Don-- I am sorry I replied before I read the blog post. It is very informative and helpful!! I see that the cortisol replacement really did help. I am hopeful that armed with all of this information,...
Thank you all for your comments. Don--I have seen you on here before and maybe even "talked" with you. . . . Our daughters were both treated at Hansa! My daughter is getting better, but not where she...
Hello All!!! First of all, "HI"--it's been a long time since I have been on this forum and hope that many have found healing and health! I am the mom of a Lyme patient, and this forum was, and has...
Hi All! I have posted before but it has been a while. This year has been so hard for my daughter. Recently, she had the CCSVI procedure becuase she was having seizures and intermittent blindness....
Thank you MarieLS for sharing threads--I will take a look!! :-)...
Thank you all for sharing. .. . Are abx an option? Well, I guess it is a possibility. Though we did use amoxi in the beginning and also Zithromax--she never could get up to a therapeutic level. 1/4...
Has anyone else ever had this? Just wondering. Asking for my 19 yo daughter who was doing pretty well after Hansa and Cowden, but has been having a downward turn since Feb. Started with motor focal...
Hmmm, Traveler--Not sure that link was for us?????...
Hi Maine--I am a nurse too!!! I work part time in a day surgery center and part time for a naturopath--what a combo,huh??!! I have a foot in both worlds! That being said, the alternative path that we...
Thank you for suggestions and thoughts. It is, of course, pretty distressing to watch your child suffer. Sadly, I have an awful lot of company. . . (Did I mention I HATE Lyme?!) SLML--she does take...
Hi Traveler! You are such a consistent sweet presence in this place!! ALWAYS a pleasure to hear from you, your comments and wisdom to share! You are such a blessing!! I hope you are doing well! Just...
Hi All! I have not been on this board in a long time--I am the mom of a daughter fighting Lyme. She has really been doing pretty well. Just recently some setbacks with migraine headaches and...
Yes, she has! I have done it when she is asleep too, and it seems to help her energy. We are going to keep on trying, as I totally believe in the technology. . ....
Is anyone using the iMRS mat?? It is a pulsed electromagnetic frequency mat. We have one and I love it, but my daughter who has Lyme is very sensitive to it still, and cannot yet lie on it. Just...
Hi Ilexis! I am wondering if there is any way I could chat with you a bit about the CCSVI procedure? My daughter, dx at 16 and just turned 19, has also been to Hansa and worked with the drs there....
Denise--Thanks for asking about Caity!! She is doing very well!! Two part time jobs this year and adding in a college class!! Praise the Lord!!...
We have a mini one, and my daughter loves it, but it just feels good to her. More like a cozy heating pad. We also bought an iMRS mat--I love it, and it helps with energy and pain. So far, my...
Here is one link: http://www.himalayancrystalsalt.com/sole-recipe.html...
Make sure it is pink too!! Our nutritionist recommends making and drinking sole (pronounced So--lay). It is basically filtered water supersaturated with pink Himalayan salt. I will try to find the...
Hi Horsegirl! I actually work with him and he has been treating my daughter. You can email me if you would like more info!...
Thank you Razzle! I have already offered her all of your suggestions, but actually just want her to come to me if she needs help! It is frustrating because she can remember things like tv shows, but...
Hello All! Most of you have probably seen me around here before, but it has been awhile! My now 18 yo daughter has been struggling with Lyme for most of her life; diagnosed 2 years ago, and has been...
Thank you Lymer for sharing your thoughts. . . I am probably way too hard on her and I know she is just trying to cope as best she can. I am very proud of her for all she does do--it is just that she...
Woops, I said lately she has been taking just hydrocodone--but I meant to say IBUPROFEN!! Quite a difference there--LOL! Guess I ought to get to bed!! :-)...
Hi All-- So grateful for this timely thread on pain management. I am dealing with Lyme with my daughter (like Heather's dad!!). We also went to Hansa, as some of you know--and it helped but we are...
Love the idea!! <3...
My daughter has done wonderfully on these! She started with Cumanda and Samento, then switched to Banderol and Samento. She also rotated Serrapeptase and Bromelain with them; and...
No no no no!!!...
And Violet--I love and agree with everything you have said. One difference lies in the fact that I am not the sick one, and I also am the one that has read and researched and learned FOR my child. I...
I want to apologize if I inferred that pain meds are bad. . . I agree with you all, that at times "bandaids" ARE needed just to get through. . .And some of you are raising families while dealing with...
Awesome post Violet, and another great reminder! Last year at this time, we were pretty down. . . but I have seen such great improvements in Caity this year!! She is not where we would like for her...
My daughter has been doing a Cowden approach for 6 months, she began feeling better after 4--8 weeks, though I would give it longer. We were told possibly 6 months, improvement began earlier, now she...
Wise post--thank you Traveler!! I too, at one time would have pooh-poohed the full moon effect! That after being a nurse and EXPERIENCING the crazy ER and maternity wards the full moon brings. . . My...
Thanks Nancy!! Sorry it has taken me a few days to say that! Are you on the Hansa Facebook group? Just wondering --let me know if you are interested or if you are ever even on FB!! I have enjoyed it...
This is interesting. . . My daughter's first Lyme dr would not prescribe it for her, and I just asked her pain dr if he thought it would help her. He refused to write for it and the nurse I spoke to...
Nancy and Don, Couple comments! Nancy--our hesitation on the CCSVI procedure for our Caity is that it is such an invasive procedure and we had heard from many that the effects are not longlasting...
It worked great! Just homeopathic HCG. You put it under your tongue 30 min before meals (hmmm, or maybe it was twice a day. . . !!) I'm tired, I will have to look that up if you are interested. I can...
I have done the HCG and I did the homeopathic. I wonder if it would be gentler on your body. . . Something to consider! My daughter was at Hansa several times earlier this year and Dr. Jernigan also...
Hello Heathersdad!! SO HAPPY to see you here!! I am "Caity's mom" and have shared your journey in so many ways!! My daughter is now 18, was diagnosed when she was 17--in March of next year, it will...
Any updates?? :-)...
We live in the DFW area and are seeing a ND and using holistic treatment for my daughter. We have also used abx, but my daughter could not tolerate them. If you are interested in this route, you can...
lknight-- We are going to a dr in Flower Mound (just north of DFW) who is a ND--we really like him a lot and Caity is doing better. Can I say his name here--can't remember!?? We have also been to...
Just wanted to chime in here again! Caity is up to 5o drops each of Samento and Cumanda and today will switch the Cumanda for Banderol--starting at one drop. She will remain on 50 drops of Samento...
My daughter is taking both Samento and Cumanda and Serrapeptase along with associated detox---burber, parsley, pinella, etc. She is up to 30 drops of each/day and we go 12 1/2 days on, then 1 1/2 day...
My daughter has been taking Samento and Cumanda and Serrapeptase for the past 6 weeks or so. She has really seen a lot of improvement. She is still working up to a goal of 40 --60 drops of each per...
My daughter was on metoprolol briefly for tachycardia. She now just takes it as needed. It is nice to have something in case she needs it, but am glad that she does not need to be on it all the time....
Thank you Achieving Grace! I do massage her legs a lot. And I agree with you on the exercise--hard to convince her!! :-)...
Springsjean-- It is the one symptom that is the most stubborn!! She is feeling better again, overall, but is still having muscle pain--mostly her legs. I think it could be complicated from lack of...
Hi All! I am just wondering if any of you have any ways of treating Lyme pain without narcotics. My daughter has been taking hydrocodone and I am very concerned that she may be becoming addicted. It...
My daughter is on a natural protocol for Lyme and was bit by 8 (yes, EIGHT!!) ticks on our vacation last week. This week, she has had cold symptoms too--sore throat, stuffy nose, lots of aches and...