I have taken liposomal glutathione orally, but I now have IVs of glutathione once a week through my ND....
Sarah the reason I tested again was because I am told and being tested for muscular dystrophy. At first I thought it was the Lyme imitating, but have not found any link between the two..... And I...
Would really appreciate input on this. Do not know what to make of it. First Igenex test 25 February 2014. Positive. IGM Band 18 + Band 28 + Band 30 + Band 31 + Band 39 + Band 41 +++ Band 58 + Band....
I have lost exactly one third of my body weight. Was 132 lbs, now 88. Yes I am worried, scared silly, don't know what to do. Do not go near the scales anymore, do not like what I see. Even the...
Finally after waiting 4 months was told I do not have fshd1. However apparently there is an fshd2 which is a lt rarer. My geneticist seems to think I may have this, so here I go again....... He has...
Thanks so much, I am following your advice. The headaches already cleared. Still under the blankets. So grateful for your guidance....
Hi traveller. I will be checking the DNA results very closely, but I understand that they are extremely accurate. So if it shows musc dystrophy there won't be too much I can do about it. Girlie,...
Thanks for the replies. Mister mike, most of the floaters are black but also lots of lighter squiggles and yes petered they do move and I notice them more in a light source. Is this from die off?...
Well got to speak with Dr c on Wednesday. (I was on 100 mg minocycline x 2 a day. And pulsing 5 days/5 days off 250 mg azithromycin x 1 a day). I was flaring (herxing) pretty bad on the azithromycin,...
I saw Dr c 1 month ago, live in Ontario. I flew there with my daughter. I just had my first telephone consult on Wednesday. Scripts are filled by pharma save in Richmond and sent to me by purolator r...
Dr y in Barrie is as good as any LLND. He made the choice to study with Dr k in Seattle rather than the ILADS conf. I know it is just a matter of time before he gets his LL designation. He is very...
Good luck with it girlie. Hope it does not upset you. And....... Thanks for the info....
I am on the minocycline and azithromycin and have taken both together with food. Is this wrong....... Should I be taking on empty stomach. Gee there is so much to learn. I thought with food would be...
Oops that should have read BX protocol...
My ND's is looking into this. Wondered if anyone has any info/knowledge...
Hey..... I did not want to post back on torontom message and spoil his thread.. Abx going well. Pulsing azithromycin 5 days on and off. Days 3 and 4 have left me very weak, shakeyy voice, want to...
Toronto-m I am in Barrie and have been enquiring about bee venom treatments. I would not want to travel into Toronto....
Thanks lyme mother. Have looked but still unable to find. I am just north of Toronto. None of my local health stores carry it. Will try the larger grocery stores tomorrow. Hey girlie thanks so much...
Very impressed with Dr c. Back home now and on day 2 of my Abx. I take 100mg twice a day of minocycline and 250 mg once a day of azithrmyocine. Lots of probiotics and I am still looking for a product...
Hey hey girlie, sorry to interrupt your time off...... We are on the wharf at Steveston so it is only 5 mins walk from Dr c office. Rah rah yeah, this will be a very exciting day. LLND and whale...
Oh traveller..... My appt is tomorrow. Unless there is anyone else familiar with Dr c and his initial consult, guess I will have to take my chance on making the whale watching. Came here from Toronto...
Hi girlie. I have appt with Dr c Tuesday at 9.45 am. First consult. Can you tell me how long I will be there. Lol. I want so much to go whale watching, but have to be at the dock for 1 pm. Do you...
That would be Dr L. An ND. Unfortunately ND's are not allowed to give antibiotics in Ontario....
Bellyful, still reading. Powerful. Thanks....
Girlie, I understand, I feel as though I have lost 3 1/2 years. My passion was long arm quilting/designing my own quilts. Have not been able to run my big machine due to muscle/weight loss. Keep...
Sorry but did not see till later. DH and I both cried. He said this is all that you have been trying to explain to me..... To all the lymies out there Who struggle through their days My hope is...
Hi I heartx. I am so sorry to hear of your pain. I too had a high tolerance for pain, but have just gone to Dr for pain meds. Cannot tolerate the pain in left hip and spine any more. My ND's even on...
Thanks so much you have no idea how much your support means to me. Guess I am going thru bad phase right now. It too WILL get better....
Oh traveller, welcome back, thought you were taking time out, well needed.... Hope you are feeling well and not coming back to us too soon. Got anti inflammatory and pain meds from Dr today. Am...
Girlie, 2012 diagnosed with poly myositis, prednisone for 11 mths and that's when I lost weight. Original 132 lbs, dropped quickly to 109, then 95 now 91. Stopped the prednisone and took Igenex test...
Girlie, I have done 7 months of Cowden, 4 months of Buhner and currently on Dr k protocol. Initially on Cowden I herxed but have not since, seemed to have plateaued. Weight is currently 91 lbs and...
Spoke to Rosanna magnotta of magnotta winery today. She lost her husband Gabe to Lyme disease and has set up a foundation in ont. she advised me to go get Abx and I have appt with Dr C in bc on 21...
Hi trav. I did herx regularly a year ago on the Cowden, but then it seemed to have no effect. So I switched to Buhner herbs, they did nothing, no herxes. My ND's suggested the Klinghardt protocol and...
Thank you for the input. Belly full I will certainly look into the nestle benecalorie. I had not heard of it. I already make my own peanut butter and add to shakes. Rice pud I eat a bowl each day and...
April 2014 tested cdc and Igenex positive for Lyme. Have treated with Cowden, Buhner and currently Klinghardt protocols. Had a western blot done 3 weeks ago thru fry labs and today I heard from Dr...
I have suffered too with so much pain. Have taken Wobenzyme plus 8 pills a day and lots of circumin. Body weight now down to 91 lbs and very little muscle. The pain is becoming unbearable. Feels like...
I suffered weight loss and muscle loss. Was a healthy 132 lbs. now I weigh 92 lbs and no muscle. I take creatine to try to keep what little muscle I have and see a kinesiologist two times a week for...
Faithfully following my Dr k protocol. Thrown for a loop on Tuesday... Told at Hamilton mcmaster teaching hosp that I have fascioscapulohumerol muscular dystrophy.......gave bloods genetic/DNA...
Utahgal, I have used Wobenzyme plus for about two years. I would not be without it. I tried Wobenzyme n, but it was not as good. I have to buy the w plus thru my nd. I take four pills am and four in...
Astroman, I have a 4page from research nutritionals which talks about Where do transfer factors come from, why are they made, and how do they work... Reprinted by explore publishing. Explore volume...
Although I live in Canada, I have a relative, friend who went to the Breakspear clinic in Hemel Hempstead. He is now ok. Have you checked them out. Do not know what their fees are like. Sorry I...
We all, I am sure consume many sups in gelcap form.... According to my Nd the gel from the Gelcaps feeds the biofilms. I am trying to cut out all Gelcaps, it's hard..... Anyone else heard of this?...
My ND has started to follow the Dr k protocols. He was with Dr k in February and is due for another (learning) visit soon. He started me on researched nutritionals transfer factors lyme plus and...
traveller, Yes I take two Brown rice high protein shakes every day, from my nd. My nd is studying under Dr k and will be starting me on dr k's protocol as soon as he has it here. I am already on some...
Weight loss is a big (little) issue for me lol..... Used to weigh a very healthy 132 lbs. now weigh 94 lbs. I eat well but am unable to put on any weight. Also have extreme muscle wasting and...
Susieq sorry to hear all that you have been through. I only wish I knew the answer to your question - what now. My understanding of myositis is that of a description (many aching muscles). It is not...
Sorry should have added live in Canada, Drs do not recognize my Igenix pos. test so they will not take Lyme into the equation. Surely the Lyme will cause all of the same issues as the myositis....
I too have high ck currently 292 I test ck every month. Susieq , I was dx with polymyostis in 2013 and put on high dose prednisone. I weaned myself off it jan 2014. Dreadful exp. tested positive for...
I use this every day.... Keeps me regular, makes my hair feel soft, nails not brittle any more. Love the stuff. Take I very first thing in the morning....
Is the fry fl1953 a blood test and can you please indicate how much it costs. Funds are getting low..... Lol...