Thank you for the reply. So then you aren't taking any of the antibiotics prescribed for MAP? Also, I know in Canada they have hyperbaric chambers available, even using them with a group of other...
I was just wondering if anyone on the forum has sent a blood sample in to John Aitken's lab in New Zealand, Otakaro Pathways, to be tested for MAP and if so, what was your experience?...
Oops, forgot to post the link. I have trouble posting, if it doesn't work I hope some one an fix it for me. Thanks...
This is a great article. Mike McCready has brought so much awareness of Crohn's and ulcerative colitis....
Hi Svipa, My daughter didn't have the time to use the hbot therapy because she was busy with school. We were hoping that when she finished her master's last August she might be able to use it on a...
Notsosicklygirl, My daughter has indeterminate colitis (her GI said he can make a case for either Crohn's or UC). She is a non-responder, even prednisone seems to have quit working for her. I was...
I was just wondering if there is anyone who did not respond to Remicade but then tried Humira and actually responded to it? Since both drugs are similar, I didn't know if it would be worth a try....
I'm not sure if this has been posted yet, but I just saw this posting at the clinical trial website. This is so exciting. We've been hearing about this drug for quite some time. It appears to be a...
We haven't contacted the company yet to find out the specifics because my daughter needs to talk to her prof to find out if she can take time away from her research job. It is going to be quite a...
Forgot to include a link to the article that explains why this treatment may help ibd http://www.medicalgasresearch.com/content/2/1/6...
I searched the archives for information about hyperbaric oxygen treatment for IBD. There was some discussion about this subject in 2012 but I couldn't find any recent posts. My daughter's GI is very...
Stealth Guardian, Thanks so much for the links and all of the info. I really appreciate all of the information available on this forum, I've learned so much. And I also feel that it's important to...
StealthGuardian, I would like to echo Octobergirl. Where did you get your information about which probiotics to add for certain foods? I agree, I don't think that certain foods need to be completely...
Hi OctoberGirl, Regarding your question about hormones, she has a few pages about hormones. I was going to try and sum up what she said but I just had an epiphany. If you go to Amazon and look up her...
I have just started reading the book The Paleo Approach: Reverse Autoimmune Disease and Heal Your Body by Sarah Ballantyne, PhD. I tried searching to see if anyone on the forum has talked about this...
[tr ][td style="PADDING-BOTTOM: 0px; PADDING-LEFT: 0px; PADDING-RIGHT: 0px; PADDING-TOP: 0px" width="100%"] Qu Biologics opens Crohn's Disease Clinical Trial toU.S. Participants Qu Biologics opens...
Hi Redrox, My daughter has started in a clinical trial at the University of Washington. The drug being tested is SAR339658. I believe the name is vatelizumab and is a "cousin" of vedolizumab. The...
If you are interested in Vedolizumab, you might want to consider the following clinical trial: http://clinicaltrials.gov/show/NCT01659138 My daughter's gi doctor called this drug the "cousin" of...
Protocol, Thanks so much for the reply. I think I will ask my daughter to try the WOO again. I had her try 4 drops in a shot glass of water twice a day and maybe that was too much to start. The WOO...
If you aren't seeing any changes with the WOO, how long would you give it before stopping it?...
I am so sorry to hear that your daughter is so sick. My 22 year old daughter has been in a flare for a year and nothing has worked. There was an article in the Seattle Times a few days ago about...
This is interesting. I looked at the study abstract and since I couldn't understand it, I asked my daughter who is working on a PhD in immunology if she could explain it to me in terms that I could...
So glad to hear you are in remission. I will go through my books and see if I can figure out which one and will get back to you. That's too bad about the levoxyl, did you tell your doctor how it is...
Hi MA10, I have been taking thyroid medication for three years but I'm sure I have been hypothyroid for decades. I have suffered from tendonitis for at least 30 years and so far I haven't noticed...
Hi Penngurl, Sorry I took so long to get back to you, I have been off the forums for a while. Can you refresh my memory, I have read so many books. Which thread are you referring to? Besides diet are...
Hi Dawn, I agree with Kim, you might try going gluten free for a few weeks and see if that makes a difference. Also try cutting out dairy but I wouldn't do that as the same time that you avoid gluten...
That is great news! I've heard that some people have trouble with generic thyroid. So glad to hear that you are feeling better....
Hi Kristies, Yes, it sounds like you might be on too high of a dose. Most doctors that I have read recommend starting with a low dose of hormone (about one-fourth) and gradually increasing the...
Hi Dawn, Wow, I think I would look for a new doctor if your doctor doesn't believe that IBS is real. Constipation is usually a symptom of hypothyroidism but I am hypo (hashimoto's) and have always...
Hi DKW, Yes, from the TSH and your symptoms, it sounds like you are hyperthyroid. besides the weight loss, the nervousness, panic attacks and anxiety, I was reading on-line today and saw a reference...
Hi Angela, I've been waiting for someone who has experience with thyroid issues and birth control pills to reply to your post but this isn't a real active forum. So I've been looking in my books for...
Also, you should contact madamebrianne on the Think you may have something other than or in addition to a thyroid problem? thread. She posted about POTS and the symptoms sound similar. She said to...
Hi Justme, Do you know exactly which thyroid tests were done? You probably had the TSH test, but do you know if you had the free T3, free T4 and the thyroid antibody tests (TPO ab and TG ab)? Also, I...
Hi Dany, Yes, at this point you might just want to see an Endo and see if he/she can help you. I did think about you when I read the book Hypothyroidism Type 2 that I posted a thread on. The author...
Hi Buzz, There's a lot of disagreement over the value of the TSH test. There are a lot of people who have normal TSH levels, but still suffer hypothyroid symptoms. In fact, check the thread I wrote...
Has anyone else on this forum read the book Hypothyroidism Type 2 by Dr. Mark Starr? I am reading it now and it is a very interesting book. Starr is a medical doctor who has a pain and sports...
Hi Hazelnut, I think if I were in your shoes, I would cut back to 37.5 mg. Did you feel okay on that dose? From everything I have read, I'm coming to the conclusion that it is more important to dose...
What are your symptoms and which medication are you taking?...
Hi Mrsbugzy, Wow, you have been gluten free for ten years, that is really something. The biggest problem I had was finding a good gluten-free bread. Do you make your own? Do you have a good recipe?...
Hi Jazzmynn, Have you had any lab tests done lately? I did have a lot of those symptoms before I started on thyroid medication, but I was also going through menopause so I never was quite sure if it...
Hi hazelnut, It sounds like you might be taking too much synthroid now. Those are all symptoms of being hyperthyroid. I would definitely talk to your doctor and cut back to what you were taking....
Hi Penngurl, Are you feeling any better? I really hope that the levoxyl did not start a flare. Armour thyroid is a "natural" thyroid that is a desiccated thyroid powder made from pig thyroid. It is...
Hi Barely Existing, It sounds like you are still suffering from hypothyroidism even though your lab tests are "normal." The first thing I wondered when I read your post is if you have ever taken a...
Hi Penngirl, I bet you are freaking out. My daughter has UC or Crohn's so I know what you are going through. I never noticed Synthroid making me worse but I always have loose stools. I am on Armour...
Hi Buzz, I was just going to say that it sounds like Raynaud's phenomena but I see Tired Girl beat me to it. You do have a lot of symptoms of hypothyroidism, fatigue, constipation, lump in throat,...
Hi Rose, I've been thinking about you. That is a really good idea that you are going to see an endocrinologist. I was wondering if you have ever had your thyroid tested before this? I read a book by...
Hi Sara, I have to second Rose's post. Hypothyroid symptoms are common for a lot of other conditions. What bothers me is that you are taking Synthroid but your TSH is 0.3 which is very low, even in...
Hi Katie Bell, I haven't experienced the stiff, swollen fingers that you are describing. However since you did have thyroid antibodies I would say that you are suffering from Hashimoto's so it's...
Hi Kim, I have never heard that people with Hashi's can't take ARmour. Just like Swimom, I feel so much better on Armour. I started with ARmour, then it was hard to get so I was switched to...
Hi Dany, The first thing that I thought of when I read your post is that depression IS a symptom of hypothyroidism. I would take just the Armour and see how you feel or maybe it would be best to wait...