Hi - I have been "seeing" an ILADS ND in Canada for the past 2 years, but she was on maternity leave the past year and I have been just "coasting", waiting for her return. I just found out that she...
Hi Opusgirl - Thank you for your reply. I do have a mixture of many herbal supplements being couriered from my doctor. What I was wondering is this: Do you think that the return or increase in...
Well, I finally had to say goodbye to the antibiotics, as they were causing many unwanted side effects. I did not think that they were doing much anyway, but ohhhhh, was I wrong. I have only been...
I am taking lots of probiotics. I guess I will make an appointment with my lyme doctor and see what she recommends. And I will look for the thread you saw, Shabbychic. Thanks!...
Okay - I got totally freaked out tonight.......my tongue is black! Not a little bit black, but BLACK! So I looked on line and it can be a side effect from antibiotics. Has anyone had this? Does it go...
Yay - I just heard that I do NOT have c-diff! I hope that missing a day of antibiotics won't put me back too far. Thanks Opugirl and Bloopy for your replies. I should be proactive and try these...
Thank you for posting Trumpet123!...
Hi Opugirl - I have been on probiotics 2X's/day for the last year. Unfortunately, I have had diarrhea for many years, and therefore, I can not use that symptom for watching for c-diff. It is just...
I have copies of a requisition for c-diff, that has no date on it, so that I can go on a regular basis and just fill the date in. So I was tested yesterday, as I have had bad cramping and a lovely...
Hi Jenna, I will be watching your post. My eyes have given me problems off and on for all the time that I have had Lyme. They are not only dry and twitch, but they get "pulled" closed. Usually just...
Thank you Razzle and bluebyyou.......I will try your suggestions. Where do you get activated charcoal - I have never heard of it...
Thanks Don and Razzle......I will get myself some peppermint gum and see if that helps....
Thank you for your input Shabbychic. I will ask if my thyroid and adrenals have been checked or not. Thanks again!...
Hi everyone - I was diagnosed with LD last spring. I remember a certain bite that was very different (approximately 5-6 years ago). Along with all of the "weird" symptoms that I began to experience...
Hi Summer - I am seeing a ILADS trained naturopath. She has said that eventually we will be adding in some other antibiotics. I'm guessing that she wants to start slowly. This could be the reason for...
Hi Kathleenta - I can relate the the sore glands and neck area. I also have very sore knees and ribs. When I get the back pain it is lower than yours. One of the things that helps me with the knee,...
Hi Everyone, I started 500 mg of Amoxicillin 3x's/day on Dec. 27. I have drybrushed/epsom salt baths daily, drank a minimum of 2 litres water each day and taken 2 different probiotics (at least an...
WWJD, Summer and Razzle - Thank you all for the responses. I actually returned the computer as I didn't like windows 8. I have no problems connecting to healingwell with IE with my old computer. It...
Hi All - I don't know where to post this question. I have a new computer (I am on my old one right now) and it has windows 8 and explorer 8. Every time I try to go into healingwell.com it says it can...
Okay WarriorMom and Shadow - We can do it!! Thank you Traveler, JustMe and Deejavu for the great suggestions!...
Hi WarriorMom - I understand your fear. My antibiotics are sitting here waiting for me to begin. I'm not going to start until the 27th. I am so scared. My friends tell me to get excited - this could...
Thanks Traveler!...
I try to ignore pain that is lyme related. I have been having a certain pain off and on that I'd like to determine it's cause. It is in my lower back/stomach (feels like it is right in the center of...
Thank you Traveler and Springsjean - At first I thought that I missed getting an important test done - just got western blots done, but if the Lyme Dot Blot Assay is not any better, I won't waste any...
I was just reading over "New to Lyme" section - specifically the testing info, and I noticed that the Lyme Blot Assay test is 80-90% accurate. Why is it that most of us (as far as I can tell from...
Thanks guys - I will look for Repel Tick Stop. I'm not a hiker, but golf lots and not well. Hence I am in the bushes lots looking for my ball! I get pretty nervous about getting bit again....
Is insect repellant of any use with ticks?...
Achievinggrace - You make me smile....you are so supportive!...
Thank you WisconsinGardener......I will have to check this out when I have a little more time. Thanks for your assistance!...
WWJD: Thanks for the support and I totally agree that we can all be so thankful for sites like this one and the opportunity to share like we do. Today has been a difficult day for me - thanks to...
Oh tickssuk, I'm sorry that you, your husband and his family have had to endure so much! Life isn't fair sometimes, but I guess all we can do is try to keep going and try to keep positive - easier...
It was brought to my attention that I missed some of these responses.....so sorry! Thank you Penny and Achievinggrace for your input. I will try whole foods only and I have made an appointment for a...
Achieving Grace - Thank you so much for your reply and sorry that I missed your response in the past (to be honest I don't even remember asking this before, but I'll blame my poor memory on the...
Hi all!! My ILAD trained NP will not allow me to go on antibiotics until I get rid or severe, chronic diarhea. I have had this for over 6 years and still have not found away to get rid of it. In the...
Thanks for sharing Penny!! I could feel your hope in reading your post and it upped mine a little! Thanks!...
Is "juicing" just making juice from whole vegetables and fruit? Thanks!...
Too funny - we were writing at the same time! My anti-transglutaminase levels are still very slightly elevated. I am not sure if that is from the occassional gluten accident in restaurants or if I'm...
Thanks so much for your reply Penny! You get an A+! I do have celiac but have been gluten free for 6 years (sorry - should have mentioned that!) My doctor and the specialist ( I think she's a...
Hoping to get some opinions from you smart cookies! (sort of a gross topic though! Sorry!!): My ILADS trained naturopath diagnosed me with Lyme (and also thinks that I have coninfections as well...
LoveHealth - I have a torn meniscus in left knee - waiting for surgery too. I hurt it getting on a bike in Sept.- really don't know how it happened, just doing a normal movement. Just last night, I...
Hi All - I have been looking online for an answer to my question without any success. Thought someone here may know the answer - it would save me much time and be so appreciated...... I was diagnosed...
Hi grish - I am in Edmonton too and have had no success in finding a LLMD in the area. However, I found an amazing Naturopath doctor who has specialized in lyme with ILAD. She is in Calgary. I have...
Hi MysteryLyme - Thanks for your suggestions. I know "brain zaps" as they apply to withdrawal from effexor - terrible feeling. It was constant but did not have the "moving down through head and body"...
Thank you - worth mentioning to my doctor then. I don't like to overwhelm her with every symptom, as there are so many of them,so I attempt to list only the major, most disruptive/painful ones. But...
I am just wondering if anyone else has ever experienced a sensation I get - trying to determine if it is Lyme related. It happens at any time but is more noticeable when I am sleeping as it scares me...
I am wondering about this statement you made: "Many a time, Celiac disease has the exact same symptoms as lyme. And many times those with lyme will test gluten intolerant." My Igenex tests came back...
Just wanted to share that I found a wonderful Naturopath in Calgary Alberta who has been trained in Lyme Disease by the ILLAD group in New York. I am very impressed so far. First appointment was...
Thanks Achieving Grace! Didn't think about that! /community/emoticons/smile.gif ...
Does anyone know of a llmd in the Palm Springs area? I am going there for a holiday from Canada in 2 weeks and would love to see a llmd to interpret my igenex results if possible. Thanks...
Thanks Springsjean and worriedinvt for the info. Thanks for letting me know about your vision/vertigo worriedinvt - I can totally relate to looking away from things that are moving - like scrolling...