Hello all, My 3 year old son is having a massive surgery on Wednesday to repair his cleft palate. I tried everything in my power to avoid it, but it is what he needs. Sometimes what you need is not...
I wish my printer were working! I would just keep that in my purse, and when I meet someone new, I would grab it out and say- "Nice to meet you, I come with my own disclosure, please read." Hahaha!...
My mother-in-law just purchased us an automatic pressure cooker because I have had a hard time making hearty meals at this time. I was skeptical, but it is so quick and easy! You can even throw in...
Thanks Marie! Your so helpful! I have to go pick up my meds today, so I think that I will try to find a kit somewhere! I'll take what I can get....plus I read you can hear your gallbladder drain?!?...
Wow!!!!!...
I'm intrigued.......
Europe...you lucky duck! Thanks springsjean- gonna get me some amica cream!!!! Marie- I'm gonna come visit lol!!! How is the media there about chronic Lyme?...
I detox by diet/supplements/massages monthly, sauna light heat wraps monthly, body scrub and detox bath... I have not given up my morning coffee. I need it right now to stay awake. I have never tried...
Deejavu- yep, been detoxing my bum off. Its just that all of my specialist, other than my LLMD, believe that Lyme doesn't exist- chronically. Anyhow, with my meds and herxing it makes me question...
That is the exact same spot mine are in. Except the one that usually flares up is on my right. But now my left is extremely flared and I can feel the knotS burning on both sides every time I move!...
It seems to me that everything I am dealing with is turning into "alphabet soup." I have been diagnosed with: Fibromyalsia, colitis, Celiacs Disease, EBV, Bi-Polar, Depression, Anxiety, Sjogrens...
Great ideas! Thank you...I am having such a difficult time with my 2 toddlers. They are in and on everything. I think it is time to just not care if my house is messy. My OCDs keep me cleaning it...
Runners- I used to be a work out fanatic! Every day for 2 hours! I did olypitcal and weights. So, I cannot relate to the running, bc I only run if I am being chased :-) but taking care of my 2...
Marie- I am up again at 5am bc of my back! My husband doesn't understand why I booked my massage, the first thing he said is, "Won't you be in tremendous pain? Remember last time?" Well, if I don't...
No, my back freezes up so bad I cannot move! My doctor told me he thought it was bc I was in a high EBV flare up on top of the Lyme. My back and shoulders are so bad right now. I actually just booked...
Thanks for your responses. What risk(s) did they mention? I used to help flip houses, so I know I have had exposure. I was just hoping it would be a blood draw. Maria- what did your doc put you on?...
This will sound weird but when my feet and hands swell that bad ( well every joint) I take rubbing alcohol and cover them and massage for a few minutes. It will take the swelling down! It's a trick...
I was wondering why heavy metal was suspected and what all is involved in getting a diagnosis. Is it a lab draw? Could I just ask my PCP. I have noticed there are quite a few people with that listed....
Amyamy- so sorry that you are dealing with this. First off I agree that the care you were given in the ER are most definitely commendable. Secondly, there are several great articles out their but...
You two are so lucky to have each other. What a great support system! I wish my husband understood better. We met and I had already started having symptoms (didn't know it was Lyme until 2 months...
AMEN TO ALL THE COMMENTS! It was my husband who had to talk me down from my fury. I was half tempted to go to them in person with ,y Igenex results and other results....some of those doctors I had...
Thanks toddpaul- I have very bad nauseous spells just on the 200mg. Not fun! I have seen others write about Minocycline. I am curious! Of course I don't need to get any more dizzy spells! Maybe my...
I thought the dose is low. I know with my adopted Weimariener (76lbs) he was diagnosed with heartworms and give 350 mg 2x a day. I am far from 76 pds haha. Anyhow, those of you who read my posts...
Hello! I am taking 100mg of Doxy 2x a day. I was wondering if this is a low dose. Is anyone else taking Doxy, and if so, at what dose? My email is available if you don't want to publicly post it. I...
I also find it extremely hard to keep appoint,ents and plans. In the morning-mid day I don't even feel like answering my phone...it sucks! Honestly, some of my "friends" have left me high n dry...
Hey Jon- I have the exact same problem and I have tried all of the same things you have. I have spent soooooo much money out of pocket trying to find someone/something that would help. This is one of...
If you haven't found one in PA, please email me. My LLMD is closer to you....
Mystery Illness- you can google templates for almost any type of letter and just fill in the blanks. I just recently realized that I have to let my anger go to heal, and I refuse to waste any more of...
I'm not ashamed to admit (as I was when I started taking them) that I HAVE TO be on an anti-anxiety medicine. If not my patience is lost and my anger takes over. Once that happens, it is a vicious...
I wish I could give you all a hug or have you over. I really think the key is finding someone who understands in your life. I found out about my LLMD while fostering dogs where I live because I felt...
That's great! I believe everything happens for a reason! I myself have been able to help since I found out my diagnosis. We need to spread our wisdom so others who are suffering and looking for...
Hey. Thanks for your concern. I stopped the medicine and have been taking Benadryl and feeling better. I have not had any more bruising. I see my LLMD on Monday and my husband will be home for the...
Woe. Great info. I make my long drive to my LLMD on Moday. Perfect timing to find out! Thanks! HAHA AND I WONT FORGET THE NAME EITHER!!!!!! Thanks Samantha...
I have had SEVERE ANXIETY and panic attacks. My racing thoughts were so bad that I stayed curled up in a ball in bed all day. I cd off work for a week (also pre-children) and cried and cried. My...
Thanks everyone! That's the problem, that I am an easy bruiser, have been my whole life, but never on my hands/feet and backside. Just usually my legs and arms. My doctor has an answering machine but...
That's the problem is that my doc is only open Monday-Wednesday. I did look up side effects and it said it is rare butit can cause extreme bleeding and bruising is a rare but serious side effect. I...
I have no clue, but if I were you I would go immediately with the test results to a specialist and get a second opinion....
Ok, so I started my ABX ( 1000 mg Clarithromycin 2x daily) on 2-18-13 and during the last few days I have been completely exhausted and in pain. My concern though is that I am COVERED in bruises...
PeaceSoul-thanks for the info. I was just curious of the liver detoxes so I could avoid them until I am better. I used to see a visceral therapist (internal/organ therapist) until I was diagnosed....
PeaceSoul- thanks. I know detox is not simple and is really on an individual basis but I wanted to know overall simple basics I can start. Also, what detoxes are for the liver? Summer3- No diary?!?!...
Ok- I am seriously confused, my brain is not my best friend right now. I need someone to simplify detoxing your body. I read the " newto Lyme forum" and tried my best to get stuff. First, let me tell...
So so true!!!!...
Lymer- From personal experience, you have to be very truthful on your disability claim. They ran a health insurance background and a claim through my pharmacy to see what all meds I was on and who...
Ok, ya I have attributed the stomach cramps and headache more towards the diet changes. Other than being extremely tired, my joints aren't killing me like they usually do and the past few days my...
That is one of the worst emotional struggles with Lyme. You can look through until you find my thread from last week and read it! I think it will help you on this topic! Stay strong <3...
That is wonderful news and I wish your neuro was close to me ;-)...
I have been reading through all the threads and I haven't seen anyone on clarithromycin for Lyme. I take 1000 mg a day. Now i am extremely curious. This is the only abx he started me on thus far....
ButterflyAK- I love the way that you said you talk to it and tell it it is not in control! Hope2bhealthy- Not only witll i and have air hunger but it will induce hiccups, stuttering and if I talk to...
Also ALCOHOL AND CIGGARETTE FREE!!!!!!!!! YAY YAY ME (not that I chain smoked and drank tons but I would have a cigg or two when stressed and some wine at night)! I am so proud of myself for...
Don- no he didn't test for abx compatibility?!?! Everyone else- thanks for your replies. I was able to get my mother-in-law to take my girl for 6-8 hours tomorrow and as much as it will drive me nuts...