Hi there, I was dx'd with Lyme, Babesia, and Bartonella in April of 2012. Since then I've been working with a great LLMD who has helped me improve, but I have also had some regression and "dips" in...
Hi there, just wondering if anyone on the forum is taking Thyrosol by Metagenics for thyroid fatigue? It was suggested to my by my LLMD. Thanks, Kristo...
My signature listed all my meds from the last round of treatment. Right now I'm on Plaquinel, Azithromycin, Cefruoxime, Mepron, Probenecid, and pulsing Flagyl 2 weeks on, 2 weeks off. Kristo...
Just Googled and found the medication name... Probenecid....
Hello, I'm wondering if any of you that are taking Mepron have been prescribed another pill that is used to assist with absorbing the Mepron. My LLMD prescribed Mepron along with another yellow pill...
Hi Traveler... no worries... with how many of are on this forum, I'm amazed that you guys get back to each and every one of us! It's a true showing of how committed you are to helping your fellow...
Thanks again Traveler, will do! :) This forum has such supportive members! :)...
hope2bhealthy... love it! Will look into making on in the garage! :)...
Thanks for the kind words traveler. I am doing detox baths nightly now. As for keeping the environment calm... not as easy to do with a strong-willed 4 year old son who just started JK, a husband who...
Just wondering if anyone who has experienced Lyme and/or Bartonella Rage have found that while treating Bartonella it got worse? I'm on a pulsed treatment plan (pulse A for Babesia, pulse B for...
o.K. folks.... here's a query for you. I've been battling whatever this is for 2 weeks now. It started with a very sore throat, then sore ears with pressure (like they were blocked), then sinus...
Thanks Shabbychic, I did think that's a possibility... I guess it's a catch 22... If I don't them I can't breath and get Bronchitis (horrible feeling... feels like wet sand in my lungs), if I do then...
Hi there, I'm currently sitting at my desk at work shaking, with ringing ears, nausea, and the start of a killer headache. I'm in my second phase of treatment targeting the Babesia and Bartonella...
Hi Onward, in my experience you will not find a LLMD in Ontario. Political climate surrounding Chronic Lyme makes it impossible for doctors to treat in Canada. My suggestion is to look into LLMDs in...
Hi there, just wondering if anyone has had success with using Beyond Balance Herbals BABS 2 and BAR 1. I'm currently on ABX treatment for Lyme, Babesia, and Bartonella. Taking Clindamysin and Quinine...
Thanks Traveler... yes doing detox baths... did three last week... will increase to 4 or 5 this week. I'm sure that with the new drugs, and my stress level increasing as my son started JK recently,...
Hello all, So I recently had my 3 month appoinment with my LLMD. They were thrilled with my improvement during the first 3 months... I was really feeling about 50% better with pain, and about 80%...
Wishing you all the best achievinggrace... enjoy yourself. Thanks for the support. :) Kristo...
Thanks LupnerRN... thanks for the Bart cycle information... I knew the Babesia has a two week cycle, and the Lyme had a monthly cycle, but I didn't know about hte Bart cycle. Any chance you can tell...
Thanks achievinggrace... well put and I appreciate the support. That's totally how I was looking at it... I feel good, let me have a little fun for the first time in 3 months. Just need to make sure...
Hi there everyone, So I was diagnosed back in April of 2012 and started my treatment for Lyme, Babeosis, and Bartonella in early May. I have to say that I have been super lucky with not many adverse...
Hi there folks, just wondering if anyone has had this experience. Started my treatment regime (Plaquinel, Biaxin, Doxy, Flagyl (2 weeks on, two weeks off), nystatin, and all the other supplements...
By the way Sayersn... I'm also in Ontario... just north of the GTA. If you need an ear, let me know, or if you'd like my LLMD's information PM me and I will provide....
Hi Sayersn, I was diagnosed with Lyme, Babesia, and Bartonella clincially by my LLMD in Plattsburgh, NY. They suggested just running hte Lyme Igenex tests as she was positive that based on my...
Hi AvaG, look into Babesia... I have that in conjunction with Lyme and Bartonella... yes the typical tri-factor. Your symptoms with the pain and pressure in the chest sound a lot like my Babesia...
God bless Dr. H. !!!!! I wish I was there in person to give my applause and standing-O for his presentation... we need more LLMD's like him to pursue the studies and open the communication lines with...
Hi sabrejohnson, My advice also is to contact canlyme... they have ontario reps. who can assist you with a list of LLMDs, the catch is they are all in the US. There are no doctors in Canada treating...
Great ideas achievinggrace... I like all of those. I'm super luck to work in a small office that is VERY supportive of what I've been going through... I kow... totally not the norm, but I thanks...
Thanks Summer3, I'll be sure to watch for those types of reactions. Still just on the Nystatin now, but yeterday and today I've had heart palpatations and my left hand feels cold and I can't fully...
Hi Summer 3... it's good to hear there are others out there willing to share their treatment and experiences... thanks for your response. The Doxy phase for me is 1 100mg at breakfast and dinner for...
Just wanted somewhere to express some nervousness about starting my treatment regime where other Lymies can understand what I'm going through. I started Monday, and so far so good. Here's my...
Thanks to all of you for your insights and assitance with my questions. I am indeed following both an antibiotic treamtment program in tandem with a multitude of supplements and probiotics. My LLMD...
Hi Rowingmom, and thanks for your speedy reply. We are with Sunlife for our insurance (both my husband and myself). Does your plan specify that you have "to be eligble to have the drug covered, the...
Hi there, looking for any Ontario Lyme patients that are seeing US LLMDs... I have just had my first appointment with a LLMD in NY state, and been clinically diagnosed with Lyme, Babesia, and...
Unfortuatley there are not many LLMDs in Canada, and the ones that are were forced to stop treat Lyme or have their medical licences yanked. Try finding and watching "Under Our Skin", and if you...
Hi there, unfortunately there are no LLMDs in Ontario at all... I went through this same search a few months ago. I'm scheduled to see a LLMD in NY in two weeks. Try the Canlyme.com website and use...
Hello all, I'm wondering if anyone out there has had a negative reaction to accupunture, and if so what the reaction was? I had my first accumputre session with my Chiropractor last week... he and my...
Okee dokee SleeplessNJ... will work with that. I hear no dairy too... so I guess eggs are out?...
Thanks everyone for the great information. Supplements are a whole new world to me... toher than your run of the mill daily vitamins, etc. I have had a pretty bad B12 deficency which I understand...
Hey guys, I'm waiting for my first appointment with a LLMD in the US in May, but seem to be going through some sort of vicious flare right now. I've got the normal joint muscles aches/pains, the...
Hi Bella, I've had that feeling occasionally... really weird. I've not been to see the LLMD yet... still waiting on that and starting treatment. Right now the internal vibrations in my core and...
Thanks for all the feedback guys... I'm well into the research and am just amazed that people afflicted with this have to do so much themselves... I cannot believe that the US and Canadian Goverments...
Hi mmpixie, I know this sounds crazy given I assume you are in the US, but contact the Canlyme site... they have a wealth of doctors names they just sent me last week for doctors in the NY area. We...
Hi Laur 3... contact the Canlyme site representative for Ontario.... she can giv eyou options in Buffalo and other areas of New York. No doctors in Canada are currently treating Lyme. I've just gon...
Hi rowingmom... yes I've heard those podcasts, adn also watched "Under Our Skin"... but the end my husband was like..." we need to get on this now and get you well, no matter the cost"... so good to...
Hi all, Just a quick update. Lyme test came back negative... surprise, surprise. /community/emoticons/rolleyes.gif Still having a wicked flare of something over this past week... can bearly function...
Thanks for the clarification rowingmom... I wish the best for your daughter's health. Kristo...
Hi rowingmom, so are you suggesting going the US doctor route in full and paying for the treatment, or not going that route? I'm a little confused... sorry for the naive response, but this is all...
Wow, thanks everyone for the wealth of informaiton to get me started. This is really helpful and useful information! On a day like today with excrusiating rib pain, I'm glad I have somewhere to...
Hi all, I'm usually over on the Fibromyalgia site, but recently my GP and I have suspected that maybe what I've been suffering from is Lyme. I was Dx'd in March 2011 with Fibro and started on...