Hi Crystal, I live very in the same area, been sick for a very long time. If you want you can e-mail me, I can't email you for some reason. Would love to talk with you. I see a doctor in New York,...
Just Elle--is there any way you can enable your email address for private messages?...
I totally relate, I'm hopeless, just got home from doc appointment and he pretty much told me that my remaining pain was my "fibro" i've had for all these years. Back in 07 I had a wb and the only...
you can also watch for free at hulu.com...
someone I met kind of in my area offered to let me use a rife machine one time that he builds himself at his business. My question is, is it a good chance I will herx from this one time using it or...
t34flygirl- I know it's all hush hush about treating lyme because doctors have lost their licenses over treating lyme, I mean not decades ago, within the last 10 years, I know we should be thankful...
wondering who here is treating for babesia with never having a positive test. I am into my 2nd week of Mepron but had two negative tests for babesia. I do feel I may be herxing a little from it, but...
just wanted to show this to anyone that may doubt their wb results, and especially not to listen to any infectious disease idiot, and although they are following "guidelines", there is no reason they...
this is taken from a really good article that I just recently found, if you look at #4, this is the only positive band you need. You only need ONE positive band w/certain ones. I wish I would have...
I would go directly to an llmd, don't waste any time, I was diagnosed w/fibro 8 yrs ago, come to find out it is lyme, I have been fighting so hard the past year, I feel like I may die from this (I...
lyme88-your the first person I've ever seen , besides me, on Augmentin. I'm on augmentin/mino/amanadine cycled w/flagyl, one wk a month for the flagyl, w/iv rocephin, I've only been on this new combo...
maxam- did you treat each time months after all your symptoms subsised? also another thing is they're using a the cd57 marker as a predictor if you will relapse. According to a famous llmd, if it's...
godlives38-you and other posts are making me cry, I feel your pain, it sucks so bad, I can't even move right now, I can barely take my meds, my whole body hurts, I am so depressed, my mom and friends...
Traveler-I didn't think you were pushing me at all, just giving thoughts and I appreciate that, believe me, I do. Everything your saying makes sense. I wanted to go off all antibiotics except...
traveler-thnks for the advice, I do appreciate it especially at a time like this, my life is really upside down right now, my sleeping schedule is way off, I'm in such a dark place right now and...
+lyme-yes I called my doc, gave them the fax #, I don't have the fax for them anymore but their , but their # is 1-800-553-7429 their in Florida and that was only a few months ago, so should still be...
+lyme- I was on ldn and paid about $17/month from an on line pharmacy in Florida. I gave it 3 months and I didn't think it did anything for me, where do you get it from? I got it from Skip's...
+lyme-i can really relate- I'm on augmentin and mino alng w/others and they are seriously killing me, I'm in so much pain, total body I just cry and cry, I wanted to go and get accupuncure and I...
HopeOn12-I usually don't really state my opinions but I'm going thru the same thing, I worked crazy since 16 years old, I'm 31 now, work was everything to me, was working even 30 hrs/wk in high...
A consistent sypmtom I have had for years has been my whole spine seems inflamed causing severe total back and neck pain, branching out to extremities, leading to just total pain and exhaustion,...
any one have unexplained nose bleeds through the lyme struggle? mine I've had throughout the years, sometimes gushing but pretty easily controlled? Also had anyone's face broken out in like a pimple...
I'm looking at old western blot from 2007 when all my lyme tests came back negative, since then 1 year ago almost everything positive and I'm being treated. But I'm curious if anyone that was...
lighterbeing- When I callled walmart for the price of biaxin it was three hundred and some dollars--don't know the exact price, but over 300 dollars--I'm now off of it because of insurance and on...
I was wondering this myself, as my insurance is starting to deny some of my oral antibiotics, saying they exceed the recommended doses, even after my doc sent a letter of medical necessity, unreal...
Andy-I'm also going to be 31 in a few days and it really is so frustrating, I think I can also trace a lot of my symptoms back to high school, mostly just fatigue, I blamed it on working a lot, which...
yes, def. this was also my first symptom 8 years ago when I probably got this nasty disease and didn't know it. It only lasted a few days, like my brain did not want to shut down and I could not...
I was wondering if this is a main symptom for people? I hear a lot of talk w/lyme about body pain but mostly in the joints, which I have in my hips, not really in my knees, but do a lot of people...
thank you for the info-i'm on 200mg twice a day along w/augmentin and amandandine, plus my iv rocephin I think I'm going to try and stick it out I have a few more days then i go to flagyl for a week...
So I've been on minocycline and augmentin for about 17 days, since started, I've had burning headaches in forehead and neck, extreme nausea, and vertigo. I can't exercise or move at all or drink...
thanks guys- it's just hard for me right now trying to figure out what has been wrong w/me all these years. Yes I'm on the lyme forum too. When I was being treated for fibro through the years my doc...
I was just wondering if anyone knows their cd57 level, I have been struggling w/lyme disease for a long time, diagnosed officially one year ago, but diagnosed w/fibro 9 yrs ago. I still don't know if...
do you take both together and do you have to start slow like it says on the bottle one drop then keep increasing it do you know thanks?...
So I started mino/augmentin combo and just read you should not take mino w/a penicillin , it can cause one or both drugs to lose its effectiveness. I'm going to call my doctor but obviously he knows...
hi, does any one take samento/cumanda and do you pulse it or just take it every day? thanks...
thanks everyone for the posts it's just so scary-just getting so depressed and hopeless more and more each day-but I won't check myself in anywhere because I know they won't give me my antibiotics....
So after 8 years of misdiagnosed lyme, 9 months of aggessive treatment, iv's and oral, and other meds, I am now bedridden and out of work. Why is this happening? I came down with very severe cold...
avamayva- I couldn't help but seeing your post, I'm constantly struggling between do I also have fibro? I was diagnosed w/lyme one year ago, but diagnosed w/fibro 9 yrs ago. 9yrs i was tested for...
So I've been on Biaxin, Ceftin, Amanadine(3wks of months), then flagyl and amandaine 1wk each month, my doctor said he could try me on minocycline + augmentin +amandine, still cycled with the flagyl....
Can you tell me what https://sites.google.com/site/marylandlyme/help-for-you ...
I know I had aetna, they paid for my iv's in full, not even a copay, all my orals(with small copays) and now my work switched to horizon blue cross of nj, they don't want to pay for anything, my oral...
I have had interst. cystitis for years, I was seeing a pelvic floor specialist but had to stop from being so sick from lyme. Yes these are symptoms, sometimes after I lay down in bed for the night, I...
was wondering if any one is having these done immunoglobulin shots I think they are called, im injections, my doctor is highly suggesting them one every two weeks, 260 per injection and more...
thanks everyone-yes this site seems a lot friendly that some of the other forums I'm on. I really appreciate all the info, it's just so frustrating that I know for sure now I have lyme , but not so...
Hi, I am brand new to this forum, but not new to lyme forums or lyme disease itself, I was diagnosed about one year ago July 2011, I'm from nepa I had the bulls eye rash on my right outer thigh and a...