Thank you guys. All I want is for her to come home so we can get started on the pk protocol. Fingers crossed we can get her home before wednesday....
I love reading positive words, trav. I know there are many on the forum, including myself, who are craving positive messages. You are a beacon of hope. Thank you so much. This lightened the heavy...
Hey guys .... some news. Mom was admitted to hospital two days ago. She had a fall... not too bad, there was no fracture, but because of the whole lack of home health services, she was supposed to...
Full disclosure, because I have had a rotten couple of days with my mom being hospitalized for a fall, and now having to stay because of additional swallow studies that may lead to a g-tube, and this...
thanks guys. I probably won't for now then. Meanwhile, it's been a very stressful and emotional day for me, dealing with social workers, new doctors for my mom. I need a bit of a break...
YAY!!!...
Hey all ... with us all engaging in therapies that are unorthodox according to the medical community, have you told your regular doctor. For example do I tell mom's neurologist about lyme and pk...
Hey guys.... so we have another appointment for next week with another llmd who specializes in something called the pk protocol. It comes recommended by my primary llmd. Supposedly it is a lipid...
So good news .. after sucking up my pride and contacting the social worker, she somehow fixed the whole insurance problem. The details are super complicated, but at least I think we may have a home...
Facing similar issue with my mom's zithro. The pharmacy only gave 6. However, I noticed on the label that it said I had 2+ refills, 84 tabs remaining. So I wonder what will happen next. will keep you...
Hey all ... sorry for delayed response and thank you for all your kind words. Mom has medicaid and qualified for live in care, but she wants hourly 12 hour/day care. Getting that changed requires a...
Yes, sarah. Just wasn't sure after how many days I should start a new med. Thanks TB666!...
Thanks guys. Follow up question ... how far apart should we space them...
Hey guys, Mom is finally starting the PO regimen until we get the PICC in. I just have an important question - should mom start these all at once, or one at time. I emailed the doc just now, but I...
You will be in my prayers too, sailorkim! Have faith!...
Hi Neziv. We are kindred souls . My mother has the same diagnosis. It has been extremely difficulty, frustrating, painful. She cannot move her legs, right arm is now very weak, and she slurs quite...
I need to vent. We have been trying to get a home health aide for my mom for more than 2 months now. There have been insurance issues, ranging from them "not getti g" the prior authorization to "Not...
I'm going to ask mom's llmd about this. thanks for the tip....
Hi Sailorkim! My mom is in a similar situation as you - new "als" diagnosis In September 2014. She has been steadily declining and it has been Incredibly stressful We got the igenex test done, which...
Thx Traveller! Your words of encouragement are bringing tears to my eyes; this is overwhelming for all of us at home. Thank you....
thanks girlie! I come back home from a business trip tomorrow. Will give super hug to her then :-)...
thank u....
angi, I think you and I are on the same page (well you and my mom). Will be taking this advice to heart as well. Thx!...
Hi guys, Mom is on 12/12 drops twice a day of the cats claw and banderol, have been going up by 1 drop each day. we are going to switch her soon to an antibiotic regimen by her LLMD. However, she has...
Just got email from the LLMD (on a weekend no less!!). She reviewed the Igenex labs that we did and said that my mom is also exposed to Bartonella and to anaplasmosis. We will definitely have to do...
how exciting, Chapelle! Let me know if there is another fundraiser in the near future. If it is in the NY metro area, I am more than happy to lend my support!...
I need to have a more complete discussion with the doc once we have more info. I wonder if part of the reason she is thinking of this pk protocol is because we are on cowden protocol. I should ask...
Very good point, rowingmom. I think in 2 weeks, once we have Mom's complete nutritional and immunologic work up done we will have a better idea with the plan of action. I myself am leaning towards...
HI guys! Mom finally had her first llmd appt yesterday. The doctor was wonderful, very well informed, and actually gave us options for treatment. This is the first time we actually feel hopeful. She...
Thank goodness!!...
Bump .. any more advice, guys??...
This is one of my mom's symptoms. One of the things that is really helping is the Epsom salts foot baths with cayenne pepper and mustard. It's one of her methods of detox, but incidentally it is also...
thank you!...
good question, I have been reading it described as being "in remission" once you are symptom free, so it suggests that one could live without taking meds or supplements after it is under control....
Thank you, tb. Quick follow up question: is the list for current symptoms only or for symptoms since she got sick??...
Hey guys. Finally, mom has her first llmd appt on Thursday. We are very excited, but I am secretly also nervous/scared. As you guys can see on my signature, m has als type symptoms - she is still...
That is wonderful news, Chapelle!! all of you guys are my inspiration and my hope that mom will heal....
Oh guys ... your posts give me hope for my mom. Since starting home lyme therapy, her arm is weaker. Her legs are already shot, so it's pretty scary. The fact you are saying it improves eventually...
Hi. My mom (age 54) has ALS type neuro lyme so I can tell you our experience with the neuros. My mom first saw the first neurologist after 3 months of symptoms in July. He did an electomyogram by the...
very true traveller. I apologize if I offended anyone, esp. abene1. Sorry....
You are right as well, lyme1. This is unfortunately an extremely touchy subject among MD's. Although I will say that given abene1 is ill, I am surprised the hubby is not at least willing to concede...
Is there a way to just get your doc to sign the Igenex lab form so you can get rolling on the lyme tests? I hardballed my mom's neurologist to sign the form and then we went to an outside lab to get...
Good point, lyme1. She only used them once last week and did not like it so she stopped. One other quick question, is it normal to have worsening of symptoms that looks like progression. I ask...
I feel you. I cannot deal with my mom's neurologist. You know that she won't even return my call for the lab results -it has been a week. Thankfully I requested them from the lab itself so we have...
Hey guys, So my mom is back to the cough and phlegm, has brain fog, and is feeling a lot of fear/hopelessness. I keep reassuring her that it is the herx, but let me tell you that I cannot wait to see...
This is such a conflicting and stressful situation for you. I am so sorry to hear that he is being so closed minded, especially since he is a medical professional and he has the potential to provide...
Such a deception! It is unbelievable (or perhaps it is believable) that these companies would prey on those who are trying to live a more healthful life and but can't afford the fancy health store...
His book was the first book I bought when I started looking into treatments for mom. Very easy to read, not overwhelming. This is the basis for my mom's treatment right now while we wait for her LLMD...
Thank you Guys. Baby steps, baby steps ........
Good news ... mom is finally getting over her first herx! I just got back from her place and she looks more alert and awake and peppy. The cough is gone, no more mucusy/saliva stuff And she is...