Been on zithro/mepron combo for 3 months - tolerating well! Never tested positive for co-infections but my doctor felt we should treat anyway and add the mepron. Been on abx 8 months without...
I did sporanox and lamisil - nothing knocked mine out! When I began abx treatment for lume, i put tea tree oil and lavender on the nail daily. I dont know if it was the abx or the tea tree...
Thanks so much for your replies! It really helps to hear these positive stories! Even though I feel like I'm getting a little worse everyday, I know that I am also getting one day closer to feeling...
Gi guys (and gals) Has anyone here gone from wheelchair to walking again? If so, how long did it take? I was misdiagnosed 6 yrs ago with MS and discovered I was Lyme injanuary although I've been on...
I had a single band show on each of the last 2 W-B's i've had. (First Igm 23, second Igg 23) What kind of experience have people here had with having more bands show up after taking antibiotics? How...
This is something I am deeply involved with and following very closely. (I was bitten by a tick 15-20 yrs ago, had rash, recent W-B's have returned IGG23 and IGM23, CD-57 of 16) It is well known that...
Jr991 - email sent! I took doxy 200mg/day for 3 weeks - no effect started doxy 400 mg/day started 9/11 for a month - no reaction yet will retest W-B and CD-57 after 2 week @ 400 mg/day correction -...
Tracy, I'm really glad you found your celiac issue and are coping successfully! I had a question - were you actually diagnosed with lyme disease? I may have missed this... BTW this thread has been...
I saw my LLMD today. In additon to the CD-57 low score of 16 my W-B came back with only the Igm 23 again! She said it wasn't enough for a formal dx so we've increased the doxy from 200 mg to 400 mg...
thanks springsjean for your input! 1st test through quest 2nd tests thru labcorp i will insist next w-b done thru igenix!!! i was dx'ed for ms in 2005 by clinical symptoms and a spinal tap. anyone...
I got my results over the phone and can't wait until my llmd doc appt on friday! someone please offer your opinion on whether i have lyme or not! 2 month ago i had a w-b come back + for igm 23 tests...
Prepare to be poked again! LLMD may want to run labs for coinfections and CD-57. Band 23 is specific for Bb. Not sure about 30 but looks fishy enough to me! Good :uck!...
Plaquenil is an anti-inflammatory medication and as stated above may cause false negatives. I don't think a W-B would be affected. Not sure! Please find a LLMD! Good Luck!...
"The previous testing method utilized the ELISA (Lyme titer) which if positive was then confirmed with the Western Blot test. This was woefully inaccurate for a number of reasons. Lyme antibodies...
Most people notice L'Hermitte's simply by bending their neck down forward. You definately know if you have it even without someone banging on your neck!...
Hi Bri, From Wikipedia: "Transverse myelitis (in Latin nomenclature: myelitis transversa) is a neurological disorder caused by an inflammatory process of the spinal cord, and can cause axonal...
Just wondering what an MRI of a spinal Lyme infection might look like? My last MRI showed widespread "micro-lesions" best described as transverse myelitis. Might this be an example of a spinal Lyme...
Congrats! What are you taking that's making you herx?...
I got a spinal tap for my MS dx. Not pleasant!!! If you do get one, make sure you lay down immediately afterwards for at least 2 hours! And I mean in the hospital where you get the tap done!!! I left...
My llmd started me on th e doxy. I go back to her in 10 days. We are wainting now for more test resu;ts and I was just wondering why she didn't have me go straight to 400 mg/day?...
I think I already know the answer but is there a reason why many of us with unconfirmed cases were prescribed 200 mg/day doxy? Is the goal to "stir things up" so that more bands will show up on...
What test is this from? Looks + to me! Get a Western Blot....
I also started my doxy (200 mg/day) about 3 days ago. I had Igm band 23 show on a Western Blot which my llmd said was not enough by itself for a dx. We are waiting for blood test results...
Thanks for the well wishes! My current symptoms are typical for progressed MS. I was dx'ed 6 yrs ago with MS. Cold hands and feet Leg weakness Fatigue Optic Neuritis Cog Fog Heat Intolerance Bladder...
After waiting 3 weeks, I finally had my LLMD appointment yesterday. I had only my Igm band 23 come back positive on a prior Western Blot so she has ordered another as well as the 3 co-infection blood...
Threeputt, I am in the same boat as your wife :( What symptoms does she have at this stage? I was dx'ed MS in 2005 but I think I may have picked up Lyme about 15 years ago. My IGm band-23 was...
All the classsic MS symptoms: Fatigue Weakness Cog Fog Bladder issues Heat intolerance Optic Neuritis Cold hands and feet...
springsjean said... So do you think you have MS OR lyme or lyme induced MS or possibly not MS at all but lyme? As I am sure you know, many people with lesions on their brain from lyme are diagnosed...
I was dx'd with MS in 2005. I had numbness in feet and lesions in spine and brain. I am 40 now and my disability has progressed to the point where I am wheelchair bound. What led me to look for Lyme?...
Hi, I'm new here. I am an MS dx who has an LLMD appt in 2 weeks. (Band 23 came back present on Western-Blot) Anyway, it came up on another forum I am part of about CCSVI and increasing bloodflow to...