Thank you to all who replied. I will look into some of these options....
Hello All, I joined this site a few of years ago when I was first diagnosed. I have since been receiving treatment from an LLMD in the Boston area who studied with Dr. Horowitz. She is fabulous and...
Sarahm620, feel free to email me and I can give you some more information about a doctor in Maine....
Hello All, I have not posted on here in quite a while. I got a little burnt out there on living and breathing my illness. However, I thought I would stop by to report that after a year of treatment...
Before I started treating aggressively, I was taking just doxycycline and an herbal tincture. When I switched docs, she had me add Rifampin, Nystatin, and Serra Peptase, as well as pulsed...
I was having pretty bad monthly flares with my menses. I did a couple of things - one being starting bioidentical progesterone cream to help balance the hormones. The second was to treat very...
All good advice! I take a ton of probiotics daily (80 billion), so not sure if more would help or not....
I'm very sorry to hear about your son, that has to be really tough. I would work on finding a Lyme Literate Medical Doctor, ASAP. There is a way to do that on this forum, if you check out the newbie...
Hello All, I am now into my 8th month on antibiotics (various ones). However, over the past month or so I have noticed some really weird stuff going on with my sense of taste and smell. My sense of...
I'm glad people are taking about this, because I have experienced some seriously scary depressive episodes. It isn't a constant feeling, so I've been reluctant to go on something for it full time....
I get this a lot, which I think is yeast. Taking a diflucan helps. It makes everything I eat taste weird too....
I also don't think I tolerate NAC well. Causes a lot of nausea for me. The same when liposomal glutathione. Seems like a good idea in theory, but doesn't work out for me....
Thanks! I did have some coinfections, to include several viruses (EBV, HHV6, CMV), Q fever, H pylori, and either babesia or bartonella (not sure which; I was treated for both and seem to be...
I wonder what it means though. I always thought that feeling terrible means a treatment is working....
My LLMD put me on two rounds of Tindamax, 3 days on, 4 days off. She had me do the same with Flagyl about 2 months ago, but the herx was so bad we stopped after 1 round. I expected Tindamax to be...
Has anyone experienced a herx from simply changing the times of day they take their antibiotics? I switched things up recently, and something is kicking my butt!!...
Here's a link to the article: http://www.wbur.org/npr/195223507/the-lyme-wars-that-tiny-ticks-have-wrought ...
That's how I feel too. It makes people now think that they know about an issue....
Marigold, I thought the same thing when I read the article, but the NPR interview is completely different. He says there's no scientific evidence of chronic Lyme and he doesn't think that long term...
Michael Specter's interview on NPR is very damaging to people with LD. Very disappointed. He seems like nothing more than a mouthpiece for the IDSA....
If you want to email me, (activate your email icon), I could give you a couple recommendations. I'm in the Boston area, but my mother who also has Lyme is in Maine. I know of a couple in Kennbunk,...
I added coffee enemas back in February and now them almost daily. Seems like a lot of work, but I find them so helpful that I don't mind. I often get instant relief from them, incredible really....
Congratulations!! Such encouraging news!...
I had the exact same thought today: "What if I don't really have Lyme?" I can handle the aches and pains, but it's the mood swings and emotional instability that get me down. And the depression....
Hello All, Thought I would check in and give an update on my treatment. I had been on doxy for about 3 months, then off for 3 weeks. After seeing another LLMD who recommended 3 more months of...
Pathogen Killer, I'm actually in the Boston area. You may be confusing me with someone else....
Thanks, everyone! I'll post updates and let you know how I'm doing....
I will keep everyone updated as to my progress....
I seem to visit the forum in fits and starts. The last time I was here I was considering transitioning from antibiotics to herbal treatment for Lyme. It's been about a month now of being off of the...
Traveler, The blog post link that you included was very helpful, and I sent that to her. I have encouraged her to read/join a forum, but as you said, it is a lot to handle all at once, and I think...
Thanks, Traveler. I don't think she ever had RA though. She was complaining of typical lyme symptoms (achey joints,fatigue, etc) and doctors couldn't find anything wrong with her. They said that she...
Also, I'd love to compare notes, since we both live in Mass. I don't think we're allowed to post our email addresses on here though. You would have to active your little email icon....
I'm interested to see how it works as time goes on. I strongly considered buying one a long time ago, before I knew I had Lyme, and thought I was simply "lacking vitality"....
I should probably clarify that she is, in my opinion, falsely attributing her herx symptoms to going off of her arthritis meds. This is scaring her, and so she wants to go back on these awful...
Mystery, Thank you so much for sharing your experience. It is so helpful for me to hear all sides. Now I must deliberate.......
My mother was also recently diagnosed with Lyme Disease. She had been having joint pain for years, and was eventually put on medications for rheumatoid arthritis (Enbrel - an immune suppressant, and...
Hi Nan I am actually reading Dr. J's book right now. That is one of the main reasons I'm looking to stop antibiotics. I would like to restore my body to its intended integrity. I am scared though,...
ShabbyChic, If you can email me, I'd love to talk doctors and such. Jenn...
Nausea is completely new for me, so not sure what it's about. I think may have been a herx, since it went along with some other herx-like symptoms....
Traveler, Thank you so much for your feedback. What do you think causes the nausea? Is it the Abx or the Lyme? I will look into the ginger root, that's a good idea. Good for many things....
Thanks, bbrian. I am taking a healthy dose of probiotics daily, as well as saccharomyces bollard (yeast). I'm also incorporating some fermented foods into my diet as well. However, the nausea was off...
Katie, It sounds like you're herxing. I get very "herxy" around my cycle too, and it totally throws me off. I don't know if it's "normal", but it certainly happens to me....
Tom, I agree, trying to stay out of the sun is tricky and a pain. I live in Massachusetts, so this winter it hasn't really bothered me, but as we move toward the summer, it probably will. Perhaps you...
ToddPaul, Thank you for your feedback. I'm afraid you're probably right. I think I've had Lyme for at least a couple years. I've been tested for coinfections, and nothing came up, and so far...
I haven't been on here much as of late, just lying low and healing. I have come to a crossroads in my treatment, where I have been on doxy for 3 months now. I have made some improvements, but I still...
Okay, glad I'm not the only one wondering what the heck is going on here. I have felt awful for the last 2 days. Nausea like you would not believe....
I second the recommendation on checking out mthrf.net , particularly, the section on if taking too much methylfolate could be a problem. Here is what he writes about taking too much l-methylfolate:...
Hey Everyone, I haven't posted in a while. I've been riding the herx waves and slowly (I believe) trending upward. That is, until I sprained my ankle last night. I'm so unsteady at times, I just lost...
I just found out I have this gene mutation, at least the c667 one. I am about to start taking NeeVo DHA. Curious to see what it'll do....
I just started Teasel yesterday. I feel totally wiped out today, so that may be it....