Thanks! I decided to go on IV abx, the lady I work with was more concerned for the risks of MRSA than for the IV risks plus she tells me the oxygen therapy would help with that. My doctor was all for...
I have Lyme, Bartonella (clinically), possible Mycroplasma, borderline Babesia (ECP 11-10) I've only been on treatment for 3 months, we rechecked my blood work and the treatment hasn't done much and...
I don't know all the details but I'm told that this is a pretty important test because if you have nasal staph (which is common among Lyme patients) then it's harder to treat your infections, not...
MRSA screening, my doctor did a simple nasal culture. This explains it and has pictures of the test http://www.healthhype.com/lab-tests-for-staph.html R means Resistant and S means Sensitive. I'm...
Thanks, I emailed him and told him I can't take Rifampin but he might try to fight with me on it but I know he will also try to work with me. Here is what I'm sensitive to: Centamicin Tetracycline...
My second nasal culture came back still positive with staph... and the abx I was taking before I am now resistant to. My doctor wants me to take Rifampin but I can't take that, I tried it before and...
I started treatment with my LLMD around 3 months ago, I'm on two strong oral antibiotics and I'm also on medicine for cortisol, adh, etc as well as natural treatment to raise my killer cells and...
Thank you everyone! So far my antibiotics are covered but my co-pays have been in the hundreds... My IV fluids are covered but it's still $38 a week and that's too much for me to pay but they won't...
It's been about 13-15 years since my tick bite but I didn't get sick until almost 10 years ago. I think they said it could be within 3-9 months before I feel a difference, if I ever do....
It is different for everyone. Some people skip the herx and feel better pretty quickly while other may quickly have terrible reactions. My friend after the first day or two was worse but for me, I...
I have Lyme, Bartonella, and probably a few other things including nasal staph! I went undiagnosed for 10 years but I've been infected for around 13-15 years. I've been on two very strong antibiotics...
I have all the discovery channels including Animal Planet but I can't find it. I searched but the show doesn't come on any time this week, isn't it suppose to air tonight?...
Thank you very much. I am taking Welchol and I'm told it's to detox? Does that do the same thing or is that different?...
I can get my heart rate down to a resting hr of 80-100 for now, I've tried some natural means at lowing it but it worked even less than my beta blocker. My LLMD believes in naturals and highly...
I write too much sometimes and then I forget what I wrote! I'm so tired of being sick, it's too exhausting. I just woke up after 20 minutes of sleep, can never sleep through long. One symptom that I...
Thank you very much! I will also pay this information forward. I have also seen that link before about the Gabapentin, I've been wondering if I should show it to my pm doctor or not. Lately, I have...
I am seeing an LLMD, he's suppose to be the best in the East, has been highly recommended and has appeared in a Lyme documentary. I just received some more test results tonight. CD57 is 36, ECP is...
Showing my progress and I'm asking for opinions if you don't mind the long read, does all this look right? I just want to make sure I'm on the right path here. Sorry for the late reply, I've been in...
LAB TESTS Complement component 4 (C4a) (needs to be freezed) 134 OKAY Cyclic Citrullinated Peptise (CCP) 4 OKAY Matrix metallopeptidase 9 (MMP-9) 263 OKAY Vascular endothelial growth factor (VEGF)...
These are the abnormal labs: MSH, ADH, TFGF-1 and the nasal culture came back with Staph that says I'm resistant to 3 antibiotics. My LLMD showed me 1 before that was okay and 2 more biomarkers were...
I am going to call my gyno tomorrow and ask about the interactions but I wanted to hear from those who have experience with it. I am taking Jolessa and it stops my periods completely because they...
We are writing the complaint letter but we are also going to write him a personal letter, his address is in the phone book. He thinks he can bully me but you don't mess with me, this isn't a game,...
Here's the letter that he sent, this is the only thing I got. Ha, they even spelled my name wrong... Gee, after so many years you'd think they'd have that right at least. "Dear Ms. ***** Medical...
Yes he is a man, a terrible terrible man! His personally is all smiley and giggly but he dictates your medical care. I will be sending a letter to the medical group complaining about him, I will be...
PCP, Primary Care Physician. What I meant by hearing about this doctor was my LLMD who is pretty well known actually and was even featured in a documentary for Lyme and other magazines/newspapers. My...
I just saw an LLMD and he has saved my life. I had blood work and other tests that prove I have a biotoxin illness, either allergies to mold or Lyme disease but based on my symptoms I may have...
Thank you, it's shown. Someone has given me his name and number but I'd like to know what guidelines he follows and how he commonly treats someone with chronic Lyme, someone who has had it for 10+...
I don't know if I have lyme yet, I most likely do but one of my first symptoms was a high heart rate. I developed SVT and I had an ablation which made me worse and caused me to develop another...
I am changing my title because my nurse told me that there is a LLMD in my area in Destin, FL. Both my friend and I need to see him ASAP if he's truly a LLMD! I'd like to know what guidelines he...
I'm looking for an LLMD in the Northwest Florida area, or some place nearby. I have not been diagnosed yet but after all I've been through, I'd be surprise if this isn't the answer. This isn't only...
Thank you very much! I'm very appreciative for the help. I see an acupuncturist occasionally and in the beginning it really helped with my symptoms but not as much anymore. He is also good with herbs...
I'm 23 years old and I've been sick since 14. I was very athletic and healthy, I went from being the most independent of my siblings to the least... I practically lived out in the woods in Louisiana,...