I have seen it being prescribed with artemisinin for sure. Not sure about azithromycin....
I'm hoping some of you who have been treated with Malarone for babesia, might tell me the dosage and length of time you were prescribed the medication. Any help on this would really be appreciated....
My daughter was tested a few months back and the doc simply prescribed active B12. Sounds like there's lots more to do. Her test said she is "positive for one copy of the C677T mutation." Is that the...
I'm hoping to hear more too. Hope all is going well. :)...
Sure will look into this. I appreciate the time you took to get me more info. Thanks opugirl....
Please email me if you'd like to talk some, perhaps on the phone. My 14 yo daughter has lyme and babesia and I struggle with some of the same challenges you are naming and would love to talk about...
If you would keep me posted I would be grateful. Thanks so much! I know there are closer LLMDs but l'm looking for feedback about someone who's really experienced with this. Seems many of the LLMDs,...
Thanks for the info. My daughter's diet is pretty good particularly given her age. Mostly organics, no gluten, very little dairy, lots of fresh fruits and veggies. She does have a sweet tooth but it...
Thanks to you all for your time. Opugirl, I think you started treatment about the same time as my daughter (I remember you introducing yourself on this website) and you seem to be making better...
Does anyone know of a doctor in the midwest who's known to be good with lyme and co-infections? I'm not necessarily looking for a just a list of LLMDs. I have that. I was more hoping a few of you...
Hello All- I'm hoping some of you might tell me whether there's something that treats both Lyme and Bartonella simultaneously. I'm interested in both antibiotic treatments and others. Would you mind...
My daughter's been diagnosed with babesia duncani and lyme and as I understand it, when that's the case, it's likely there's also bartonella that didn't show up on the test. I'm sorta wondering if...
See Don's post "throw away your probiotics". Great post related to what you're talking about here. Diet is essential. I did the diet recommended in the Yeast Connection for several months following...
You are a wealth of knowledge Don. Thanks for all you do to help us heal. I had recently looked at a cookbook in the bookstore that was a guide to fermenting foods but then chose another resources...
Hello Samjones- Our stories are so similar. My daughter was diagnosed with Lyme and coinfections at 13 and it wasn't until I started reading the babesia symptoms that I realized I have this nasty...
Washing clothes in Permethrin is said to kill the ticks within a minute or so. It isn't for skin. Dr. Schaller says best repellants for ticks and mosquitos are not the same. I can't seem to find...
There's a great book on systemic yeast called something like, "The Yeast Connection". Avoiding all sugar and simple carbs is critical. It's SO hard to overcome the cravings at first but it makes a...
Megara19, Are you in Northern CA by chance? Anywhere near Willits? Concernedmom...
xrunner- No, my daughter has never had the Gardasil vaccination. Concernedmom...
Hello All-I've heard there are better times to catch the little buggers and wondered if anyone can tell me when the best time is said to be, to test for bart and bab. Thanks, Concernedmom...
BackToTheTurf18, Heathersdad suggested I check out your strand bc he noted, after talking with you and with me another time, the many similarities in our daughter's situations. My daughter too, is a...
In a prior post you said, "Some are finding that clindamycin with artmesia or clindamycin with quinine is working better than the zithromax/mepron route." Were you talking specifically about babesia...
This really is not a rhetorical question. I live in Michigan and don't know anyone personally who is being treated for lyme and co-infections. We're trying to make decision about whether to try...
Can anyone tell me how to go about finding people who do bioenergetics assessments in a given area? I'm in Michigan. Concernedmom...
In a prior post Opugirl said the following: My test came back negative but I am positive that I have Bart as well. I did show with bio-energy testing as having it. Also my herx reactions to...
Thank you all so much for your assistance. I'm still so torn about whether or not we ought to go the route of antibiotics....
Thanks Heathersdad for the info and Heather, for sparking the resource. I'm going to look into this for my daughter. /community/emoticons/wink.gif ...
Thanks for the thoughts. I don't want use to miss it if she has bart because as I understand from some other posts here and by reading some of Dr. Schaller's work, it really needs to be treated...
Summer- Do you happen to know whether he works with insurance and whether insurance will cover IV abx for a period of time?...
Has anyone had any experience with Dr. Jemsek? I see online that he is taking new patients and it appears he has quite a bit of experience. We need a bus driver!!! Thanks for any thoughts and let me...
I'm hoping for some feedback from some of you folks who have clearly done a TREMENDOUS amount of research. (The cumulative knowledge on this sight is amazing!) I used the free, 10 minute consultation...
Heather, My daughter has to deal with some of the problems with validation as well. She's moody and anxious and others don't seem to understand that lyme and co-infections tend to cause not only...
He is not an LLMD but was recommended by the Michigan Advocate for Lyme Disease United Coalition as a doc in our area who has treated lyme patients with a combo of herbs, supplements and antibiotics....
Hello-Does anyone have some resources, general information or experience related to whether it is generally considered better to treat babesia or lyme first? My daughter just tested positive for...
Hello-I'm wondering if anyone can give me some feedback on the dose and type of antibiotic my daughter's doc prescribed for lyme. He has her alternating between 250 mg of Azithromycin daily and 100...
Hello-I'm wondering if anyone has an idea of how I might find a doc with experience treating babesia duncani. I'm in Central MI and understand this is a western variety of babesia. My daughter's LLMD...
Hello-I've been away from the forum a while. No one here needs to be told how much energy this whole Lyme things absorbes and I've been involved with getting my daughter gluten free, being sure...
Thanks for the support! My daughter seems a little like herself today. We hope for the best tomorrow....
Thanks all for your feedback. I haven't checked in as of late cuz I'm struggling to keep all the plates spinning while being available to my suffering kiddo, researching, getting and reviewing med...
Hi HeathersDad, I'm so grateful that people like yourself are willing to help others of us along in this journey. This can be so scary and it sure helps immensely to have encouragement and...
TW-I can't say that I understand what you're going through with the physical pain bc I'm on this blog bc my daughter is struggling with this nasty bacteria, not me. I just wanted to say that my heart...
This is really helpful guidance. Thanks so much Summer!...
While we're in the process of finding an LLMD (hopefully we'll make progress on that today) and getting my daughter in for an appointment, I'm thinking I ought to ask her GP (who diagnosed the lyme)...
I'm wondering if anyone has ever heard of having the original lyme rash reemerge years after the bite. My daughter has recently had this good sized, perfectly round rash emerge on her upper left arm...
Yeah, based on what I'm hearing I'm surprised too. She had just started with the headaches again. She does have a terrible problem with memory and spaciness and it's something her coaches and...
My daughter doesn't have muscle spasms or cramps she simply has pain and weakness. Until recently this has been her most consistent symptom and it's mostly in her legs. Only recently have her arms...
I think I have things set up for my email to show now. HeathersDad, will you please send me a message? Thanks....
HeathersDad, Thanks for sharing the story of your continuuing journey with your daughter. I'd be interested in hearing your perspective and did try emailing you. Unfortunately I'm not able to get my...
Summer3, Can you point me to the research related to the low dose of Doxy possibly causing an increase in the conversion of the Lyme to the cystic form? My 13 yo daughter is also on 200 mg of doxy...
Thanks for the detoxing ideas. Much appreciated. Summer, you asked about whether it's chronic or or not...my daughter's symptoms started when she was about 8 and she's now 13 and was just diagnosed...