What is the name if the test for CCSVI? I didn't know they could test for it....
I live in Chicago and started really feeling the Lyme symptoms in 2009. After numerous doctor visits, 2 trips to mayo clinic, trip to New York to see MD (no help), I was told about Igenex test and it...
Live in Chicago and he has been on the antibiotics for 2.5 weeks (and lots of probiotics). I do have samento and am thinking I may switch to that....
My son is 5. RMSF came back negative along with all other co-infections. I know tests with Lyme and co-infections can come back inaccurate....
My LLMD said the same that stool tests are very unreliable....
My son was on two antibiotics cause he got bit by a dog tick. The tick test came back negative for Lyme and co-infections. Do I still keep him on the antibiotics just in case?...
I've only been on Rocephin for 3 weeks. Well, I know what to ask next appointment now...
I am on IV Rocephin. Shouldn't I be on a cyst buster also? Any thought?...
I passed lyme to my son 'gestational Lyme'. Unfortunately I know quite a few of us this has happened to....
Actually, he didn't say to do anything. Hmmm......
I did email the doctor and he said it sounds like a lymph node!...
DazedPete1, I live in NW Chicago. If you don't mind, could you email me where you get treated. Currently, I travel to Wisconsin....
I see Dr M in WI. Been seeing him for over 2 years. I do know of 2 LLMDs in Chicagoland. You can email me!...
12 days ago my 5 year old son had a tick on his head. The tick was not engorged or filled with blood. But I did have to use tweezers to remove it from his head. Within 1.5 hours of this, he started...
We need cortisol to live. I was having a similar problem and I needed it to function. Good news is that it was temporary, but absolutely necessary! It is a physiologic dose (keep in mind the right...
Which is the best company to go through to get a tick tested? There are a couple out there and am looking for suggestions. Thank you so much!...
Thank you so much. I was able to get a 14 day dose of amoxicillin and just gave him 8 drops of same to. I read the post about your daughter having accidents Simela1. That is ironic cause my son has...
Need advice! Just pulled a tick out of my son's head (5 years old). I'm freaking out. Please help me on what to do!...
I recently went through this and my LLMD gave me A shot of Rocephin. It helped a lot! I go in this week for my picc line....
My LLMD does not accept insurance in his clinic. However, my prescriptions (antibiotics) are always covered at the pharmacy. Do people usually pay out of pocket for picc line and Rocephin? Then I am...
My LLMD said I need IV Rocephin cause of my horrible symptoms. It'll be my second time with a picc line. So, his office charged me $195 just to fill out the paperwork for IV antibiotics and picc line...
Petechia...
Thank you for the suggestions. I do take Cod Liver Oil and Theracurmin everyday. As for my adrenals, I have secondary Sheehan's syndrome (necrosis of the pituitary gland). So, I have to take...
Sorry for the stupid post, but I am at a loss. I started seeing a new LLMD this past January cause I wasn't getting better. Found out I had a lot more co-infections with lyme (rocky mountain spotted...
I was diagnosed with lyme in 2011 and bartonella in 2012. I have made very little improvement even with IV antibiotics. So, I saw a new LLMD who confirmed my lyme and bartonella along with...
Can you please email me the info too please? Thank you!...
Thank you!...
It's been awhile since I have been here! Since then I've learned I have Bartonella and is it active! I have the pseudo-stretch mark rash showing up on new areas on my body every week. A doctor was...
I know there are not too many literate Lyme MDs. However, I know there are some really good ones or LLMDs that are 'considered' the best in the U.S. I am wondering who they are and where they...
The new "LLMD" is concerned about my heart because of the lyme and bartonella. Before I was diagnosed, I had an Echo that was normal and then 4 months later another and I had a prolapsed mitrial...
Miralax is supposed to be good. However, the less meds for me the better. This may sound a little icky, but get an enema bucket! It is not as bad as it sounds. I make sure I go everyday, and if I...
Doesn't the coffee enemas 'drain' you or make you feel a little 'brain dead'? Are certain supplements, or bile salts supposed to be taken when doing the coffee enemas?...
You can get a nebulizer and your doc can get the GSM through a compound pharmacy. That is another way that is supposed to be effective....
Sorry for the question... Has anyone has endocarditis infection because of the Bartonella since it can cause this type of heart inflammation?...
Has anyone tried gentamicin w/ doxy (or something else) for Bartonella Like Organisms? How was it?...
I had this done once before I was diagnosed with lymes. They did a 'challenge' test. I had the IV in for 4 hours- it's done slow. And the first time you urinate, the urine is collected and then...
Protein in urine. This comes and goes with me. Kidneys are workng hard to get the toxins out. Are you taking a kidney support supplement?...
I was reading about it and there is radiation- the amount of an x-ray. However, it you need 20-30 treatments, that adds up!...
Yes, I have had bio-set done. The doctor was the one who let me know about the mold in my body. It's enzyme therapy. How is she going to clear the pathways? By enzymes or other means?...
I am not doing it. I was just wondering if anyone heard of it or tried it. I think it's only available in a couple states and mine is not one of them....
I asked him (the ND) what he would do if he had late stage lyme and bartonella. He replied UVBI. I guess your blood runs under/through an ultaviolet light that kills all bacteria, parasites, virus,...
Recently I spoke to an ND who recommended UVBI (UltraViolet Blood Irridation) for lyme, co-infections, etc. Has anyone heard of this or tried it?...
I'm so sorry! I get lumps and my breasts get sore. I was told it is from my 'impaired' lymph system. Also, I had a mamogram and they found calcified cysts. My 'bad' estrogen is high which causes...
I had just recently started the supplements and I stopped them. The "LLMD" is a medical doctor. I only had one appt with him so far and I think it's my last! The supplements were 5-HTP, Adren-All,...
I was in the ER twice this week for 'gastritis' and violent vomiting. I was finally able to make the connection yesterday after taking some supplements; 45 minutes later, I was violently vomiting and...
I understand that lyme can severely impact the brain; depression, anxiety, cog deficits, etc. Is the Amylagada usually or always involved with lyme disease? Kind of like constant hyper-active 'fight...
I was on Diflucan for yeast. Little did I know that it aggravates the Lyme. I also have MCS, but not to the degree of yours. I started herxing after 1.5 weeks of the Diflucan (extreme sweats,...
Thank you so much!...
I guess it would be BLO instead of the Bartonella (Cat Scratch Fever). OMG! I feel like I am going crazy and the medicine the 'LLMD' is talking about is for Cat Scratch Fever! HELP!...