Hi Alhanna I can definitely relate. Symptoms there one minute and gone the next! Sounds like lyme to me. The elisa test is useless, I had 3 negative elisa tests before testing positive via IGINEX. I...
Hi Britgirl I started the same combo about 6 weeks ago, and had stomach cramps for 2 days, after that it subsided. I had a break from the meds a few weeks ago due to serious herxing, but when I...
Hi Yazzer I have patterns like this too. Mine usually start around 10am and improve by 1pm, but start up again at around 5pm and last most of the night! I always find that pain is far worse in the...
> > Hi all > > I was wondering if anyone else here has had any problems with their eyes. Right from the start of my illness I have had blurred vision, plus a swollen eyelid on and off with a type of...
Trav Interesting, would it be ok if I shared this link with some other lymies?...
Our LLMDs are at risk in the UK too. Dr O in fact stopped seeing new patients for a long while due to an investigation. I am not treated by Dr O, but know for a fact that he is a very good LLMD and...
Hi Folks Thank you soooo much for all your replies! Lymester you made some very good points there. Though I can confirm that I do definitely have Lyme and Bartonella, and possibly Babesia though test...
Hi Trailwalker Do you remember what the reference range was for the VEGF test? I had this test done in November prior to official diagnosis and abx, my results was 540, however I am told that the...
Hi mrseve I am in the UK and have sent you an email with the details of LLMD's here in the uk, please let me know if you have received it. Many thanks...
Hi worrypot thanks for the suggestion, i am actually already seeing an LLMD in the UK (sorry I didnt make that clear in my post)!! I spent the first few months on Doxy, then Flagyl for 6 weeks and...
Hi everyone I am hoping to get some advice although the question I am about to ask is probably impossible to answer as treatment is so different for everyone. I have been on treatment now for 6...
excellent idea, I would really appreciate something like this. Thanks Kirsty...
Hi Everyone Sorry to jump in, but I have recently been prescribed Flagyl and have just finished a 6 week course, I have been on treatment for 5 months, first 3 months I was on doxy, then flagyl, and...
Have you ever been tested for Lyme Disease?...
Hi Jeff Sorry to hear you are going through this, do you know which lab was used for your Lyme test? Unfortunately testing for Lyme is notoriously unreliable, the best lab is IGINEX, but even they...
If you still have these symptoms you probably still have Lyme, they will certainly not get better without anymore treatment. How long have you been on antibiotics and have you been tested for co...
Hi everyone Thank you so much for all your replies! Yes Flagyl is the only antibiotic, I have been taking it for 3 weeks so far, I am only 4 months into treatment, I was taking doxy for 3 months...
Hi all I have recently changed all my medication following a recent visit to my LLMD, I have been on this protocol for 3 weeks now. I am a bit concerned because I feel 100 times worse and am really...
Hi achievinggrace Thank you for the reassurance! I have only been prescribed 6 weeks worth of flagyl, so perhaps my LLMD is planning something else for me once the 6 weeks is up! I have been on it...
Hi achievinggrace Thank you so much for the reply! I have been so worried about this drug. I have had Lyme for quite a few years which is now chronic and I have a lot of neurological symptoms. I have...
Dear All I have recently been prescribed Flagyl 1200mg per day divided into 3 doses. I have been reading up a lot about this drug, but am slightly confused because I have been taking it on its own,...
Roseinjanuary Are you not being treated for lyme or have been in the past?...
Have you considered Lyme Disease? If you go to the Lyme board, at the top there is a section on symptoms, I think you will be very surprised how many of your symptoms are listed. I was diagnosed with...
Dear Kirsty I am from the Uk too, and I was diagnosed with Lyme Disease and Bartonella which is a co-infection of Lyme in November 2010 after a year of a mystery illness. My first symptoms were very...
I started to notice recently that my hair seemed to be much finer and thinner lately, and today I realized that I have small bald patches all over my scalp!!! Its actually falling out! Has anyone...
Hi thank you for you helpful response, and I am pleased to hear that your horse made a full recovery from the cracking joints! Since my original post I have actually reached a diagnosis, and it is...
Yes me too with the one sided issues, mainly the left for me. Does anyone feel like there body is in a vice? Ive had this type of feeling on my left side for 2 whole weeks now, but always seems to be...
some of these symptoms could certainly be MS, but there are a lot of other things that could also cause these symptoms. Have you seen an MS specialist, or had an mRI of the brain or spine? I have had...
Hi Catt111 Your post really caught my attention, My first really noticeable symptoms were identical to yours, this was back in April this year. Pain down the back, shoulder and the scapula pain, I...
Hi qwerty321 I have to say that I have all of your symptoms, and more. I have been through every test in the book imaginable, and I am now being investigated for Lyme Disease. I have had 2 Lyme tests...
Yep, have all those things, the stiff neck and shoulders, blocked sinuses, and the headache at the base of the skull is awful, I also have the vice thing going on around the sides of my head. Every...
Hi Susie I am not sure how much the treatment costs in the UK, as I am not on any treatment just yet, however if you do look at Eurolyme, There are lots of people in the UK who are on private...
Hi ellbell Will post on here tomorrow and let you know how I get on at Break Spear, what did you think of Dr Munro, and how is your treatment going? I have heard bad reports regarding Southampton,...
Hi Susie The Break Spear Medical Group in Hemel Hemstead is highly recommended, I am seeing Dr Monro, but there used to be a Dr there called Dr Daymond, who has now left the practice and gone to the...
Hi I am from the UK, and I am seeing an LLMD in the UK on Friday. The one I am seeing is in Hemel Hemsted, Hertfordshire, there is also one in Cardiff. and in Newcastle. These are the only one's that...
Yes I do have an appointment with an LLMD this Friday, I am so nervous because although of course I do not want Lyme, If it turns out not to be I dont know what the hell I am going to do!...
Hi All Thank you for your replies. Im interested to know more about vibrations and buzzing, I have heard a few people mention this, however although I have been twitching all over, I don't recall...
For the last two days I have been getting new symptoms which are starting to really worry me, I am due to go and see an LLMD next week, this will be my first visit. But I was wondering if these...
Can anyone tell me if joints cracking, is a symptom experienced with MS? All my joints crack and is getting a lot worse lately, i have never heard of this being an MS symptom, any input would be much...
Hi All Does anyone have problems with cracking joints? I used to just have it in my neck and shoulders, but it has now become a major problem and has spread everywhere, I cannot move without...
Does anyones eyes dilate differently? Sometimes my left pupil is smaller than my right and other times its the right pupil which is smaller, and then at other times they just look normal and the...
Hi gorbybelle Thank you for the advice, I have heard many talk about detoxing which to me does make sense, I think diet is also a factor, I have heard others mention about avoiding certain foods such...
Southerner I'm not as experienced as others on this board re Lyme, however I do know that if you have had these symptoms for 3 months and the rash, that you body will not fight off this disease. You...
Thanks for the replies everyone. I am not on any treatment yet, I am seeing an LLMD in two weeks. I was wondering if anyone had any good periods before they started treatment as well as afterwards. I...
Thanks Mamoo It's such a relief to discuss these things with others who understand what I'm going through, before I started communicating on these boards, I was completely lost in all of this....
Hi everyone I was just wondering if anyone else ever has a really good day, with not to many symptoms? The last two days I have felt pretty good, not as good as I used to feel of course (prior to...
Hi lymabean I have not yet been officially diagnosed with Lyme, however I am due to see an LLMD in 2 weeks time. I can completely relate to what you are saying, I have been through some very dark...
Thats exactly what I have experienced. It feels really sore, and like a heavy pulling sensation at the back of my head, feels like someone is either pulling my hair or that I have some instrument...
Hi Madrivergirl the Herx reaction is a confusing one for sure, though I have not yet had the pleasure of experiencing one, it's something which I find quite confusing. Obviously it's quite a...
Trav Off topic slightly, but I love that saying....... Absence of proof is not proof of absence. I said that to an obnoxious neurologist recently, he was not to impressed at all! ha ha :)...