Very interested in this. What kind did you buy and how do you do it?...
Everyone's experience is different. I don't think we should all tell her not do it based on our own experiences. I had it done. It was very tolerable and no pain afterwards except my lower back was a...
Sorry you are going thru this. I have been and still am, where you are. My Lyme led to Postural Orthostatic Tachycardia Syndrome and tons of PVC's. I am now on Propranolol for my heart and I can tell...
I am connected with the Georgia Lyme Disease Association. We do have a support group on facebook. You are welcome to sign in and chat with us..Lyme is a lonely place...it's nice to have others to...
Actually POTS tachycardia can occur while lying down as well. One of the hallmarks of mine was that it would wake me up in the middle of the night with tachy up in the 180's. It does typically occur...
Thanks Deejavu. My LLMD has had me on toxin removal meds and supplements. I think I have done most of all of them! lol....I will check into the book and see if I can try anything new. Another issue...
I am by no means an expert at what I am about to say. I have a gene mutation of A1298C. The test that was done on you checks for that one and the C677 mutations. Look up the MTHFR Foundation. It has...
It's called a sensory disorder or sensory overstimulation. I also suffer from this severely. Most of the time, I can't tolerate church, stores, loud music, even being around my family is extremely...
Wow, you guys sure have been better off at walking than me. I became housebound in December of 2010 and am still in a wheelchair. I can only take a few steps here and there. Like y'all, my legs feel...
It sounds great that you have an infectious disease doctor on your side, especially one that is willing to work with an LLMD to get you well. That is a huge plus. It sounds like to me that you have...
Have they checked you for P.O.T.S(Postural orthostatic tachycardia syndrome)....its pretty rare but my chronic lyme turned into this. I see a cardiologist and my LLMD for it. My Cardio is sending me...
Sorry you are going thru so much. Like you, I was always and still am, anemic. I had a hysterectomy at the young age of 30 in 2009 due to a prolapsed uterus, adenomyosis and really heavy cycles. We...
Sorry to hear what you have been going thru. I have the same problems. I have hypopituitaryism and my ADH levels are very low due to Chronic Lyme Disease. I have to take Desmopressin for it. All of...
I have been having the same problem. I will be going back to my hematologist this week. I have had problems with anemia all the way back to 2008. I had a hysterectomy in 2009 due to some issues and...
I know all this is so tough. My LLMD actually filled out my disability papers that show functional capacity. I am in a fog and can't think of what the name of the form is. He sent it to my lawyer and...
Actually you can use Chronic Lyme as a disabling condition. It isn't in the Blue Book yet but it is becoming more common and more people are having to apply for Lyme. My LLMD knows of some who have...
There is an LLMD in Mobile Alabama and one in Destin Florida. I have seen both and currently see the one in Destin. He is great. He will treat with conventional ABX as well as Byron White Formulas....
I have similiar problems. For me, I can't tolerate the lights, the noise or the crowds. I have a difficult time trying to pick out items. It's like looking at the shelf of so many choices overloads...
I have been thru what you are going thru. One word of advice: don't take any belongings with you. I know this is very difficult to hear and accept but the mold spores and toxins they produce are on...
I have Lyme and Bartonella (and past Babs) but also do have POTS....which landed me in the CCU for several days. I disagree with confusing people or adding in more treatments to complicate matters. I...
Could anyone tell me how to do the Vitamin C & Sea Salt Protocol? I want to try it. thanks...
Dr. L is an LLMD in the panhandle and he is very knowledgeable. However, he doesnt take insurance either....
Also, I am very honest with new doctors that I run across either at hospitals or finding new docs. I tell them up front exactly what I have and ask them what they know about it. If they arent willing...
I looked up the monthly guide and it isn't airing here in the US until July 22 on Animal Planet....
Sorry to hear that. I have taken the Amantadine. I still take the Mepron and Azithromycin. For me, it was the Amantadine and Azithromycin combo together that caused so many side effects. My head felt...
I also just sent you a message....
hi, I do have hypopituitaryism from mold illness, then lyme. Have you checked out any of dr. Shoemakers work? My LLMD partly uses his protocol then incorporates his own treatment approach. He did...
sorry to hear that. I have been battling lyme, babesia and mold illness for a long while now. I am north of atlanta and as far as I know, there are no LLMD's in georgia. I do see a naturopath in...