Hi, Everyone... Last May (2014) I started having pain in my left buttock when sitting on hard surfaces or just sitting for too long (which I tend to do since I also have bone-on-bone osteoarthritis...
Wow, I've got the shakes SO bad and feel flu-like, achy, bad restless legs... I has just about decided to stop the Cymbalta today but then I read these posts again and wonder if I should keep it up...
Thanks so much for the welcome and suggestions... The first thing I've done is switch from taking it at night to morning and that seems to be a little better... Hopefully as time goes by, I'll keep...
Hi, everyone... I've just started on Cymbalta 30 mg. for leg pain, restless legs, depression, fibromyalgia, and newly-diagnosed bone on bone osteoarthritis in both knees :( I'm only on my third dose...
Sherry, what kind of Chi machine did you get for RLS? I've been looking at "leg massagers" thinking that would help, but trying to find a good one!...
Thanks so much for the encouragement, Jessica...! I've had 3 infusions so far (1 gram each) and feel like it's kicking my b*tt! - so hopefully this means it's "doing something" :) I'm getting another...
Wiseguy, I'd love to hear if you went with the IV Rocephin and how you're doing! I'm going to be starting on it tomorrow morning and SO hope this will help turn me around like it has for others......
Hey, Everyone... I'm going to be starting IV Rocephin tomorrow to see if that helps me improve any further... I've been sick with Lyme since 1989 but just got diagnosed last year. Started IV Invanz...
Hi, Lymester - I saw your post about using injectable glutathione... Just wondering if you can let me know where to get it from?! My LLMD prescribed it yesterday and said compounding pharmacies can...
My LLMD just prescribed this for me yesterday and I'd thought I could get it filled at my local compounding pharmacy, but he said he is not able to get it and something about only a specialty lab in...
I just wanted to say I LOVE this idea - I find myself getting so discouraged when all I read are stories of how awful everyone feels...! Although it does help to read those, too, to know I'm not...
Springsjean, Thanks for the tips! I am definitely going to work on that mindset of rest being a GOOD thing :) Yes, he feels I have Bartonella and Babesia in addition to the Lyme. I tested negative...
Yes, Susie - I'm in Tallahassee. We'll be traveling back to Tampa this Thursday! How long have you been getting treated for Lyme? Are you feeling any better at all yet?...
Yes, he is....
Thanks so much for the encouragement... I really appreciate it! I was keeping a log for the first couple of months but stopped because every day I was checking the same things and it seemed nothing...
My LLMD ran my CD57 through Quest a few months ago and said that they now DO the test properly - hope this is the case!!...
I know - that's a loaded question :( I've just been dealing with feeling awful for 21.5 years now and only 7 months ago found out it was Lyme Disease - previously diagnosed with CFS, FM, lupus,...
Why won't the staff let you keep seeing the doctor if he's helping you?!! That's where I'd start... :) But anyway - I wasn't on IV Rocephin but IV Invanz and after I got off that I was on Factive +...
I have SEVERE "tension headaches" in that exact spot and have for several years. Those 2 spots at the base of my skull will swell up like GOLF balls. Then my whole upper shoulder area will seize up...
Oh no! I just now saw this... :( Does anyone know if it will be rebroadcast? Or anyone who watched it - how was it?...
I'm trying to find a good LLMD as well. Either N. FL or Central FL... 1bitten2xshy, I tried the PM but it doesn't seem to be working! Can you PM me with the info?...