Awww, I'm sad that with more than 100 views, no one has any help for me or my beautiful daughter. :(...
Can you help me interpret? I got her non LLMD ped to sign the lab slip. I tested positive in June and have been on abx for 3 mos. We don't know when/where I got Lyme so we had her tested. My LLMD...
Hi Thunnus, If you allow email on your account, I will send you some names!...
I was told my another long time lyme sufferer that the headaches was brain swelling? Or fluid in the brain or something? And that he used diuretics to combat them? A good all natural diuretic is...
I suspect it was more than 3.5 years ago. No memory of a tick attaching, bite or bullseye rash. But we lived for 7 years on the edge of a canyon next to the wilderness. The dogs would run the area,...
MarieLS, I've been taking it 1 hr before eating. And I'll try the ginger. I'm having flashbacks to the 1st trimester morning (all day) sickness I had 8 years ago. :(...
The link doesn't work for me?...
I started rifampin 6 days ago. I was already on doxy and zith. And boy do I feel sick. I'm detoxing as many ways as I can for the herx. Any advice for the nausea? I'm assuming the nausea is the...
I think it's good you got it done right away. I have a friend with lyme (5+ yrs) who said one of the mistakes they made was not testing and treating for coinfections soon enough....
How long are you holding the enema for? What kind of coffee are you using? Are you using 3 tablespoons coffee and 4 cups distilled water? Are you taking any other herbs or anything else new that...
Thank you for posting the link. I appreciate having all the detox methods and brief explanations in one place. Treatment can get overwhelming and it gets hard to gather bits and pieces here and...
This is heartwarming. It's good to read something positive!...
I was thinking if I went back to it I would have to start real slow! :) I was taking a full teaspoon in the am and 90 mins later vomiting terribly. So I switched to the bentonite clay. I'll have to...
I'm using bentonite clay. I don't know what burbur is? I got very, very sick on chlorella. Maybe I used too much, too soon? I vomited badly after taking the chlorella. :(...
I haven't posted any more of my stuff since I first asked questions about my igenex test results. I thought I'd give an update and ask about challenging with Byron White Formulas. Since my igenex...
I know...crazy. I was bitten by a kitten (she did not let go for several minutes) in 1981. I was hospitalized for infection in my hand and had surgery. We suspect I was infected with Bart at this...
I've been taking lyposomal C as well.......
I will never take another fluoroquinolone again unless I'm dying and there is no other option. And even then, I think I would try to find ANY other thing to try. FQ abx include cipro, avelox and...
What kind of neuro dysfunction are you experiencing? You mention your "face feeling weird". Is it numb? Tingly? Do you have any other neuro symptoms like brain fog or brain buzzing? I don't have an...
AvaG, While I still need to have a LLMD do an "official diag" on me, I have a positive IgeneX test and lots of lyme symptoms, so I'm certain the diagnosis is a technicality. Anyway, before I tested...
Thanks for the suggestions Traveler, I appreciate it. I've been able to find a LLMD near me thanks to everyone's help and I have an appt on the 9th. I'm sure he'll confirm. Until then I'll continue...
Well, I will certainly ask the doctor about EBV...when I finally get to see one! My primary is completely naive to any of this and the rheum I saw was a bozo. Until I do get to see someone, I'm...
Eh, I'm sure I have it. (I think most people test + for EBV anyway and I've been diag with mono 2x in my life.) I don't find much regarding these neuropathic shooting pains, brain fog being EBV. I...
Path, no problem. As you probably well know, I'm just trying to sift through all this info... Yes, I saw that on the IgeneX site, and asked my doc to request test 488 and the coinfection panel. I...
Thanks Trav...I'll do that! I did it, but I don't remember it already so I'll do it again. :) Well, path, then I'm confused. Not having lyme would be great! And terrible. All other doctors and tests...
cat53: if that is the case, I haven't found these LLMDs yet! I found a few in the bay area...the one my neighbor sees (who she isn't happy with) booked by appt for Oct. Yipes. Hey...
Thank you pathogenkiller. Found him. I read the article too, and will contact the support group....
Milk the goats...lol, I love it! I'm in Northern CA, nearest big city is Sacramento. Thanks, all....
Hi Traveler, thanks...I adjusted my profile to show my email.... So do these test results look like lyme to you? Naturally my primary care doc says since I'm CDC negative I don't have lyme. I told...
Hey all, Trying to start out right from day one and hoping avoid the mistakes of those who travelled this road before me…. So, I’m looking for an LLMD. Where do I go? Who do I call? Where do I start?...