After almost 2 years in remission from Lyme, I believe I'm having another flare up. My headaches are back, my joint pain is back, I've gained a stupid amount of weight, and I'm just generally a...
Hi :) Well, this is day 7 of my herbal tincture adventure. I'm up to 20 drops per day (10 drops 2x day in water) and I'm feeling loopy and fatigued, which I guess means that it is working? It's not...
That's great to hear Carrie! Well, this is day 2 of taking it for me. I took 4 drops in my water this morning (le gag) and I am feeling ok, a little fatigued perhaps but guess what? NO GI SYMPTOMS...
Hi! I'm back. How have you all been doing? :-) I have had a ton of struggles with my treatments for Lyme over the past few months (ugh miserable), BUT I had a REALLY good session with my LLMD today....
Interesting. I am on a detox diet as of Wednesday, so I hope that helps me out. This is no fun at all!...
LOL AG. Yup, check and check!...
I'm in the northeast bucci. So we get cold and dry weather here in the winter. I am breaking out the humidifier today to see if it helps. I'm wondering if my sinuses are playing me up. I did the...
I'm frustrated you guys. I've had a persistent headache,dull, aching, throbbing for over 2 weeks now. I got a new medication from the NP a couple of days ago-Diflonac (sp?) and it's still there....
I have Trav. I'm still in the healing stages of my Celiac diagnosis so it's been a challenge finding foods that agree with both my system the drug and promote some good healing. It's been an ongoing...
AG, yes I confuse even myself sometimes hehe My H drove the entire trip for me and was in general a wonderful, wonderful man. I was tired before I left and pushed hard and well I am even more tired...
How were your holidays? Mine were silly busy including a 5 day road trip across six states for a NYE wedding. Yikes! Anyway, getting back on topic lol I got a new drug to try last month from the...
This is fascinating and a must watch. http://www.glutenfreesociety.org/videotutorials/what-is-gluten-sensitivity-an-easy-explanation-to-avoid-all-the-confusion/...
You really suck today. Migraines, feeling like I ran 13 miles and a short temper are not my idea of a good time. Let's talk to our friend Doxy so he can give you a kick up the you know what. 'kay?...
Yes, it very well could be. I would ask for an endoscopy to see what is going on. This is certainly not normal and can be one of the tell tale signs of Celiac....
Please talk to your college about your special needs diet. They are supposed to make accommodations for students who have severe allergies. They wouldn't serve peanuts to a student with an allergy,...
First some kitchen advice, throw out any wooden utensils and cutting boards, they are useless to you and harbor gluten even after they are washed. It's best to section off a corner of your pantry for...
There are a ton of gluten free beers out there. Greens is really great craft style beer, there is also Bard's, Redbridge and I just discovered St.Peter's in another store. Lots of choices available...
I hope you don't mind if I let out some of my anguish here. I am having super hard time lately with all my newly discovered health issues. I have always been super healthy, no colds, major surgeries...
Well, it is a slight savings, that price is for 3 years and includes the bracelet itself....
I think so too. now I just have to get over the fact it's going to cost me $110 to get everything I need :shocked: LOL ah such is the price of health......
I have two new allergies and 3 medications that I now take. One is penicillin and the other is gluten. I think it would probably be to my benefit to get one so I don't accidentally get poisoned, ya...
I am going to be getting one in the next few weeks and wondered how many of you use them. I am going with Medic Alert because of how their system is set up. The ID contains a number that corresponds...
I get being pissed off, I really do. I have hardly ever been ill in my life, had 2 surgeries when I was a kid to correct my eyes and that's it. Finding out I had Lyme was a real shock to me. And then...
Here's a funny thing. I recently cannot stand the taste of coffee. I mean I've been drinking it every day and regularly for the past 3 years. All of a sudden it's disgusting to me. So now I am...
I'm planning on going GF on my own. My mum has been GF for over a decade now, so we know all the ins and outs of Celiac etc which is great. It's also good that it's a lot more mainstream these days,...
:cry: I got my results back today from all my testing. CD-57 looks normal as well as my CBC and a few other nondescripts. However... I found out I am full blown auto immune disorder gluten...
I haven't been able to take my meds at all for the past 4 days, so I am a complete mess. Headaches, joint pain, GI distress, insomnia. Dear lord, make it stop. I go back today to get results of my co...
I will most be likely going for HBOT in the upcoming year. The website you posted is mHBOT, while the facility I am looking at using is HBOT. The chamber is much, much bigger than the one there and...
??? Don't know, but I am in MA and both the ELISA and Western Blot were fully covered for me....
Wishing him all the best in his recovery. It's a tough road to travel....
Yes, definitely have her see an LLMD. I am one of the lucky ones who got strong positives on both the ELISA and Western Blot, but many don't. Those pesky spirochetes! Seeing an LLMD has been one of...
Awesome! I filled it out :) I hope we begin to see some more positive changes in the treatment of Lyme soon....
http://www.quackwatch.com/01QuackeryRelatedTopics/lyme.html I was asking someone who is not informed about Lyme, their opinion on Hyperbaric therapy for patients as it is pricey. They came back with...
I called the LLMD this morning. I maxed out my Biaxin dosage last night and now my left arm and thumb are completely numb. This is getting quite entertaining, how many more ways can my body screw...
Is there a better type of heat for detox? Dry versus wet heat? We hit up some of the county fairs last month and looked at both steam showers and saunas? Both get nice and hot but which one is better...
If you have a fast metabolism when it comes to drugs, I could see that happening. I have a fast metabolism when it comes to general anesthesia. I woke up right at the end of my surgery once while I...
I feel like I am going through menopause. This is bizarre. I am 32, why am I getting crazy hot flashes?Anyone else? And thank you Lord for inventing clinical strength deodorant for my times of need...
That is my next step, to use the search function. I am having her ask the tech when she is there about HBOT and Lyme patients. They had some interesting articles on the site regarding HBOT and Lyme....
Does anyone know how this works exactly? My sister is headed for treatment this week for a nerve disorder. It looks very promising. http://www.hbot4u.com/...
I do actually have a few of them from days of yore ;) How does chelation therapy work exactly?...
The way my LLMD explained it to me was that the Plaquenil opens the cell wall and allows the Biaxin to go in and do it's job better. My meds may change again when I see her in October, who knows? My...
OMG, it's the worst! I had no problem with it when taking 250mg at a time, but now I'm up to 500mg each dose. It feels so disgusting. Maybe I'm turning into a robot :D...
Because it is super gross. I feel like I have a rusty nail in my mouth today. Ew. What gets rid of it?...
And play them for me. This is another woe is me post-sorry ;) I upped my medication today to 750mg of Biaxin along with a complement of 400mg Plaquenil. What happened next was awful in terms of GI...
I just had blood drawn last week and have about 15 test results in the works. It would be interesting to see what my levels are. I think I may end up calling them on Monday, because I am about to go...
No new laundry detergent, it's the same one I've been using for the past few months. I have been like this for the past few days. It's driving me mental with the need to scratch grrrr...
I don't believe this is a reaction to my meds, but it is just so weird :confused: I have no rash or redness, just the incessant need to scratch all over. So what is it? Allergic to laundry detergent?...
I have a cold. It's my first one in over 3 years. I feel like poop. I had 10 test tubes of blood taken yesterday while sniffling and the tech remarking I was dehydrated. Well duh, I have a cold. And...
So my mum has a cat that had Lyme a couple of years ago. She took it to the vets for treatment and it got one round of medication and it was cured of the Lyme spirochete. Apparently, according to her...
Now that is a most excellent idea! Boy, I need you guys to give me these ideas. My memory is worse than when I was pregnant lolol...