Hi there, My understanding is that sweating that comes with exercise releases toxins and more importantly stimulates your lymphatic system. If you dry brush before your baths this also stimulates the...
Hi Willie, I haven't posted in a while. Your post caught my attention because this was one of my first symptoms. Everyone on this forum really helped me a lot. After 8 months on abx and alternative...
Hi Mike, How have you been feeling? I know you said the lyme symptoms would return if you stop the diet, does that mean you are symptom-free? Did you only become symptom free on this diet or are you...
Just to let you know, Dr. J has publicly stated that he usually reserves IV for those who are having cognitive difficulties (like not remembering their kids names). I'm not sure of your symptoms and...
I was lucky in that I got symptoms in the winter when his client load is a little lighter and had no problem getting an appt. I know of two other docs in the area that have treated lyme patients long...
Hi Eric, I live in MD as well. There is an LLMD in Germantown MD. If you email me I can give you his name and number. Just click on my name and you should see my email. Welcome to the site....
My Goodness, we really need to help each other! It is horrible to have no control over your emotions. I have to say after doing research I do the following four things: 1. Drink tons of Chammomile...
What a great article. Thanks for that. I wonder what abx were used....
Hi Joann, I definitely was not referring to your post. That is what this forum is for: support when you have troubles. I don't feel that the forum has been negative, but I've seen that written by...
Or a link on the "New to lyme" sticky. We should have links to all the posts by members who feel they have recovered or are almost recovered. Posts like the one Sulma, HeathersDad and GWB created. It...
A lot of questions, but since you're asking about opinion, I'll give mine to you. If you go on the lupus forum there are people left and right who will tell you that you can have lupus WITHOUT a...
Liz, I'm wondering this myself. I would think that if you are treated for lyme and bartonella orally and do not experience any relief from the anxiety then it would seem likely that not enough...
Rose, Thanks for the reply. I started treatment 6 months ago. I am currently being treated for bartonella. I went through doxy/minocycyline and biaxin for lyme. Now I am on zithromax and rifampcin...
My LLMD (who is also a family practitioner) said he hates the cases where someone walks in complaining of headache only to test positive for lyme. The atypical cases. I am one of those that don't...
Gary, I don't want him to be disappointed if he goes to an LLMD and he is prescribed 100 mg of doxy twice a day. After reading this board and others and going to lymemd, I was disappointed that this...
Hi Liz, There are several threads going on right now about this very topic! Yes, I never suffered from anxiety or panic until I got sick. It is the scariest symptom for me because I keep thinking I...
Hi Eric, That is the dosage my LLMD gave me at first. An EM rash is ONLY seen in lyme disease. So if you had the bullseye, then yes, an MD could diagnose you on the spot. You are lucky in the sense...
From everything I've read, it does seem that Bartonella causes most of the psychiatric issues of lyme and company. My first symptom was a panic attack. I'm 30 and had never experienced one before....
And here is just the abstract of another article. It seems very interesting, wish I had the whole article. http://www.ncbi.nlm.nih.gov/pubmed/16149211...
Sure: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2100128/ Also wikipedia has some information on bartonella. I know that I have bartonella. If you read the nih article, it mentions that one of the...
Actually, the main vector for Bartonella transmission are Fleas. Kittens pass on cat scratch fever (Bartonella Henselae) because they can have flea feces on their claws. There is a very high...
Hi, Thanks for the reply. I was at my LLMD's yesterday and my blood pressure was 104/70. I've had this symptom on and off since I began treatment 5 months ago. He did say he was going to check my...
I get these horrible sensations in my meninges? Can't be my brain, but it feels like it. It throbs and feels like something is moving around in in there. Very creepy sensations. Mostly in the back of...
There are two reasons that were explained to me. Trying to keep processed foods at a minimum to aid in digestive health and because dairy prevents the full absorption of certain antibiotics. I would...
Hi, I was just going to post something about this. I had been drinking cow's milk kefir, but since going on the antibiotics and this "lyme" diet, I have switched to coconut milk kefir. From...
Gary, You're always great at responding, thanks for that. However, I think my questions are being a bit misunderstood. I agree with you and there is clear evidence that refined sugars are not good...
I didn't know that naturally occurring sugars were considered an immunosuppresant. I can understand the processed stuff. But we were built to consume sugar (in moderation of course) from natural...
I haven't been convinced of the usefulness of this restrictive diet. Lyme lives in your tissue, it eats it. If you have the bacteria in your CNS, it leaves lesions visible on an MRI. I can understand...
Has anyone heard of this? ScienceDaily (June 20, 2010) — Researchers from the National Institutes of Health have developed a more sensitive test for Lyme disease that may offer earlier detection and...
Hi, On one of the other forums I belong to there was a member there who was seeing an ID doctor in Canada. This ID doctor was very open to the possibility of lyme in Canada. He also attended a...
I think the important thing is that you are comfortable with your doctor and trust the answers she gives you. I think female doctors in general are much less likely to get defensive when asked about...
Hi, I'm not sure where you live or if you spend anytime outdoors, but did they test you for lyme disease? I was recently diagnosed at the same time my a/p came. Not sure which came first the chicken...
Wow, thanks for the replies. At least I know what the possibilities could be. I hope you both feel better soon. I had another attack today and I really wanted to go the ER, but I know they can do...
Hi everyone, I have been lurking here for the last few months and finally thought I would introduce myself. I am a 28 y/o female and mother of two young kids and I'm not sure what is going on with...
Everyone's experience is so different. It really depends on where the lyme and company have decided to take up residence in your body. When I finally figured out I had lyme disease and went to an...
Anxiety....feeling like something bad is about to happen...can't catch my breath neck tightens, I never had anything like this before and it is really disturbing....
Vstrength, I'm in the lightheaded with tons of anxiety boat too. Like I've had a couple glasses of wine. And then sometimes randomly I will feel like I am definatley going to have a heart attack or...
Hi, I am in MD. My LLMD is in Germantown. If you would like to take a look at his blog: lymemd.blogspot.com He's excellent and accepts a lot of insurance plans including medicaid/medicare. Send me an...
Lynn, I know exactly what you mean. I have two very young kids and there were days I felt just like you. I'm on the road to recovery and feel like I am more than half way there. I also had a headache...
Hi, I have this "phantom" blurred vision in my eye. It comes and goes. I am also on Plaquenil, but this was one of my very first symptoms a few months ago before I started plaquenil. I went to the...
Scott, Thanks for this information. While looking up info on this product I had to remember the 5 years of French I took in school. There are a lot of French forums on lyme disease...it's like a...
Maryland. Thanks for the inspiring post. I really wish more people would check in when they start to feel better. There was a post here recently asking if anyone starts to feel better...I think a lot...
Do you mean pressure in the ear? If so, this was one of my first symptoms. I'm not sure what a herx feels like, as I have yet to experience one. My son's ped said that when she worked in the ER...
http://www.fairfaxtimes.com/cms/story.php?id=1021 My SIL is one of the judges, so hopefully if she comes in the top 3 there will be some more recognition. Not to mention a step to better, faster more...
Cre, rofl! That is hysterical....
Rose, I'm not sure if you already know, but Clongen lab is going to be accepting patient samples soon into this disease. They are an amazing lab. Here is a link:...
Kimmiepop, I'm so sorry for everything you are going through. When I first started out, my neurologist at the time insisted that because my Elisa test came back negative, I did not have Lyme. The...
I'm so sorry for your pain. i know you just want to get back to enjoying your kids and grandkids. If you would like to email me (kamrynkade @ gmail. com) I can give you the name of the doctor I see....
How often do they happen? I occasionally get short sharp pains in one of my ovaries. Never happened before lyme symptoms set in December. So, I concluded they must be lyme related. If you press down...
And if they do test they probably use one of the more unreliable labs. Both Quest and Labcorp came back completely negative for me (only + for co-infection). Had to go through Clongen...