haven't figured out if it's a matter of not being cured, or having to live with the damages -- damages which increase in intensity over time. I really think they (bacteria) build some sort of...
My experience might not help. I was first diagnosed and given doxcycline. Then a year later, when I obviously to me still had the disease, it took a spinal tap to allow for the intravenous...
I want to chime in here a bit. I've had a cold for eight weeks now - because my immune systeme is really bad. But I don't think that people with lyme should beat themselves up about not taking care...
What the results of the lumbar will show is if lyme bacteria have moved into the central nervous system. I was grateful for the test. It was the only thing which convinced the doctors ( not LD...
The anger thing is new to me. It struck when I was at the dentist's a couple of weeks ago. His questions were reasonable, but I wasn't. I know he's not a lyme doctor. I know few people know anything...
I am so sorry. I understand about not wanting to take one more pill. I understand the loneliness and frustration that you can't see the end of the disease. I deal with these same issues and they are...
I read that taking ALA (Alpha Lipoic Acid) and Acetyl-L Carnitine would help with tingling/burning sensations. Does anyone have experience with this?...
Vivid dreams can come from too much Vitamin B6. Are you getting a lot of that?...
It's the cold weather that bothers me. I read that lyme bacteria like a very cool environment - that's why body temperature drops for lyme people. Staying warm is difficult, but necessary for me to...
The WBAL report was last night - and encouraging. Dr. Aucott who was cited in the show believes the medical community should get past the controversy and address the issues of what to do with LD...
I understand - don't give up. It's this long winter. Remember tomorrow is another day. Blessings and hugs. Ginnia...
I heard that WBAL-TV in Baltimore will do a lyme segment at 11:00 p.m. this evening. It must be the popular season for bringing it up....
I have tried fasting. It wears you down and makes it difficult for your body to keep on fighting lyme. Just be careful....
I think it's because some doctors interested in successfully treating lyme have lost their licenses....
I'm taking the prayer approach. Every time I think about my doctor, I pray that she learns all there is to know about lyme disease whether she wants to or not. I pray that information just keep...
Don't take vitamin C while on the antibiotic. C keeps any antibiotic from working. Take as much garlic as you can in hopes that the bacteria will not form cysts to hide from the antibiotic. There...
Good chance that's not a lyme problem - others have that pblem relating to the vitreous fluid in the eyes when they're older. Just get it checked and ask....
I did the hair analysis and think it was helpful. There were some notes that different labs come up with different results, but it helped me to know that iron was down, magnesium/calcium out of...
I had the absolute worst anxiety ever while my daughter was learning to drive. After she got her license it was still bad. I couldn't figure it out. Other kids went through the learning process and I...
How about magnesium? You need both magnesium and calcium for muscles to work right and the heart is a major muscle....
It doesn't make any sense for doctors to be ok with prescribing a couple of years of doxy for people with acne - as they did for my daughter, yet be fearful to allow more than 3 weeks of it for...
I take magnesium for muscle pain. The mag and calcium work together for muscles, but it's my understanding lyme bacteria consume magnesium. It has to be replaced. You can read about it yourself and...
I never heard the spoon theory before. Just found it and read it. Thank you. It is a great explanation of every day of my life....
One room in the house is warmer than all the others. I shut the door, turn on the electric heater and keep that room toasty. Come out when I have to. That helps. Blessings, Ginnia...
Forgot to say - I just built up until muscle pain disappeared. Then after awhile would drop back to see if muscle pains came back. If so, I increased again. I believe you have to always also take...
There are several kinds of magnesiums - magnesium oxide, magnesium lactate, magnesium malate, magnesium stearate. The kind you take relates to how much your body keeps and how much it can use. I...
Here's my experience. It is probably different for others. When I took the DHEA, I bought some tablets at the 50 mg size and did not think it mattered. That was too much so I did get the mustache. I...
Does a long soak bath with Epsom salts plus hydrogen peroxide in it give you short term relief? Taking calcium and magnesium supplements (lactate more than oxide) helped me quite a bit with muscle...
Several years ago when I was at the point of no energy and completely wiped out - but not at the point of being bed bound, I found a nutritionist who began checking my diet and recommending...
Here's an addition -- I remember the days I walked with no pain whether in sunshine or whether in rain. But these are the days when deer I disdain and spend many hours counting pills that remain....
I am convinces you have to sleep as much as you can while taking the anti's. Your body is then free to fight - you aren't calling on it todo anything else. Hope you improve. Ginnia...
This is the most hopeful info I have read in a long time. My hair has been falling out since I got lyme - ten plus years. (Never prescribed enough antibiotics to kill the bacteri). Hair is still...
After reading this yesterday, I found info in an on-line google book. (Titled "Chronic Fatigue, Fibromyalgia, and Lyme Disease", but don't remember the author) The belief was that detoxing would...
I posted this link on facebook. If more people can know about LD, maybe they will insist on early diagnosis if it comes their way. And maybe their knowing about LD will eventually lead to others...
Sometimes things work out even if barriers appear. I pray that this is the case for you. Just knowing that the stress has activated lyme should ease your worries some. When the stress dies back, your...
Sorry - I didn't get that either. I am interested in knowing how we all manage to keep on keeping on. I do believe that some of the damage is permanent - issues with arthritis and joints for example....
I was taking Vitamin D because I read of all its good effects, but not with a doctor's check. Last week I read that people with lyme should not take it if they have a problem with sarcoidosis...
You might be interested in reading about cinnamon. It balances the body's sugar levels. Takes it down if too high and brings it up, if too low. I think it's safe for people with diabetes, but they...
Did the doctors do a lyme check? Just wondering. Blessings, Ginnia...
Hi - Have you been checked by medical staff? Stomach pains can be caused by so many things that you need to have a medical check. Don't just assume that every thing comes from lyme or associated...
I read that when you are on antibiotics, the lyme bacteria form cysts and hide. When you stop taking them, they open up and become active again. This may be part of the sensations you feel. I've...
Ashley - You need to go to the lymes section of this forum and read a lot. What you just said is common. Many people test negative and then finally get a positive. I can't remember the name of the...
Ashley, Life is complicated for me. And trying to explain lymes disease is almost impossible. There are two points of view - one is to give antibiotics and keep checking the patient no matter how...
Thank you for your replies. You are right. The feelings are awful. I'd just like to find a way to ease the pain. Blessings, Ginnia...
Hi - So sorry about all your symtoms. It's awful that they always seem to come at once. One thing that helped me a lot with the muscle twitches was taking magnesium. You might read about it and see...
I found these comments while searching for "cold nose." Do any of you have a follow-up? Did you find answers to the problem? I have a cold face and nose which is so intense at night that I can't fall...