Valerian root works great, and so does Neurontin for me (eases the nerve pain & makes me a bit sleepy...
As mentioned, I am at about a month on Cowden and I think it helps (also doing Ceftin.) Tried Zhang and did not get any improvement from it. The Cowden costs about $450 a month (estimate) so it is...
I am doing Cowden now. I have been on it for 29 days, and am at the point of adding Samento to Cumanda and Enula. I find the Samento is producing what I think is a herx: intensified symptoms and...
I have heart rhythm issues: have had them since before Lyme. If you take a combination of Magnesium, Potassium, and Tuarine (an amino acid) you may notice a difference: this combination is used by...
I have been waiting to post because I was afraid that this would all disappear, but it's been seven days and I feel better!!! I have been to work all week, and have had enough energy to get through...
If your pain is nerve-related you might try Neurontin. It has worked wonders for me, and I was afraid of the Cymbalta side effects...
Is ALA the same thing as Lipoic Acid? I have seen both mentioned: not sure if they are the same....
Has anyone else had a doctor suggest Multiple Myeloma as a differential diagnosis for their Lyme symptoms?...
What about Dr H in Hyde Park NY? Any experiences with him? I have an appt in November...
I think so: when they add sugar they add a lot of sugar. I second the probiotic advice: I take it every morning first thing & then twice a day after that....
I haven't gotten it: take probiotics, eat unsweetened yogurt, and have been taking abx for three solid months. I feel a little bit of something when I switch abx but after a week or so I am fine....
Anybody else doing this? I know pcpc said she did them successfully: I would love to hear from her & anybody else who tried it....
I could not find prices on his web site: do you have to email him to get that?...
I would like to know the logistics of seeing Dr J. Do you go and stay at his clinic for several weeks? Do you live close by? And perhaps most important, how much does it cost? Does insurance cover...
Is any body else doing rife treatments?...
I switched to the Neurontin - just took the first dose. Will keep you posted....
What you are describing might be - I am no doctor - and optical migraine. I had two of them in May & June. I saw a jagged edge of lights & spots that gradually got bigger (no vision in the area) and...
Anybody had any success - or not - with Lyrica to control nerve Pain?...
JennInPA: I am in the same boat as you and Willowrose. Diagnosed late July, on abx since then, LLD in September, just seem to be getting weaker and sicker, with only minor symptoms seeming to...
I am not sure if it is a herx or just the sickness: about an hour after I got out of the bath I started to have neuralgia and sweats, and today I am pretty much in bed, with the weakness and...
How did you treat the virals?...
Thanks Razzle. It was a Epsom Salt and Hydrogen Peroxide bath. Should I stop doing them? I will discuss with LLMD....
Can you get a herx from a detox bath?...
Rose: You write beautifully: it is hard to imagine that Lyme has eroded your intellectual functioning too much. I think I am still in the 'denial' phase of this illness: thought when I got sick that...
Yankee and Phillies games...
Oops - one more thing. I did have symptoms that have resolved. I started out with tingling from the waist to tthe toes: that is gone, as are the yellow patches and little black dots in my vision. I...
I have only been in treatment for 3 months, and still feel wretched. Doxy for five weeks: felt some relief in the 4th and 5th week. Then started Mepron/Zithro: had shaking chills and neuralgia from...
Rose: Thank you for your post. I have been sick for three months, so sick I have had to take a leave at work with no clear sense if I'll ever get back. I do believe we will all get better: I just...
I watch a lot of netflix movies: I ws always a big reader but now can barely concentrate on reading. I spend a lot of time on line, on facebook to keep up with my kids and friends. I have a bunch of...
He told me that Xithromax would treat Bartonella as well as Lyme. I took Zithro and Mepron for Lyme and babesia. I have always thought my symptoms were more Baronella - ish, but he said he thought...
I am also positive just on Band 41. I also have many neurological symptoms...
Yes - and it was negative, as was everything else - Babesia, Bartonella (2 strands) etc...
I have terrible neuro symptoms: tremors, pain and neuralgia in the back and hips, insomnia, and crippling weakness. I will definitely look up Ehrlichia. Why would my LLMD not have spotted this (I...
I was positive for only one band - 41 - on my WB, with elevated liver enzymes and low white blood cell count. Does this mean that I do not have Lyme? What does the low wbc indicate?...
I have the same thing - from Ceftin i think, and I have lost my appetite...
So skagey guy: did it take a year of IV treatment before you started to improve? I have been on meds for 3 months and still feel all kinds of neurological impairment: so weak and shakey I often...
My other symptoms (at the current moment) are not too bad: Still have the neuralgia in my back and some tremors, but not too bad. My internist is also talking about Lyrica as something that might...
I think you're right about the acupuncture. I have been aware that i need to do more to get rid of toxins: doing the Epsom and Peroxide baths every night now and taking Wobenzyme frequently. I am...
I had the experience of getting off my acupuncture table today, and feeling a lot of tingling and weakness in my legs: got very shaky and weak. Is this neurolyme?...
I had another hideous night and feel absolutely ready to die this morning: how long before people can get relief from symptoms? I am truly ain agony and the docs all say "hang in there." Don't know...
THanks to each of you for replying. I got sick in late July - just terminal weakness and fatigue that turned into horrible neuralgia once I started Doxy (we live in a Lyme hotbed and my internist is...
I have a call into him, which I hope he will return today. I got up this morning, fed my birds, downed my abx and supplements, and am back in bed. Did a first Rife treatment yesterday: thought I did...
I just posted about feeling as if I am just slipping away: getting weaker and weaker, trying to take a zillion abx and supplements and herbs and just feeling worse and worse..nobody around me,...
I am now on Ceftin and Xithromax: I feel I am losing ground. I am so much weaker, cannot sleep, and still have awful neuralgic pains in my back and in my legs. Is this a herx? Is it ever going to get...
How did it work for you? Are you at the point in your Lyme journey where you can work & lead a somewhat normal life?...
My LLMD is going to start me on Ceftin: has anybody had success with this? What did you take with it, if anything? Thanks...
Thanks to everybody. Nicky D: I actually got into a PhD program this year, something I had wanted to do forever, and had to defer until next year. it was so disappointing that I just cried. I cannot...
thanks for that. Today I feel so bad I cannot imagine recovering. Where is your doctor? Have you seen any improvement to give you hope?...
Are you able to work? How long did you have the infection before treatment? Every day is just an eternity... Thanks...
I have had Lyme and I think at least one coinfection for over two years. Started treatment mid-July, and am now on my fourth week of Mepron Zithro. I am trying to keep making it to work, but it is...