hi sharkbay, i will check it out. thank you taking the time to write. take care, letgo...
Hi all, we all know too well that just because they are dr's does not mean they know what is best. this is why i would like to hear testimony about migraine med. i need names to research before dr...
thanks again....
thanks....
hi, i have to change my migraine med. i have no idea what to take. any suggestions would be great. thanks, letgo...
thanks yazzer. good advice!letgo...
HI all, i asked this before but i lost my info. i need a true LLD in or close to my city. please email me if know of someone who has actually seen one who follows proper procedure according to ..you,...
OH i am so sorry. i just posted anotherone before i read this. it wont happen again. let go...
since 1996 i have seen over 50 doctors. i stopped in 2002. from a to z. many times over. the ones whoe refused to read the info i brought to them said lyme did not do this, the ones who agreed lyme...
Hi everyone, thanks for the answer. i just wanted to be prepared if the neurologist suggests it. i dont need ruling out, although he will think i do. on any account i will not have it done and if no...
anyone heard of Dr. S of Maryland.?i am considering him as LLD??letgo...
hi all i am scared neurologist will want spinal tap if brain scan shows nothing. having horrific head pain. consant 10plus. nothing new . late stage lyme. i dont want puncture. is it still not...
Hi all late stage lyme 15 yrs. no treatment since 2002. cant find LLD. it is unfortunate that even with all out lists of LLD. i still cant find one who will diagnose clinical or send my test to...
Hi all i have late stage lyme disease. having serious eye pain. i have suffered mild migraine/crippling migraine pain for 15 years. i am now told No More Imitrex. doc says it can he has 2 patients...
Hi everyone, i am so happy to tell you my husband and i are finally able to start a non profit LD organizion. this is all new territory for us. does anyone else have their own website, foundation,...
Hi i am having constant horrific migraine and ocular migraines. i heard some migraine meds cause seizure, anyone know which ones do . i use imetrex but i am going to have to be perscrbd a new one due...
i agree with borderlyme...
Hi iceskate, i do have late stage lyme and yes my skin is desensitized all over my body. and numb in spots. lyme can cause more syptoms than we can list. good luck...
hi i was wondering why no yeast??i have not heard of this. thanks letgo...
thanks borderlyme you said it perfectly. that is all i was the point i was trying to get across but somehow i think got misunderstood....
thanks Yazzer, that is all i was trying to say and everone is so offended....
Tala3, i am and never have been upset with anyone on this site. i also have a possitive attitude that has helped me heal. the comment about people who get better making some who remain ill like they...
hi all, i agree a good attitude is everthing. you cant begin to heal without it. my posts are not ment to ever put down or attack anyone for any opinion. i just like to see both sides. and look.......
thanks everyone....
thanks...
i have not been tested for bartonella. i have an appointment on monday with primary. maybe i will get lucky and he will test. any suggestions?thaks...
You are welcome!...
i agree we need to have positive attitudes and yes mind body connections help us heal, but no matter how great your attitude is, no matter how strong willed or strong minded you are...it wont grow...
hi traveler, i only choose to not get treatment because i cant find a lld. and the stress of trying to find one..going from dr to dr to dr and tests i feel will only make me worse. if i could see a...
Traveler, i am new to this site so i am curious.. why would you say sicktoolong just ready to stay ill?? also i was wondering what year you got ld? you have had it for 40years?? you are the person i...
hi, when you say Neuro Lyme do you mean lyme that has gotten into your nervous system?? it took only a few weeks after being bitten for the lyme to enter my nervous system. incorrect dianosis and...
hi purplegirl, i experienced the same thing when i was first infected. i had a horrible cough and sinus infections constant. dr gave me Zithromax. i always felt better for about 3 weeks. then the...
tears to mine too. good luck...
Hi all, i just had a thought. over the last week i have been reading the posts on this site and have not decided yet if i will start the hunt for lld again. 2 years i have rested, yoga, meditated,...
thats funny, i love Jody Pocult books. i do my best thinking at 2.3.4am LOL...
Thanks Gary...
hi we all need to be able to talk and share what we are thinking no matter how dark it is. am i wrong in thinking this site is to help all of us with lyme not just the ones who have enough energy and...
hi all. sicktoolong may never come back to this forum. and he is the person who needs it the most. Our possitive attitudes are great but they are not a cure. be patient and kind in your reply. and be...
i am so sorrry. i cried when i read your post. i never ment to make you feel judged..ever. i agree that some of these post do make it sound like an attitude adjustment is all we need, and if we...
i have seen a group of lymies on utube protesting. all wearing lime colored shirts with sayings on them like... It's Our Lyme to Shine, Gotta Lyme in my coconut and it shook me all up... i actually...
i was in the hunting store today with my hubby and noticed about 30 knives on a wall. one of them had a pind ribbon behind the knife and claimed to give a portion of profit to breast cancer research....
HI PEacesoul, i am glad you are so well!! score one for the green ribbon! Sick too long i agree with peacesoul. you have to remember who you were before the tick and never forget. a nurse from the NJ...
i have an appointment with my primary on monday. i want to ask him to test me for Bartonella and all the other lyme bugs. hope he will. i spent 2002 legally blind and couldnt open my eyes even for a...
Traveler, Thanks so much! i sent her an email. i feel like painting my body lime color and standing on a corner after i call the local news, i will research this option. LOL...
peacesoul, you say you are healed. what does that mean to you? are you healed so you can do anything you want like work a full 8 hour day. or are you healed mentally and have a nice life because you...
Alashah, thank for reminding me of healers. i will research them. SickTooLong, i feel for you. how long have you had lyme? i have felt the same way. luckly i have a wonderful husband who supports and...
Hi Traveler, it sounds like i wrote something that you think i thought was offensive. i absolutely didnt get offended by anything you wrote to me. i am sorry if it sounded that way. i never thought...
hi all, i spent the last 2 years without antibiotics. (i have to rest 80% of the time and have nooooo stress, but i was able to keep the bugs at bay). now i am having a mega exacerbation of my...
Hi borderlyme, i have had chronic lyme since 1996. i tried anything and everything i read about that claimed to help. some did and most didnt. i tried mostly natural things. here are some expamples:...
HI sarasota is the nearest big city, or tampa but that is to far to drive....