(((In_A_Cocoon))) I am so sorry, this nonsense is bad enough to deal with without having a doctor and staff behave like this, and a LLMD one on top of it. I hope too that you find one that is good...
The forum and members is a great help, not just for the info, but for the personal experiences and support from others. It's so nice to have a place to turn to, because so few can relate in my life....
I am feeling as though my body is toying with me. Nothing is making sense. I just had my thyroid blood test re-done, so primary care could see where the numbers are ... the TSH was progressively...
I have (another) question on thyroid testing ... My tsh had been getting lower (officially in the low range 5 weeks ago) since August, and the free T4 was getting higher (not as fast as the TSH was...
I think Google and I need to break up :( After getting the IgeneX results, I figured I'd google my questions until I can see the LLMD next month. Well ... it just left me more confused. What I was...
thanks, that's a relief knowing you can taste it too, I was afraid I had a bad bottle or something....
A bit back, the lyme dr. gave a list of herbals to take ... among them teasel, vitamin C, B12, and some others ... one of which was colloidal silver. My husband picked me up a bottle from the health...
thanks for the help :) A question I had last night while I was thinking about all of this, is --- as the infection goes away, do the IgG bands increase, while the IgM levels decrease? Not sure if I...
Ack, I finally get in a club, and it's this one :( You all are great ... I just wish the club was for something else :) The other part on the test shows this (even more confusing): IFA, B Burgdorferi...
I got a copy of my IgeneX test ... didn't hear from the doctor yet, I don't have a follow-up appointment until mid-January, so I guess he will go over it then. In the meantime, I am curious... For...
Me again (sorry :sigh: ) Waiting to hear from primary care (lyme dr. and his nurse are off today) - in the meantime, my mind has been in over drive as I've googled for quite awhile. Since my...
Not sure if this is a common lyme issue, or if something else is brewing ... For a week and a half, I have had this pain (and almost burning feeling) on the side of my outer left thigh, below the...
While I am grateful that the insurance is keeping up on things and alerting to an issue, at the same time I am flustered that I keep having issues with treatment options. My reaction to the...
I've only ever posted in the lyme disease section before, because that was the diagnosis I received (based on symptoms and a bulls-eye type mark I had). At the time things started going haywire for...
I agree, healing98, I too am thankful for the group here, and the advice and experience shared. While I wish no one had to endure any of this, I am grateful that there are those to help with what I...
can teasel alone (or with other herbals like resveratrol) *kill* the bacteria? I started taking one drop 3 times a day (mixed in some water) and 1 resveratrol twice a day (along with chlorophyll,...
This is making me think! I have the same basic thing that Tbrown2 is describing - I was attributing it to lyme, but I wonder if it's my thyroid -- esp. after now it's enlarged and my blood test...
I thought about buying supplements on Amazon, but then I realized most if not all were from 3rd party sellers -- no way was I going to trust something coming from a random person somewhere. I...
Thanks so much :) I am going to check out the website to see what their prices are. DH and I drove to Towanda today, the store was closer than I thought (well, not that much closer, but somewhat),...
well the blood is off on its journey to California. I am hoping for the results to come back soon. Ended up just doing the lyme panel, the nurse said that the dr. doesn't recommend the co-infection...
I was just told this past week that my primary care dr. feels (based on bloodwork and ultrasound) that my newest condition is ... hyperthyroid. Primary care feels it's a stand alone issue, and not...
it's hard as an adult to move back in with parents under the best of circumstances, being sick makes it all the harder. I hope things ease for you soon, the stress cannot be helping the healing...
the dr. recommended getting the basic testing ($260), but I think for my peace of mind (I tend to worry) I am going to ask for the co-infection panel as well. Does anyone know the cost of that off...
I'm having the IGeneX test done here soon and that got me thinking about test results I've already had. I've had two tests so far, and each came back negative. It wasn't that there weren't enough...
Combining my questions so I'm not clogging the board :shakehead: (I'd fill a few pages if I listed all of the questions that I've been having!) I am confused over diet. When I went to the LLMD he...
I didn't get my supplies yet, but do plan to go to Towanda to get them -- it's kind of a haul to get there (well, not that bad, about 2-2 1/2 hours), and we're a one car family. I am hoping to get...
Traveler, yes, that happens to me *a lot* with food and pills getting stuck in my throat. Scary when it happens. I'm going to check out that link more and bring it up at my appointment at the primary...
this is inspiring, a good way to see the light at the end of the tunnel instead of my being so focused on what I can't do and how I feel .... my list: 1) go on vacation with dh and ds and just have...
Traveler, is Hashimoto's thyroiditis with high or low TSH levels? Today I had my 4th round of thyroid blood work, to again test the TSH and T4 levels. My most recent TSH results were .64 (lowest end...
opusgirl, I was able to get in much sooner than originally scheduled with Dr. M (in Meshoppen). I'd much appreciate recipes :)...
Sorry to post another question so soon ... I was going to add it to my other post, but the topic is kind of different, so I thought another post may keep it less muddled... I know I've read that lyme...
I just had my appointment with a LLMD this week (ILADS, recommended by co-worker of dh whose son had lyme -- and also by opusgirl so I was feeling pretty confident :) ) Went to the appointment...
that's a scary thought how a negative test can haunt you for the rest of your life?? Does anyone know if that's absolutely true? I mean, how would an ID even know you had the Quest test if you didn't...
I've been obsessing for about 2 months so far too :/ I think I got excited about it being 'fixed' too soon ... last time I checked pulse this afternoon (after feeling "off") it was 106 just sitting,...
Since this who roller coaster ride began, I was diagnosed with sinus tachycardia, and pulse would rarely be below 90-100, with it going up to 138 - 146 for simple things (like showering or walking...
I apologize for butting in on the thread ... but wanted to ask about the above quoted piece ... does this mean that a Western Blot I had taken WHILE on doxy may have been compromised due to the...
I've been pondering this for awhile now ... how often do you go to the doctor for lyme? My original doctor's office (where I see the Phys. Asst.) was very much wanting to keep tabs on how I was...
The Spoon Theory is a great example for explaining it. It does get frustrating; before I got sick, I was alternating jogging 3 miles one day, walking 3 miles the next. Now I am *lucky* if I can make...
I've been taking doxycycline, and started getting headaches almost immediately that never really subsided. When the dosage increased, I broke out in what appeared to be hives, followed by a rash....
The phys asst at the previous office suspected thyroid, and did some blood work because she said that may explain some of the symptoms, and noticed my thyroid felt a little large; the TSH was .8 the...
I've been on the doxycycline for 30 days so far: ~the first drs. office, the phys. asst., prescribed doxycycline monohydrate for 21 days. After the first couple days, I started with the headaches and...
I am currently on 300mg of doxy a day (100 in the morning, 200 at night). Dr. said it should ideally be 400/day but he's easing me in to higher doses because I am not fairing well on it so far :sad:...