Violet.. I've been wondering about this too. Could you give more details..if for nothing else but hope? I've had this horrible brain fog for over 2 years and I'm wondering if it will ever go away...
Keep Hope, You have to do what is right FOR YOU. Who cares what other people think. You don't have to answer to them. They're not living your life, and it really doesn't sound like they're living...
when I mention the night sweats to my LLMD he asks if I get chills, and when I say no, other than I get cold because I'm wet, he dismisses the babs symptom. No air hunger, headaches, etc. I never had...
I have read the lists for coinfections and it seems like I could have either one or none..hard to tell. I was wondering what are the most obvious symptoms for everyone. There must be some that...
Does anyone get really tired and weak, need to sit all the time, but you just can't rest? I can't nap or anything because my mind won't shut off. I wake early in the morning and doze on and off, but...
Vicparis, Do you ever get the grain of salt/sand things coming out of your skin? I wish I knew what caused them..I don't have fibers or anything....
I'm pretty sure there's no treatment for Morgellons. Unfortunately. I've heard it can come from a tick too. I don't have any sores or those little fibers, just the sand things. They almost feel like...
yup, I've been to a dermatologist before. No one seems to know anything about it. I do itch first, not badly, but enough to scratch and there is another one of these sand like things. It's really...
I keep getting little things that come out of my skin, mainly on my face, and they feel and look like little grains of sand. Does anyone else have this or know what it is? My LLMD has no idea. Thanks...
I'm sure this has been posted before, and I may have even asked myself..don't remember...lyme brain BUT, how many actually get hair loss from lyme? It seems like the numbers are pretty few, but I am...
Is there ever any good news with lyme disease? It seems like all I ever read is bad stuff and it seems like if you have lyme you're pretty much stuck like this. People must recover. I just can't wrap...
I've been in treatment with an LLMD since July. I really haven't had much change. After a few weeks of orals, I've been doing rocephin with various other abx added on and off for the past 6 months....
Bless Your Heart, Dorit! Thanks for saying that!! Having these feelings, or lack thereof, is truly frightening. That's the worst part for me and I'm waiting for it all to go away. Glad to hear others...
If only we knew, Chief. I thnk we'd all be in a better place if we could figure this one out!! I've heard minocycline works wonders on the brain..but I haven't tried it yet. I'm hoping to ask my doc...
Wow! You guys are awesome! Thanks for all the info! I'm just scared to death that lyme has triggered something worse that I may not get rid off. My symptoms are with me all the time..I never get a...
Hi MV Thanks for the response..I tried previously to get the book but our bookstore didn't have it ...I will try again. I tried to read your old post but couldn't figure how to find the old ones...
Is this something that is permanent? Wow a year with very little improvement is too scary to me. I can't function like this at all. I haven't had a SPECT scan yet, but did have a clean MRI. Does your...
Hi I don't post much, but I have a question that's been bothering me. My main and basically only symptom has been brain fog. It's actually worse than brain fog...it's more like half my brain doesn't...
I'm surprised they're not saying anything about the hives. I had an allergic reaction to one of the meds and was told to stop immediately. I'm sure they must feel you need the rocephin, but maybe...
Hi I've been on rocephin for about 5 months. When I first started taking it (I infuse myself) I was doing it late morning and would feel sick and sleepy for a couple hours afterward. I slowly moved...
Dowa, I was just wondering about your mold exposure. I think I may have that problem. How did you know and how did you treat it? Any info would be appreciated...thanks...
thanks Razzle and Dowa My main problem is I can't concentrate on anything. It's like the joy is sapped from my life. Everything I loved and brought me happiness has been taken. This is so unlike me....
Hi everyone I've been having a reallly hard time coping lately and I wonder how all of you do it. I just cannot wrap my head around what is happening to me. I've rarely gotten a cold much less...
Hi all I'm new to the lyme forum, not lyme. I found out I have lyme in July 08. I'm not sure when I got lyme...started to get really bad in Sept. 07. I've had on and off joint pain in my back and...
Thanks! I'm sorry I made it so confusing. My doc said I could stay off them til I see her...and then we'd try another. I, however, don't want to take anymore, period. It's been nine months of hell...
Hi Everyone I haven't been around because I've been wallowing in my own misery. But I do have another question that maybe someone can help me with. No AD's seem to work for me. I get horrible weird...
Thanks everyone! My MRI came back normal. The tremors I have go on all the time. My hands shake the worst but I feel it in my whole body. Now I'm getting clumsy and dropping things. I never had this...
Has anyone experienced tremors from either anxiety or meds? My hands shake all the time and so does my left leg. It all started when I started taking meds. It gets so bad sometimes it's hard to...
I don't think I have chronic fatigue. I don't have any pain or any of the other symptoms. Just so tired all the time. Feels like I can't move and afraid to do anything. I'm really at my wits end....
I've tried some of those things. Frankly, I'm running out of money as I haven't been able to work. I can barely get through the day. I don't know how much more of it I can put up with without any...
I've been on the anxiety forum but now think I should try the depression side too. I have been struggling with depression (and anxiety) for the past 8 months. Been on meds and see a counselor and...
This is my 4th doctor. After the first one I was so sick I ended up in the hospital. After I got out, the doctor (#2 aside from the hospital) didn't seem to want to treat me anymore because I have...
I've wondered about the yeast connection myself as I have many of the symptoms. How do you cleanse the body of yeast? Do you need to see a special doctor for this? I'm very curious because I had...
Thanks for all the support! I'm having a really rough time right now with everything that's going on. I've lost 3/4 of my hair, lost 30 pounds and look awful. That's what led to the celiac diagnosis....
Just starting on this forum. Thought maybe someone might have some words of wisdom for me. A couple years ago I started having panic/anxiety attacks and was put on Lexapro. After a year and 1/2 I...