Hi, Going to see Dr. R in NYC. Neuro lyme only. Can anyone tell me if doc is good. Been reading good things but 1st hand stories are best. any help is appreciated. thanks...
Hi, Can you please let me know who Dr. C is....son still sick, no better after almost 2 years, maybe time for fresh eyes. thanks...
Hi, Yes, when we found out what was wrong in Dec. 2009, his tests came back all 10 bands positive and RMSF...he basically got worse for the next 6-9 months, during which time he was on mino,...
Hi, my son (20) has only neurological lyme since 12/09...so bad that he doesn't speak except to reply "its good" no matter the question. He sees a very good psych doctor who has prescribed many...
Hi, Thank you all for your posts, I really appreciate it. My sons 1st LLMD is highly respected in the field and so is his current LLMD, both been practicing for over 20 years. Read very good revieiws...
hi all, its been awahile..let me recap: son (now 20) diagnosed in 12/09, postiive for all bands and RMSF. Saw LLMD for 6 months, got worse. Now with 2nd LLMD since 08/10 and still no better. Been on...
Hi bobby41, My son has neurological lyme since 12/09. has gotten progressively worse each month. I'm looking for a new LLMD to take him to, can you please email me and tell me who yours was, PLEASE....
wow, you sure know alot about these machines....thank you. I do believe its helping my son so if the GB4000 is the one to get then that's what I'll buy. I'm happy to hear your doing better, best of...
Hi LymeBean, Sorry its taken me so long to respond....my youngest graduated HS today so we been busy with him lately. Anyway the rife machine just says Bio Solutions on the machine, nothing else. We...
Hi everyone, sorry I haven't written, been alittle crazy here lately. I would first like to thank everyone for responding and trying to help. Well, update: my son now can't be left alone at home and...
Hi all, Well my son has been on 2 grams iv Rocephin for 6 weeks now and maybe...maybe alittle improvement. He is conversing alittle more (still doesn't make sense though) and very confused still but...
Hi Jeminij thank you for posting. He's 19. Your right, I should be patient. He's been on meds since Jan. but only the IV for 1 month. I will try and post more often to update, very sorry...between...
hi, would you be able to tell me you docs name also, i live in nj and was thinking of getting second opinion for my son, he has total neuro lyme. If you want my email just let me know frikandfrak...
Hi everyone, I know, its been awhile. My son seems to be doing worse (well no better), been on IV for 28 days now...no help...he's VERY dazed, confused. Walks around like a zombie. Only seems to have...
yes, had spinal tap, MRI, SPECT scan and complete blood tests, all with off the charts lyme bacteria, even spotted rocky mountain fever. Tested 10 out of 10 on all bands with the first blood test and...
hi, sorry, its been awhile. went back to doc, still won't put son on IV because of mental state, is getting 1 gram Ricophen IV twice week now, is this enough to help? He's still laughing most of the...
thank you Harleyrider. My son seems to only have the mental symptoms, but sometimes I do notice things, like when he was having trouble with his eyes, he says he feels fine otherwise. I will...
Hi, thanks for your response. I think the laughing is due to the paxil but his regular MD still thinks he should take it. We have an appt. with an LLMD on 2/19 -- CANT WAIT. He has gotten more blood...
thanks, is the laughing "normal". he thinks he's fine. Very angry because we won't let him drive and he's been out of work since middle of Dec. All the symptons listed for late stage he has: fogging...
my son (19) as lyme, all bands tested positive. I tried to post previous but think I messed, never did this before. I'll write more if this works and someone answers. thanks...
i've never done this before, tried to write a "post" but think i screwed it up. If anyone can help, please jump in....my son who's 19 has lyme, all bands tested positive. have appt. with LLMD in a...