You're welcome! I know it's possible for ELISA to come back as a false-positive, but 4 times seems unlikely. Hopefully the IgeneX testing will show something. And maybe in in the meantime you can...
Healing98, I am just really weak, can't get the energy to move, my pain is a lot worse, brain very clouded, very dark under the eyes, and my eyes feel very tired (if that makes sense). It's not...
What lab performed the tests. Here in the US (and I don't know if this is a lab in the UK, or if it's available you), the place most Lyme doctors have the Lyme tests sent is IgeneX. They are the most...
I know when I began to take epsom salt baths, I would herx, and it felt just like what you were describing. It's possible they will make you feel worse at first, and gradually get better. Try...
I have been on doxy and plaquenil for 3 months. But, I stopped it for three weeks because of ulcers, and then just restarted it. Other than that, everything is the same....
I have no idea..they are whatever my mom bought...I am also on abx...maybe a herx?...
Has anyone tried lemon water for it's detoxifying and digestive effects? I have for just 2 days and I feel sicker. Could the detoxifying effects be making me feel worse as the toxins are being...
Has anyone used this and had good success with it? I have terrible costochondritis, and I can't take NSAIDs due to stomach issues (though I don't think they would help much). Bromelain has been...
Thanks for the advice, Traveler. I will look into the different pain remedies you suggested....
springsjean, I do have a positive Lyme test. I am seeing my LLMD, a neurologist, a urologist, a psychiatrist, a gastroenterologist, and some others that have kind of given up treating me. But the...
Vickie, As you said a lot of my symptoms aren't getting tied together. However, when I was first told I might have Lyme disease, that was the first thing I was told; that all these conditions/...
I have a Dr. Who I consider a primary, who diagnosed the Lyme and is treating it. I see a neurologist for my headaches, migraines and epilepsy. I see a urologist for interstitial cystitis. I see a...
Oh my, I'm sorry. I didn't realize. This topic just applied to all, and I have all the conditions I posted to. Didn't intend to spam! No worries(:...
I was on minocycline to begin with. And the very first time i had pancreatitis, the GI doctors decided doxycycline would less harsh (which I don't understand because doxycycline is much harder on the...
Well all of the stuff listed in my signature, plus I was diagnosed with Lyme disease in march, and have had acute pancreatitis 5 times since January. I also have 2 ulcers in my esophagus. So my...
I have been dealing with tons of terrible pain, but all these doctors I go to don't want me to take anything except Tylenol. Which I just have to say is absolutely ridiculous, because Tylenol isn't...
Well, the doxy isn't necessarily causing any problems, but the doctors who don't know anything about my Lyme treatment claim doxy has been associated with pancreatitis. But so has every drug in the...
In March a began a 6-month round of doxycycline and plaquenil. I was only on it a couple weeks, when I got my third flare up of acute pancreatitis. The doctors who were treating me inpatient said...
I saw "Jon Stewart" and I had to read it. Great read!...
In Greenville, SC looking for an LLMD...
Hahah, opugirl, no kidding!...
I've honestly had the opposite problem at times with time, where my libido seems to be greatly increased. Of course, I'm my body, pain, fatigue and weakness always are a bigger issue....
My doctor started me on plaquenil in combination with minocycline for my first round of treatment. I know minocycline is an antibiotic related to doxycycline, yet I looked plaquenil up and found that...
Well I certainly hope it goes away with treatment for me as well. It's not the end of the world but it's very unpleasant. I just started treatment a few weeks ago but due to problems with my pancreas...
Does anyone ever experience this? It's fairly new for me but I've had it a few times. Something smells bad but its not something that's real. I'm wondering if it's from the Lyme or another problem...
Yeah, I probably have bartonella co-infection as I have those scars running up and down my thighs. I have yet to go back to see him, my test results, and his comments on them, were just posted on the...
Yes, I'm seeing an LLMD...
Now that I've tested positive for Lyme, what happens? What does treatment look like/ where do I start with treatment?...
Thank you, I know that it really helps with insurance. And yes, even though I have been sick for 8+ years, my IgM is positive, but IgG has only one band. So like you said, IgM can stay positive for a...
IgM are antibodies produced in immediate response to a exposure to disease, IgG are produced in a later response. Yes, that's possible, but it can always reoccur, the Lyme bacteria can lay dormant...
Western Blot IgM 18 kDa. - **23-25 kDa. - 28 kDa. - 30 kDa. - **31 kDa. + **34 kDa. IND **39 kDa. + **41 kDa. ++ 45 kDa. - 58 kDa. - 66 kDa. - **83-93 kDa. + Western Blot IgG 18 kDa. - **23-25 kDa. -...
So, I have always needed quite a lot of sleep, something that doctors have always attributed to the fibromyalgia. But in the last year or so, I have had trouble falling asleep, staying asleep and...
Right, and I have heard that from many people and I think it's why he changed his mind so quickly...
I was referred to him through a Lyme patient. It actually only took him a month to decide he would test me for Lyme. My first visit, Dec. 13, he said it was only a small chance. But when he got my...
So, I'm getting my Igenex testing done next week. Everything points to Lyme and I'm seeing an LLMD, who before told me there was a very very small chance it was Lyme and is now really leaning towards...
I finished my first day of doxycycline. I've had moderate nausea and discomfort (hot flashes, headache, clammy palms, lightheadedness) with it so far. Is this typical? What has been other's...
Samantha, I am homozygous for the C677T mutation of the MTHFR gene....
Livefreeordie, Taking antibiotics will bring about antibodies to any pathogens in my body, which is what the Lyme test looks for and so by taking antibiotics it will help ensure that the tests won't...
Thank you! That's something I'm hoping will happen, seizures were one of my first symptoms, and aren't controlled by medication....
After my CD57 count came back at 28, my doctor said he planned on testing me for Lyme. But he wanted to wait as I had been sick with pancreatitis and he couldn't treat me until I was completely over...
Vacant, I had terrible urgency issues and I went on a bladder relaxer, Enablex, which helped tremendously with the urgency and frequency. I don't know about cranberry pills.. but I assume they...
I've had IC for 6 years, but was just diagnosed about a year and a half ago. I haven't begun treatment for Lyme, just supplements and trying to kill the yeast and detox right now. I believe I've had...
I have Interstitial Cystitis, I have had it since I was 10 years old and NOBODY could tell me what it was, kept testing me for UTIs...Until I went to an adult urologist who diagnosed me within 10...
I'm here in the hospital with pancreatitis, my lipase, amylase and triglycerides are all elevated and albumin is low. They said one cause of pancreatitis is immune problems. Have any of you ever...
I get this, it feels like I might be shaking or having tremors, but when I look I don't see anything shaking....
I would love to talk more with you. How can I contact you?...
Hi Kittie, I am actually 16 as well, and I've been sick for over 10 years but I haven't started treatment yet. All I have been doing so far is detox, supplements and trying to kill the yeast. I just...
Also, I have had a cold. But I think this all started before the cold. The length of time I can stand/walk is getting shorter...