Hi I'm looking for a good LLMD in central Florida I have been dealing with Lyme for a little over 3 yrs and need someone who believe in chronic Lyme. Thanks for your help...
So I went to my neurologist yesterday and he has dismissed me, saying we need yet another opinion that would make 7 neuro, My ID hasn't returned any of my calls so she has dismissed me that will make...
I've had 3 MRIs and have 4 lesions. I haven't heard of IVIG what is it? Hope you get well soon...
Has anyone tried this for their vertigo? I was reading about it and wondering if anyone has any luck with it. Thanks for the advice...
I understand how your body adjust, I seem to be making it all the time. I call it "my new norm" I have been ill now for 3 yrs. The problem is that the doctors can not get a firm diagnosis. I tested...
Not what I wanted to hear, currently I can nearly move.I'm new to this so I don't know what to expect. I just had IV steroids and I am worse. Is this a normal reaction? The pain in my body is aweful....
I am going to be starting Tecfidera tomorrow and was wondering if anyone has tired it and how long before your symptoms start to clear? Thanks...
Hi, I was diagnosed with Lyme disease back in 2011, did oral abx and IV abx, they are now telling me that all of my neurological symptoms are MS. My question to you is how did you know when your Lyme...
Do you feel worse after eating at night? I just finished my 3 days of IV steroids and I'm feeling like heck. It took about 30% of the leg cramps away but now my ankles are swollen and hurting and...
They have tested for everything, just recently took 26 tubes of blood, negative on everything. LLMD says it's MS and neurologist says it's Lyme....
Been tested for co-infections and treated, go back to my dr tomorrow she might do another round of IV abx. Just so tired of feeling this way. Heard about that center and talked to someone who went,...
Date Joined Aug 2011 Total Posts : 18 Posted Today 9:10 AM (GMT -5) Hi everyone, I'm new here and this is my story. Three yrs ago I started having heart fluttering, joint aches and dizziness,...
Thank you for your reply where you ever diagnosed with Lyme disease...
Hi everyone, I'm new here and this is my story. Three yrs ago I started having heart fluttering, joint aches and dizziness, after 6 months they finally diagnosed me with Lyme. I started treatment of...
I am so confused right now. From everything I have read, I should be going to a LLMD, my doctor wants me to go to an infectious disease and an orthopedic doc to see if there is any bone...
sent you one back...
It was done at my GP office also my Vit D 25-OH D2 was low, the Rheumatoid factor was low a 5, to start I have Thalesemma B Minor, which is a fancy name for anemia. There are other levels that are...
Everyones symptoms are different, if you go on the main page and go to the "New to Lmye start here" it will list all the symtoms there. I took my doctors over 6 months going there every week to...
I to have the intolerable pain in my neck and pressure on the back of my head, I was thinking of going and getting a spinal tap to see if there is lyme bacteria present, but from what I have been...
I just went to my doctors to pick up the blood test results from when I was diagnois, If someone could help me understand them I would appreciate it On B. Burgdorferi AB(IGG) Negative but on B...
[email protected] Where do you live?...
Hi I have an appointment with a neurologist next week, is this the kind of doctor I need? I live just outside of Daytona Beach area and could really use your help to find a good doctor who knows...
Hi, I too have had terrible headaches and a stiff neck that is making me want ot go to the ER. The pressure inthe back of my head is aweful. I thought maybe it was part of the herxing. I am a newby...
Hi everyone, I'm going to an acupuncturist tomorrow and would like to get some alternative supplements. Can anyone recommend some for me, my worst symptoms are the joint pain, dizziness, headaches,...
I would like to thank all of you for your support yesterday. You have no idea how much you helped me. I was ready to sit and have a "pity party" for myself and decided to go into your chat room. It...
Also don't know if this is related but my breast get really swollen now and hurt terribly. Is that related to the lymph nodes swelling?...
So I've been reading about lyme since diagnoised and today for hours on this website, to better understand and sum it up I will never be rid of this disease? I have no idea how long I have had lyme,...
Thank you so much for your reply. I have been reading the "New to Lyme" after I posted and it was very helpful. I just made an appointment this morning with a doc who is suppose to be a LLMD,...
Hi everyone, I'm new to this so here goes, I was diagnoised with Lyme 3 weeks ago had the sysmtoms for 5 months. It took the doctors what seemed like forever to figuire it out. I have now been on...