Thanks everyone for the responses! I was doing really well with my treatments, then we ran out of money. (my treatments cost approx $700 a month right now) during that time I was forced to take just...
Hey everyone! It's been a while since i've posted on here. I haven't had a lyme treatment in over 2 months and since then I've gotten the flu three times and now I have a really nasty cold! Anyone...
So my GP called me (who ordered the tests) and he says that both the MRI and MRA came back absolutely 'normal'!! My question is... if there's any brain lesions, would they say how many? What is...
Carrie- I haven't actually had a RIFE treatment yet. My doctor is out of town until next week, she didn't want me to start any kind of energy treatment without her supervising for the first couple of...
Isn't it the worst!!! My hubby is so frustrated with everything this disease puts us through! I am working on doing some meditation while my daughter naps for a bit here. My lyme dr is out of town...
Thanks Traveler! Pouring down rain... can't really go outside. Three year old daughter who's fast asleep in her room. It's a tough thing to deal with. I've dealt with rage with my quitting drinking 6...
I just found Avea Mood by Nutramedix and supposedly it's supposed to help level out moods. Anyone use this with success??...
Hey all!! I am having some of the worst Lyme rage EVER! I am driving myself insane, and my family:( Could any of you tell me what you do, what you take to help when the Lyme flares up and causes such...
My hubby and I are hoping to make our 3 person sauna this January!!! I'm so excited!!...
That's funny scorp! That's is true... you wouldn't have to worry about the phlegm! :) I haven't gotten the results back yet. I am going to the hospital that they were done at tomorrow to pick up my...
I am on the Pinella. For the neuro issues....
Hi springsjean! I see an MD who uses integrated medicine and she does muscle response testing. By using this method, she went through my major organs and found where the lyme has gotten into. My left...
Tonight I had an MRI & MRA done on my brain to check much damage Lyme has caused my brain and also to check the blood flow (angiogram) I get the report and images on a CD to pick up next tuesday!! I...
I am taking ubiquinol CoQ10. However I have late stage Lyme and I was muscle tested for it and the dosage amount to take by my MD who treats Lyme successfully. I wouldn't take it without the...
That link isn't just good info.... its AMAZING info!!!! Thank you so very much!!! There's power in knowledge! I am grateful for an open mind (even my bacteria infested mind) :)...
Thank you for the link! I'll check it out now. I am detoxing, it's been 5 days on my new treatment and I can tell something is happening! She gave me a herbal mixture that is supposed to help combat...
So with my hubby gone hunting and Halloween being tomorrow already and NO carved pumpkins yet at our house, I thought it would be fun for my 3 year old and I to carve a big-ol-whomping pumpkin this...
I had an amazing couple of appointments with my doctor the last couple of days! I am very impressed with her knowledge thus far. I went through many dozens of muscle testing over the two...
Thanks all! :) I will be posting a new update on my list of supplements and the questions I had regarding the possibility of have co-infections even though I didn't test positive for them. I am...
:( I am SO confused! I have more questions then for my doctor tomorrow. I find myself crying so much as a result of not knowing which direction I should turn to. I also need a medical doctor to...
I also wondered from those out there if there's anyone else who has the Lyme borreliosis and no co-infections??? I almost feel alone, like the only one who didn't test positive for the common...
I had my first appointment with a doctor who will treat my Lyme naturally. I found out I don't have any co-infections (as of today) I do have HHV-6 and EBV with high mercury levels I go back tomorrow...
I am excited for you too!! I see mine tomorrow!! She works with the same forms of therapies! We can 'compare' notes on our treatment, therapies and how we're feeling!! Best wishes-...
Oops! Not above knowing if the natural isn't working and to get help with drug therapy if I need to. I appreciate all the input. I firmly believe in the saying I hold dear to my heart in life......
It does seem to be quite the hot topic as I am finding out. I am just grateful that us Lymers have choices at least, just like those who are given cancer diagnosis and have the right to choose...
After listening to my gut... I decided to make an appointment with the most popular natural MD in my town for natural treatment. I figured, it's a 1/4 of the cost as going to New York and IF natural...
Thanks Traveler!! Always good info to think about. I have to listen to gut. I know that New York will still be there IF holistic approach doesn't help. Seems to me from the small amount of experience...
I am a bit confused right at the moment... Since being diagnosed in august this year I have been pretty much in the mind set that antibiotic treatment is the best course for me. I've had Lyme all my...
Great job!! Its progress, not perfection! Anxiety is a tough one to tackle!! One minute I think I am okay, then I freak out. I can get to where we're going and I will find myself locked in the...
That is what I always finds helps... Getting out of myself to help someone else, whether it's online or outside our home. Helps break that up from the mental torment that happens in our minds. You...
Thank you borderlyme! It's been a challenge, but one day at a time... I get it done. She is an amazing little girl, my daughter, and she helps me out and asks me know when I can't move or get off the...
I continue to be a part of my 12 step recovery. I go to 2 a week. It help, to some degree to just sit and listen. I've been sober for almost 6 years now! (in a row!!) Thanks again! Now time to try...
Good evening all! I am overwhelmed with wonderful feelings after reading each of your supportive responses! I appreciate all of you and your empathy and compassion! I ended up meeting with this gal...
I am writing this as a result of a situation that happened last night. For the past 2 1/2 months (since my diagnosis), and due to the TERRIBLE herxing that I experienced for weeks, I was unable to...
That is great! I'll let the veterens answer the oral vs. IV question. I am just grateful that I already have a port placed (back in April for blood and iron xfusions) so I don't have to go through...
Welcome to the site! I certainly wouldn't wish this disease on anyone, but this place offers hope, advice and compassion. I went undiagnosed for well over 20+ years!! I finally got tested and...
I have an incredible amount of pain in both legs! Starts in my toes, heels, all the way up to my hips! Everyday all day. Some days are just better than other days....
Thanks for the topic!! This has been one of the reasons why I struggle with my situation right now. I am really finding out who my true friends are for sure!! It's only been 2 months since I received...
Thank you both! I've decided to come up with ways to raise some money for a trip to NY to see a LLMD there. I'm off the Cipro. I've 'fired' my current 'lyme' doctor (especially when they asked me to...
So my husband, deciding he would get more involved in learning more about my LD, searched online and found the Salt/C protocol and thinks I need to start this in place of my ABX. (which I had to stop...
I live in MI and looking for LLMD's in any of MI, upper IN or upper OH. Thanks so much!!...
Thank you Achievinggrace for the info! Responding accordingly; 1. I'll post a new thread for LLMD's in MI and surrounding areas. Thanks for the tip! 2. I don't 'mind' the herx reactions, I know that...
Thank you for your input and your experience with Cipro. I am VERY hesitant about taking my first dose this morning. If she knows I have incredible amount of pain in my joints and muscles, why would...
Oh... and I'm still looking for a LLMD in Michigan. I was given the name of just one in MI and they are not answering their phones. I got the name from the Lyme association website....
So after being on doxy for almost 2 months and feeling like I leveled off, my doctor switched me to Cipro 500mg twice daily. I wondered if there was anyone who could give me some advice/support/info...
Thanks for the response- I am frustrated. I got 3 names of LLMD's (emailed from http://www.lymediseaseassociation.org/ website) only 1 in MI (where I am at) Then 2 more in IL!!! The one in MI isn't...
I am being treated by a doctor who works as an alternative medical physician who treats Lyme. She is not considered a true LLMD. First week of August (after I was diagnosed) she put me on Doxy. I'm...
I have super intense Lyme symptoms approx 5-6 days before and then I have 2 days where I have more energy than normal and feel decent (usually that's when I'll clean my house!!) then my period...
There's a big ol label on my doxy bottle... take 1 hour before or 2-3 hours after a meal. Never even gave it another thought. Until now! Lunch with my doxy today was much better! Hope my stomach/gut...
I did! I also went through all the symptoms of LD and I highlighted every one I have and have it in my 'lyme' folder! I went online and found the best way to drybrush before showering or bathing! It...