Suspecting 9yo has lyme. Lots of weird sx and pos 41 band on both igg and igm. Thanks in advance!...
I'd push for an Igenix babs test. It can't hurt. My babs was seen on tr FISH test. If she doesn't feel sick I wouldn't treat. I say this as a total believer!!...
Hi Roro...I can't answer your question but saw in another post that you saw/see dr. S. can you share feedback? I just made an appointment and want to have a sense of what he's like before I pay all...
If so please pm me!! I have questions. Am trying to pick an llmd. Thx!...
Mepron also made me feel horrid...
chronic dull lower back pain was my first sx....
I am on 300mg 2x a day of rifampin and 200mg of doxy 1x a day. i'm wondering if the doxy should be 2x a day as well. or should the rifampin be 1x a day like the doxy?? anyone know? thanks!...
I agree. Add Art. I took Mepron for 4 months and i felt AWFUL the entire time. I then switched to bactrim/art/malarone and was fine with that. It's been 7 months. I think, but i am not sure, i have...
I really understand your worry. And I agree with the dead that you may miss something. I got tests and saw doctors for a year before finally learning I had TBDs. What helped me accept the reality is...
If you go to her can you PM me? THANKS!...
my ferritin is low but hemoglobin and hema low normal. i'm talking to my doc about it today. not sure what we will do. have been on art a few months....
Hi, a year ago I had burning feet every single morning. that diminished as i started treating but now i am getting it back in my feet and hands as well. I've also suffered on and off from extreme...
I so understand this! I've had bad nights the last few nights too. After sleeping weel for weeks. Heart racing, numb limbs, general feeling that something is VERY wrong. Feeling certain death is...
Thanks for the answers, All. I may try the Netti pot. Can't hurt, right??...
I don't think it's air hunger. I've had plenty of that. This is more like all of sudden my physical ability to breath through my nose just goes away. And I also feeel pressure on bridge of my nose....
I had all of those sx. The rushing feeling for me----which is terrifying -- was caused by multiple pvcs in a row. Magnesium helped. Also i have and inthink that was responsible for some of the other...
I see a doc at te Jefferson hospital Interativr center. Pm me for her name...
I take tindamax bactrim and art. My doc believes tindamax and bactrim impact both lyme and babs. I didn't believe him at first. This is after my first llmd had me on mepron for 5 months. I was sicker...
I was sick for 2 yrs with no answers. First just tired, then achey and then all hell broke loose: heart arrhythmia, stabbing pains, drunk feeling, horrible pressure headaches, hearing sensitivity,...
Agree with many above. Test for Lyme through Igenix. Id also test for Bart (IGM/Igg) and for babesia (FSH). IMO its helpful to test for all cos if you can afford it because if even one comes back...
Yay! Enjoy!! Wishing you well! And thanks for replying to my emails! Hoping your doc makes me better too!...
Opugirl, just sent u a private message. In short, I don't feel good. Crazy tired, sore, achey, anxious. Definitely a bad week. :(...
Missyouall - I have the same llmd. Would love to compare notes and progress. I just added bactrim and feel terrible! I too wish he spoke more but am trying to stick with him as several people tOld me...
Thanks. I am leaving a very chatty supportive llmd who isn't helping. And, I'm not in crisis mode anymore --well today anyway. So I think I'm willing to try. My priority is someone that treats Cos...
Hi. Just switched to this doc. Looking for others with experience working with him. I've found some folks who just switched to him, but would love to chat with folks suxcessfuy treaters --or not --...
Hmm. Just sent a pm....
Flower girl, I just switched too. You don't go to a NJ llmd do you?? I started tindy yesterday. Just one pill. I'll do that for several days then go to 2, then 3. I'm petrified! Would love to hear...
You are describing my experience exactly. I tested pos for babs. Only sx I had was some air hunger. No sweats etc. have been On zith/Mepron for just under 4 months and I feel horrible. Plus, after a...
I know how you feel. I keep thinking I'm going to die. I mean how can you feel this bad and not die?? I'm no better either after 6 months. No better at all. It's depressing and scary!!...
After 7 months in treatment I am worse and not better at all. My llmd is good and I like him but he just isn't aggressive enough and I really want to see some improvement! Anyone know of an llmd that...
If yes, please contact me! Thanks....
One more thing! Interesting you say that about mag/potassium, acheivement grace. When this all started what sente to the er was low potassium. Then my mag came back low in bloodwork, which as I...
And beach lover, you had a seizure!?! Omg that'd put me over the edge. Sending positive vibes to you I'm hopes it never happens again!...
Thanks, everyone. I think I'm terrified of passing out. When I get this dizziness I think I also start to have some panic which doesn't help. Part of me worries, also, that this isn't a herx at all...
When I was super sick I'd get these bouts of weakness, light headedness. Felt if I got up and walked around I'd pass out. Also feel shaky/jelloy. I started doxy 2 weeks ago, and biaxin 1 week ago....
I'm feeling like I will never get better. I'm so tired of this. I go to work etc. but I hurt and I'm tired all the time. This is not way to live...... I've only been on Doxy 2 (200 mg) weeks and I...
I keep reading that when taking abx one should also take powerful probiotics. But, I have no idea how to identify good brands. Any recommendations?? I think Biaxin is killing my gut. Thx....
Does anyone know what Doxy, Biaxin, Ceftin each do? Do they attack different things??...
What dis your llmd prescribe you in the begining? Did it work?...
I don't have an answer but I get it too. Thankfully not often. I'm watching this post!...
Forgive my incessant posting. But I am new to this with a million questions.... Why can't I just start with IV ABX? If it works better and you have to do it for less time, why bother with all the...
my2cuties, can you PM me the name?...
Love Health- Amonia smell?!?! I get that and have for years and had no clue what it is or how to describe it to others. Please tell me where I can read more about this?? Is it connected to Lyme??...
Thanks thisis helpful. Does no carbs really mean NO carbs? I've been aiming for LOW carbs and complete elimination of refined sugar and white flour. So today, for example, i had corn chips instead of...
This is like a math problem! Can folks share their schedules with me? I'm taking supps, probiotics, abx and the spacing is a pain! Also, if we can't have carbs then what do you eat for bfast so doxy...
i called my doc. told him i was freaked out about taking so many abx at once. he said i can instead start one at a time and add one each week. i feel SO much better abou this!!...
thx for the reply. we havent tested for coinfections yet. i'm willing to take what i need to to get better but also would prefer to start slow so as not to get so sick. i need to work. i learned...
Can anyone recommend a philadealphia area doc? i can't keep driving 2 hrs to the one i am going to now and i don't love his advice anyway--or his reaction to my questions. i think he approach to my...
Hello All. I need some advise. My IGG Western blot came back Igenex positive -- after two negative Elisas. I sought out a LLMD who ordered the Western Blot. I am grateful to him ot finally have an...