Thanks for the reply Traveler! Is there a way for me to search within this forum for issues im having? I feel like Lyme, or the treatment for it, is really starting to get to me mentally. I am such a...
So for the last week my urine has been smelling a lot like ive been eating asparagus. Except I haven't. I'm on many supplements as well as cefdinir, and have been for about 3 months but this just...
Ok awesome thank you! I will look into it! I do take a supplement called a Drenal that works wonders to my energy level. And thats EXACTLY the feeling I'm having. "almost" hard to breathe. And I used...
I was pretty upset earlier when I wrote this so forgive me for being a little vague. I experienced some air hunger when I was doing a z pack a few months back in a different round of treatment. I...
I havent been on in a while because I've been to busy just trying to get better and keep up with as normal of a life as I can possibly have. I have gotten really good at dealing with taking handfuls...
She didnt say what the numbers were. It was just the receptionist. I could be off :/ but it seemed like it meant I had either bart or babs and she needed $$ (surprise!) to run the test to find out...
My LLMD called me back today and said my latest round of Igenex tests came back with the KDA test undetermined. Does anyone know what this means?...
Is short term dissability through your work? Insurance? I asked my GP about it when I started my first round of ABX and she told me unless I had Geico ( I believe it was them. And the spelling doesnt...
Does anyone know about FMLA Laws? Do they vary from state to state? I was told by my HR detp that they only allow you to be on FMLA for one year. I was on it a few years ago when I had my daughter,...
Have you been on any kind of meds since your last cd57 test? ABX or herbs? If not I would assume another cd57 would be a bit redundant from what i've heard ( I'm NOT a Dr. by any means, just sharing...
Love this idea. At the moment i'm not on meds and ugh, it hurts. But i'm naturally a busy body so I try my best to push through. 5:15 Wake up. If i'm lucky my hubby and 2 1/2 year old stay asleep...
Thanks for the post! I've been off my meds for 3 weeks now that Im waiting for my appt with my new LLMD and it started with foot pain (outer sides and 2 smallest toes on both feet ) and now the foot...
I'm pretty sure you can go down to your local health dept and get tested for free. Atleast thats how it works in OR and CA. Is it routine in your area to ask for names and contact info of your sexual...
I enjoyed reading your story and its nice to know theres people reaching out in my age range. People are so very kind and helpful on this forum and you will get lots of support and knowledge on this...
Umm thats a silly thing for your dr to say. You're married. Of course your going to be having sex. Well hopefully. It hasnt been proven but I also think its a possibility. My GP told me to wait 3...
I dont think this is usually the case, but I knew something was wrong as soon as I woke up the day after hiking. I was bit right on the lymphnode on my neck and when I woke up I had flu like symptoms...
Im curious about this as well. The bottle says 30 to 40 drops in small amount of water 3-4 times daily between meals. Does this sound right or?...
and one of those "furminator" pet brushes...
Garlic! It keeps flees off too! I think nutrional yeast as well but I could be up in the night on that one :D...
Now I'm really discouraged. I called to see about getting a clinical diagnosis before I spend the almost $1000 on tests that the Dr. already told me were not reliable. The receptionist was very rude...
Its not to the point where I cant walk and hopefully it doesnt get there :( Now I'm wondering if I could have my Dr. just diagnose my symptoms rather than me spending $1000 on co infection tests that...
Well....as much as that stinks, I'm glad to have my suspicions some what validated! Almost all my symptoms point to Bartonella. Ready to get some more treatment and be well!! Does it make sence that...
Ahh! Lots of the same here! My husband didnt understand for a long time. I was in pain, confused, scared, and quite irratated most the time. I was in a why me? state for quite some time. He didnt get...
I know i've seen posts on this topic before but i'm looking for some clarification. I've never had this before, as a symptom of LD or otherwise. The pain im feeling is on the outer edges of both my...
My Dr. gave me some hormone cream called adrenalcalm for anxiety but ive found if I rub it on sore muscles its works great! Doesnt do a dang thing for my anxiety though haha. Just a thought. Who...
I also know of one in Southern Oregon. Its close-ish. I can't reccomend him because I have yet to have an actual appt but if all other options fail I can give you his info :)...
Thanks for all the input and encouragement :) I guess my biggest conflict is the fact i do NOT have the money to see this Dr. or get the tests run. I've never been in debt to anyone for more than a...
Would putting it in a capsule work? Whats a good dose? I love cayenne so that would be easy for me. I make popcorn sray a little water on it with a fine mist squirt bottle then add nutrional yeast...
I did doxy (400mg) and zithromax (500mg) for 3 months and for a month in there I was on 1500mg of flagyl. The LLMD I'm planning on going to is the only one within about 500 miles of my home and I do...
And no I have only had this one consultation with a LLMD. Only my GP has treated me. And although I feel and have been told she is more educated on lymes than most GPs I do think LLMDs would have...
I know I should. And I will. I just dont want to! My main goal is to have another child (we were trying when I got bit) and I'm not irresponsible errr maybe thats not the word....im not "somthing"...
Went to my GP who had been treating my lymes with what knowledge she had. Test results came back after 3 months of meds and she has said my lymes is cured. Well not her words. She said its gone. I...
Thanks Don! Some really good info in those links, I appreciate it!...
Before I got bit I always had a super low temp. It was normal for me to have a 95.8 to 97.1 degree temperature. It's no huge deal or anything i've just noticed since I got bit im always running a...
Thanks so much for the post. Its nice to know there are people out there who are fully recovered! We all be one day! Thats my hope. And bars...Im sorry. If someone can't handle you at your worst,...
The flagyl was 500 mgs 3x a day so 1500 a day total. Sorry just checked! thats what I get for relying on my brain!...
I was on 200 mg doxy 2x day ( so 400 mgs a day ) 100 mg flagyl 3x a day ( 300 mg a day ) and I did the zithromax one week a month 500 mg a day. Just listen to your body. I'd been on lower doses of...
My Dr. Prescribed me that mix. About 3 weeks in I started getting a terrible taste in my mouth and my eyes began to twitch ALOT. After some tests I was told the Flagyl was causing high amounts of...
Has anyone else noticed heart palps as a side effect of Zithromax? I take it for one week a month each month and I think (lol) thats whats causing an increase in heart palps. They start about 2 days...
I'm with Rori...it sends me to a website but no actual spot to see a trailer for a movie...
LOL @ opugirl! and kds86 you're not alone. Although I'm not male lol I am 24 and going through this struggle. I'm sure its just as hard if not harder for the people who are ....ummm further along in...
So the last few days I've been experiencing "air hunger" or what I believe it to be. It then ofcourse makes me have a panic attack no matter how hard I try and calm down. Which then makes my heart...
Hi all! So I just took a step in the right direction, and although it may seem like a baby step I'm pretty excited about it! Within 200 miles of my home there is one LLMD and to book an appt you have...
I just got bit last year so I was given treatment right away. It was just the precautionary 3 weeks since lymes wouldnt show up that soon anyways. My Dr. is not a LLMD but she seems to know alot more...
I am also positive for IgM band 23 along with a couple others. I am off balance and dizzy alot as well as twitching of my lower left eyelid. Is this specific to band 23? Like you I do not feel...
I'm pretty new to the lymes treatment but I do know I was put on Flagyl and I couldnt handle it. It killed my liver and made me feel awful. My Dr. took me off it and within 2 days I was fine. This...
Also wondering about natropathic Drs. Ive noticed alot of LLMDs are naturopaths. Can they still prescribe antibiotics? I understand rx isnt always the best way to go but I was just curious. Thanks!...
Sio it seems even though my Dr. isnt a LLMD she does have a better understanding of lymes than most "regular" drs right?...
Thanks for the reply. My labs were sent to labcorp and right before it says CD57 it says HNK1 . Here in a month I have another full set of the (same) tests done by lab corp again. My Dr. seemed so...
I'm hoping someone can give me some insight on my lab results since there is so much information I am starting to become very discouraged and confused esp since this seems to be a disease with so...