It is interesting that you mention the vegas nerve. I mentioned to my lyme doctor that I think my vegas nerve is possibly damaged or having problems due to inflammation. My migraines happen with pain...
I get abdominal pain usually on my right side below my liver, probably about level with my pancreas. The pain in my abdomen comes around when I have pain in other places the same time as my abdominal...
I am glad you are feeling better and thanks for the info. I already take some of these and will look up the rest. There has been many times that I felt like I was improving and then it all came back....
Razzle, I am so sorry to hear what you and your husband are going through. Does your endo go by the new TSH levels? .5-3.0 My endo is giving my husband and my self armour thyroid and it has helped...
Horsehelper, It is a waste of time to see any doctor that does not specialize in lyme disease. The testing facilities are not good enough. Antibiotics can interfere with testing but it is more likely...
springsjean, Hi I suffer with pain of this kind. I know some of the pain is caused when I overwork my body and I always pay for it the next day. Lyme makes our muscles very tight and fatigue easily....
Razzle, The reason I listed the ingredients was for a person to research it and make their own decision. I didn't word what I said very well, sorry. Everyone Please, research adrenal supplements...
oldschool, My doctor does PCR Western Blot of IgG and IgM. This is more accurate testing and gives percentages of what markers are showing up. The testing is only as good as the lab. I know my body...
I forgot to mention. I wouldn't run out and get tested through IGENEX unless you feel you can spend the money. Many lyme literate doctors test through IGENEX and it may be cheaper to get testing done...
Hailey, I am sorry you are going through so much. I 45 and have many of the same problems you have. I have been searching for many years and seeing many different doctor for the answers. I was...
Everyone here who suffers from terrible mood swings should be checked for hypothyroidism. My endocrinologist is treating my husband and myself for hypothyroidism even though we have normal blood...
Doxy could also cause low blood sugar. Most antibiotics can. This is what our lyme doctor told us. My husband and I found out prior to taking doxy that we had hypoglycemia and our endo suspected low...
I had estrogen, testosterone, progesterone, dhea and cortisol 4 times in a day done through ZRT saliva testing. My son suffered the first 4 months of his life screaming in pain. The doctors told me...
Oldschool, my endo checks free t3 and free t4 along with TSH. She told me that my symptoms point to hypothyroid especially because I had inflammation of the thyroid. She wanted to get my TSH as low...
Denail, I have tried agave nectar and my body still knows its sugar. Before I started on I.V. treatment my bodies reaction to anything sugar caused me terrible pain. No doctor has been able to tell...
Also there isn't anything I have told you to do that would be bad for you. I don't know about any of your conditions or treatments but, I can tell you that my lyme doctor doesn't address adrenal,...
Oldschool, you have asked what and who has been my nutritional inspiration. Well, I really don't know how to answer that question. There wasn't any one person or one article that I read. If you look...
Our diet consists of high omega3 fats. We use extra virgin olive oil for all of our cooking and at times small amounts of butter. We also take high concentrated fish oil supplements. This type of...
Razzle, my doctor said the same thing. I believe I have been herxing continuously for the past week or so. I do take the detox baths and it helps but the symptoms come back the next day. I guess it...
You all have to realize it is not just feeding bacteria or yeast that is the problem. Simple sugar is also bad for people who are fighting with inflammation. Anyone here doing that? When you ingest...
I have been taking doxycycline for almost 5 months and was put on I.V. rocephin about 3 weeks ago. I have been suffering with burning pain in my hands and feet. I had this before but not this bad. It...
Have you tested positive or are you having a hard time finding a doctor to test you?...
You may also want to check into CCVSI. This is a condition where the mane arteries in the neck narrow. This can cause toxins to build up in the head causing fatigue, brain fog, dizziness and more....
HorseHelper - I guess I am fortunate. My best friend who is my husband suffers from lyme also. We understand what the other is going through. We had in the past before we new it was lyme, many rough...
You all need to destress your lives as best as possible. I have felt a lot better since I have said goodbye to friends and family that don't understand. It is better to get connected up with someone...
I am a very sensitive person as well as my son. My husband has a good heart but things don't seem to bother him as much as us. We are all suffering with lyme disease and as a women I can tell you...
Hi Watermist and welcome, I have been taking rocephin for about 2 weeks now. I also have a terrible taste in my mouth all the time that started with rocephin treatment. Nothing tastes very good and...
I started my son on the doxy yesterday and he took one in the morning and one at night. He said he couldn't fall asleep until 3 in the morning. Could the doxy do this to him this quickly? It didn't...
079, I am feeling much better than I have in the past, thank you for asking. My husband, myself and possibly my son have chronic lyme. We started treatment back in October 2010 with doxycyline. This...
To anyone, which antibiotics are the best to use to get a positive result? Should I just keep him on doxy for many, many months?...
Thank you all for your help. I believe I may need to see another lyme doctor. One who follows Burriscano's treatment guidelines. Our lyme doctor doesn't mind treating my son for lyme he just isn't...
I was interested in using a rife machine for additional help in healing from lyme. Does anyone have any experience with this? Does it really work?...
Does anyone know if it is harder to diagnose if you were born with lyme disease. My son is 19 and I am wondering if he has had lyme ever since he was born. He came out screaming and didn't stop for...
We believe that he was very sensitive to the bandage. They put him in a wrap instead of a bandage so it wouldn't get any worse but it did anyway. They put him on cipro for 10 days to prevent the...
My husband has a fungal infection and no fever as of yet. It is only on the surface of the skin right now. He doesn't have a fever and is taking cipro for it. It started the second day he had the...
Worrypot, you need to be careful. I had those bad headaches for weeks and it never went away. I had to stop the higher dose. It is not necessarily toxins causing the headaches but a side effect of to...
I also agree that there are other ways to deal with lyme. Detoxing, special diet and supplements will help with the inflammation in the body. My husband was told he had IBS when he suffered with...
If the doctor is a good doctor the lyme testing is used as a tool not necessarily as a diagnosis. If it doesn't come back positive any good lyme md will know that this means nothing. My lyme md went...
Has anyone experiences a fungal infection when doing I.V rocephin. My husband developed a rash the day after having the PICC line put in. They believe he had a reaction to the glue on the dressing...
You also shouldn't take doxy with any magnesium. I would take two with breakfast and two with dinner. This way your supplements or milk products that contain calcium and magnesium can be taken at...
It is said that alpha lipoic acid needs to be taken in large doses. Like 600mg and up. Make sure you look at the side effects if you decide to try it. My son has insulin resistance, which is probably...
Hi bucci, Look up alpha lipoic acid for hep C and other auto immune diseases. You never know this could be very helpful, especially for the pain....
bucci, An elevated sed rate is a sign of inflammation in the body. I used to have this but got it under control by taking supplements. Now left with an elevated rheumatoid factor that elevates even...
CajunGrl, I read you have rheumatoid arthritis as well as lyme. Dose this mean you have an elevated rheumatoid factor? I have an elevated rheumatoid factor and I am concerned that my treatment will...
JeannieM, My West Chester doc takes insurance....
Traveler, should I delete my post?...
If you all go to lymenet.org, sign in then go to flash discussions you can ask where to find a doc in PA. You can also e-mail me and I will help you. I am from PA....
JeanieM, I sent you an e-mail about the docs in PA. Did you get it? Also sorry about posting the docs name. I will be sure to do it differently next time....
To springsjean, I get the same abdominal pain. I have had it for the past 3 years at least. I finally got diagnosed with lyme disease after suffering with terrible so called fibro pain and rheumatoid...
I believe my constipation happens because of herxing and I believe inflammation is caused by lyme and made worse by herxing. My husband is going through this right now. The scary thing is that I herx...