Thanks for clarifying about the doc posting, Traveler. Also, sorry for such a long posting. I know that's not always easy to read. I'm still not so great at saying things succinctly...
Hi, I haven't posted here for awhile, but I wanted to update a little on how I'm doing, since I know that there can be a shortage of people who are doing better posting on these forums. You might...
I spoke with a disability attorney, and she said they have had success getting disability for someone by calling it "tick-bourne illness". This is in a state that doesn't officially recognize Lyme...
Update: Went to a a doctor today, and got a diagnosis for the rash on my mouth and face: impetigo. Ugh. I don't recommend it, it's very painful. She gave a prescription for antibiotic cream, and also...
Thanks, flowergal! Amazing how easy that is now that I see it! xrunner, I have the head pressure too, more low-level, but kind of constant, and I feel pressure in my eyes when I lean my head over or...
Hi LadyJade, I saw you asked for an update, so I'll try to give you a little of one now, and maybe more details later. It's definitely been a mix for me lately. Overall, I'm still with many of the...
I'm starting to address this too. I've focused exclusively on naturopaths and other alternative docs, because all the MD's I've seen have this air of smugness and arrogance that sets me off. I...
Hi Jacks, You might be somewhere near me. I'm sorry to hear you're having such a hard time. I know how hard it can be to leave your life and move back. It can feel like going backwards. Are you...
opugirl, Thanks for asking. I was just thinking of posting an update. I'm back at Hansa this week, and doing a lot better. It's really obvious I have more energy this time, and am less light...
Thanks Don, I've already asked Dr. Jo for a reference to an MD, but that reminds me I need to follow up with him. He was going to ask Dr. Je if he knew anyone....
Thanks, Lymer. Yeah, this disability thing is crazy, on top of being sick. I wish you well on your application and financial concerns! I guess the lack of response is because no one reading this...
Well, I talked to Dr. Jowdy yesterday. I'm glad he was honest with me. He did have ideas of things I can take to help. But he also said in no uncertain terms that my profile shows a "genetic mess"....
Ok, I just realized I asked for private messages, and I don't even know if this forum has them. If you have any leads for me, please post me a message here, and we can then figure out how to exchange...
My experience with biomat is mixed. I've used them at the Hansa Center. They use them in both the massage room, and while you're on the LUX machine. I found that I was fine with the mat while on the...
Hi all, I'm feeling a little better than I have, and finally feeling up for tackling the disability issue again. Isn't it ironic that when we're most needing disability we don't have any energy to...
WWJD, yes I had the test done through Hansa. Actually, I have an appointment to talk with Dr. Jowdy about it today. I'm just feeling a little discouraged, because both he and my naturopath have...
I know this is a bit of an old thread, but I'm wondering if anyone is still here and can help me understand the difference between the MTHFR mutation, the DetoxiGenomic profile, and 23andme. I'm...
Walking, I'm also glad you found good treatment at this site. I had a similar experience at another site, and it shocked me so much, after I had made so much effort to express myself at the height of...
I just got my results back for this test. It seemed to me that I have a lot of polymorphisms (mutations, I guess) which make it hard for me to detox. Most of the genes I had variation in, I had it in...
Thanks Don for the instructions. If it's all the same, I think I'll keep it this way. I'm just not up for a lot of cutting and pasting today. Denise, thanks for the offer to talk. I may take you up...
So, to clarify, I posted replies to this thread under a new heading, which I have now changed to "Hansa Center Update". As WWJD suggested, this post is getting a little long, and I also don't know...
Just to clarify, this is an update to my earlier post "Starting at Hansa Center tomorrow". I apparently hit a wrong button and made it a new topic. :blush: Not knowing how to move it to the original...
Oh yes, I see. Still getting the hang of this. WWJD, I want to respond to you. Even without knowing the full outcome yet, I would say yes, I'm glad I went. I felt very supported at Hansa, and I...
For some reason, my responses haven't been posting here. I tried posting an update, but apparently lost it. I'm sorry, maybe I did something wrong. I'll have to try and rewrite the post. Be patient...
Hmm, well, first let me say that my energy has been much better since leaving Hansa. I have been going on long, brisk walks, where I barely felt like walking across the parking lot before going. My...
Thank you all for your support and responses. It's feels hard for me to get my experiences down, but when I do I guess I'm not so bad at expressing them. Thanks for helping me see that. Heathersdad:...
Thanks for asking opugirl. I'm sorry I haven't posted for a while. Internet isn't the easiest medium for me, so I sometimes engage it in spurts, in spite of my original intent to be more consistent....
Thank you everyone for the support and prayers! Don, the last sentence of your post made me teary. I really feel that support. I feel lucky to be here. I seem to have had a breakthrough in my...
I have had a symptom of feeling like breathing takes effort, like something heavy is pushing on my chest, and I can't get enough breath. I've also had pnuemonia twice this year, so this might...
Nan, thanks for the offer of sharing around ccsvi. So far, it hasn't come up again in my visits, but I expect to learn more this week. Wow, where has the time gone? I expected to share more on my...
I've been monitoring my body temperature more lately. I've known for years that it tends to be low, anywhere between 94 and 97.5. Recently I've noticed it sometimes getting up in the 98/99 level,...
Sent to MO group, and posted on facebook awhile ago. I'm wondering if there's some kind of glitch with the site? My mother was unable to to sign, and I was only able to sign after trying several...
Hi sam, I know I often get stomach pain in that area. For me it's associated with a hiatal hernia, where the stomach pushes up through the diaphragm. Coughing and lyme seizing seemed to have caused...
Thank you guys for all the encouraging responses. Thank you nan for letting me know about Care Credit. I wasn't aware of that, but am looking it up now. Well, I had my first tests and doctor's...
Yes, thank you for your post. I am 36 now, and have pretty much resigned myself to not having children. I used to assume that I would, until I realized my health was getting worse, and was too...
Hi all, I'm pretty new to this board, so I thought I'd introduce where I am and where I've been. I'm sorry for the long post, but not sure how to make it shorter. First of all, where I am is in...
Thanks, Heathersdad. It is through reading some of the postings here, as well as reading Jernigan's book, that I decided to go....
Thanks for posting this thread. I'll try to follow it, as I'm going to Dr. Jernigan's clinic next week and will probably be taking some of the same things. I'm new here and not always great about...
Hi, I've been reading about cistus here. Interesting conversation. I'm particularly interested in the claim that it makes you repellant to ticks. I was looking up sources and found several places...
Butterfly, thanks for sharing. I was getting both glutathione pushes and IV drips. For me, the drips were more painful. There was a lot of stinging and pressure. They had to adjust it to go very...
I reacted to IV nutrients + glutathione last year. I remember feeling foggy-headed and barely being able to walk afterwards. I consulted with an LLMD who said I was too sick and sensitive at the time...