Thanks for your response it is very helpful- I will look into the GI repair supplement and I'd love to use this thread to keep comparing notes. My main life-altering symptom--severe fatigue--has...
Hi CGK, I know it has been a couple months since this thread was live, but I wanted to see if you had any updates on your progress working to get your LPS levels down and if that has had any impact...
For those of you that follow the Lyme testing and CDC issues and public awareness challenges associated with Lyme, please check out and share this fantastic reporting by Emily Lampa in the Delmarva...
The idea with the mat is to sleep on it and get extended benefits. Also obviously helpful on days like today where it is 12 degrees (in VA)....
Hi all, I just listened to a "Lyme Ninja" podcast (a fantastic podcast btw) on earthing, and am wondering if anyone has had experience with it? Supposedly it helps a lot with sleep and inflammation-...
Sounds like neuropathy. I had it bad for a while and still have it mildly. For me it seemed to go away after I few weeks of B12 lozenges. Did you take Cipro during treatment? I've heard it causes...
I go to Dr. J and am seen by one of his NPs (which are about half the price of Dr J). I began my treatment in April 2015 and while I'm far from cured, I'm much better. Long story short, his team...
Hi all. Question about gallstones and gallbladder removal. I've had terrible GI issues since coming down with Lyme over a year ago. I've been treating with abx since April, but the last few weeks...
Thanks all for the responses. Still hoping to hear from an "amalgam vet". I've read that mercury detox can be brutal but can't find good tips from my research. Taking tons of chlorella seems like the...
Bumping this old thread on mercury amalgams and detox. My LLMD recommended I get my fillings removed a while back, but I hadn't really made it a priority until I stumbled upon a podcast on Revolution...
1. Leg weakness. Have to stay off my feet most of the day or I'll pay for it. 2. Loose stools and digestive issues. I think 1 and 2 are related and have something to do with poor nutrient absorption....
Onetime--I'm taking minocin, omnicef, mepron (generic is atavaquone), and artemisinin. And at the end of week two I take flagyl. Heavy-duty meds and doses. So far I'm handling the meds OK--I have bad...
I take 2 teaspoons twice a day so that does sound like an error. BTW, I was told to take mine with a fatty snack to help increase absorption so that's my excuse to eat bacon for breakfast every day!...
If you have not seen, I want to commend everyone to this fantastic 30 minute news report on Lyme disease by a local reporter (Emily Lampa) in Delaware. Extremely well done and makes the case for...
Hi all, Quick question. I'm pulsing heavy duty abx, two weeks on (every other day) and one week off. At my last appointment, my LLMD asked if I felt better during the off weeks l. I haven't - it's...
I've been battling high ammonia for almost a year now. Was winning the fight gradually --started at 136 (high end of normal range on Quest scale is 47) last fall, and slowly got it down into the 50s...
IHL-- could you tell me a little more about the GI repair powder? What is in it, where to get it, etc.?...
I feel your pain Lymenstuff. My blood is always thick--almost looks like the consistency of motor oil coming out of my arm. For what its worth, when they couldn't analyze my results in May, my LLMD...
Don't want to be a negative nancy but this decision was from January 2014. As positive as it is, It doesn't seem to have had any ripple effect in terms of coverage. Insurers are just as obstinate as...
Hi all, I'm a chronic Lyme sufferer usually lurking on the Lyme board, but I'm hoping someone in the IBD world may be able to help me. I have had loose stools for about ten months straight. Only...
Thanks jrpsf. I sure hope it's a sign that this is working. I took some photos today so will monitor if more of them show up. Fronton - they are pretty much all over my arms from wrist to shoulder....
Hi all, I began babesia treatment Thursday, taking mepron and arteminisin. It hasn't been much fun- fatigue and nausea are probably at near record highs for me. I noticed yesterday a bunch of red...
Strongly suggest she send the tick to Igenex or Clonmex lab. Costs about $75 to test for Lyme but the tick test is very accurate and it could bring piece of mind. I'm told that Clonmex is a little...
Sorry for the multiple new posts today, but my LLMD is also starting me on VSL#3 today to try and help with my MAJOR gut issues (I'm lucky right now to have 1-2 non-loose stools a month). I've been...
Yes you got it- Dr. J. How are you coming along? I don't know how to DM but would love to compare notes....
Hi everyone, LLMD is putting me on mepron and artemisinin beginning next week (on top of omnicef, minocin and flagyl as base protocol). They said that this will be the most difficult phase of my...
I had palps bad at the beginning of treatment but they have gotten much better over the course of the last 3 months. In late April I went to the cardiologist for palps and swelling and tenderness in...
I have been doing them once a week for a few months and have done well. It was unsettling and even scary the first two times but by the third time it is old hat. They really seem to help with brain...
I'm in your boat as well. Started treatment April 1st after 4-5 months of immune system and diet support. Haven't really noticed much of a difference--probably have a little better energy but also...
Just stumbled on this on Twitter, but a TBD scientific conference in Europe that is going on today has some great info being tweeted under the #NorVect2015 hashtag. I think this link will get you...
Thanks all. Tickbite666- I'm on s boulardi. And taking about 100 billion of probiotics per day. But can't shake the GI problems. Think next step is to find a functional medicine gut specialist....
One of my most constant and troubling symptoms is loose stool. Since last July, 85-90% of my stools are loose (not diarrhea, just loose). Probiotics don't seem to help much if at all. My LLMD (who I...
Definitely an issue with me as well. I felt great this morning (did a coffee enema which usually perks me up) but feel like absolute crap right now. Vibrations and fatigue at the moment. But it was...
Definitely sounds like Lyme. Will send you a PM on docs. I was bit in my garden in Centreville in 2013 (didn't know about the bite at the time but got an irregular rash in May of 2013), and if I had...
Saw this on Facebook. https://twitter.com/CDCgov/status/600760363483664384 According to the CDC, Lyme is really hard to catch and really easy to treat, and oh by the way the test is really accurate....
I am with Dr. J (are we allowed to say this?). I just started treatment in April so have not noticed any improvement, but that is probably to be expected. Overall I am pleased with his office. They...
Update: I called Dr. Schor's office to check into getting testing (even though I've already been diagnosed) and the test costs $500. Pretty steep but if as good as advertised it could save many in...
I just received this email from my local elected official and thought I would share. Don't know anything about the test but I have heard that George Mason's Lyme research team is top notch....
I'm bumping this post from several years ago (restarted in February 2015) as I have now had two blood tests come back with no results because the person at Quest says my blood "had too much fat in...
Hi all, I found quite a bit on this searching through the forum, but thought I'd try to start a straight poll on the appropriate probiotic dosage level during abx. My LLMD just told me to take a...
Thanks all. Revive- I am taking methyl B12 and methylfolate. I agree this is a really aggressive treatment approach out of the gate, but my LLMD is highly regarded, and I have a great sense of trust...
Thanks DejaVu. I should have noted that I have NO problems going #2, and in fact loose stools and diarrhea have been one of my most common symptoms. I see now from Google that MgCitrate really, ahem,...
I have one other question. I saw that ArkansasLyme posted that they switched to MgCitrate flakes instead of epsom salt after getting 23andMe results that indicated difficulty with sulfur. I think I...
Starting Omnicef, Minocin, and Septra today along with Flagyl on week two. Am ready to roll but getting anxious. Any tips from the pros? I am already trying to detox as much as I can - lemon water,...
My left arm and hand tingle as well as my left leg occasionally. For what it's worth, I was told that it could be due to low B12 eventually leading to demyelineation (spelled wrong). A couple months...
Terribly sorry to hear of your situation. All I can say is know you are not alone, and try to be patient--not everyone gets better but most people do over time. I was just diagnosed before Christmas...
Thanks much. I will check out Yogi brand ginger flavor!...
I think we're not supposed to name names so this might get removed but myLLMD who I think very highly of and is kind of famous among Lymies has a pediatric NP. It's no secret so I will share the...
Hi all, Anyone have brand or ingredient recs when it comes to detox teas? I have been drinking tazo citrus rooibus twice a day and I really like it but I want to mix it up and try some other kinds as...
Thanks everyone. I begged my LLMD for additional "weapons" against ammonia and they said I could take NAC--n-acetyl cystiene (sp) too, so I just ordered that. Commenters on a Facebook board said that...