Girlie - I treated for three years off and on and was never completely symptom-free - but capable of living a normal life. Now I've been knocked over again....
Hi - after a couple of years of "light" symptoms, the Lyme is back with a vengeance. Does anyone have a recommendation for an LLMD, specifically in Paris?...
anyone?...
Barcelona Spain...
I am just wondering if anyone here has had any experience with Rocephin and its generic. I had had a few days of feeling almost completely normal after 4 months on Rocephin but had to switch to...
Hi there - I had a tick bite in Europe, with a bullseye rash, and my results were exactly the same: Positive Igenex IFA Positive LTT Neg/Indeterminate Igenex WB CD57 of 61 Without a doubt I have...
I tested positive for ehrlichia (along with Lyme), and I had two months of Doxy which should have killed the ehrlichia. However, I've been on round after round of other medications for Lyme and I'm...
Thanks Tickbite666 - I think I'm going to try it for a while....
sent...
are these your emails?...
Hi guys- I'm on Week 11 of 2g daily of IV Rocephin (with Actigall), and it has helped but not cleared everything. My doctor said I could do 4g/day 5 times a week, so I tried that earlier this week...
message me....
I have had both distinct symptoms - in the brain, in the back, as if something is chewing my brain, as well as on the forehead and scalp in the front as if bugs are crawling....
I have had this for months - it doesn't burn and I've had my kidneys checked and checked with ultrasounds and urine tests. There doesn't seem to be anything actually wrong with them. Perhaps there's...
I have had the same problem - I lost 15 lbs in three months and don't want to lose anymore. I was trying to eat healthy for a while and now I just try to consume as many calories as I can!!...
I travel quite a bit for work, on airplanes, and have cut down a lot of it since becoming sick. I have noticed, however, that when I fly I seem to get a flare in symptoms and I feel worse both on the...
I bought an infrared portable home sauna for $150. Well worth the $$ when you consider how much everything else has cost - I try to spend 30-45 minutes a day in it, sweating for detox. I haven't yet...
Thanks Lymebabe! I will check into both of those....
Hi - Has anyone else here had a problem with sinus inflammation and Lyme? This was one of my very first symptoms and one that just will not go away. I have a feeling in the right part of my forehead...
I have had anisocoria (one pupil enlarged), loss of feeling in my arms and hands upon waking, brain fog, a feeling of bugs chewing inside my head, and pressure in the forehead. It comes and goes, but...
Thanks everyone! I'm hoping it's just a couple of months and then I transition back to orals and herbs, but we'll see. I'll keep you posted. :)...
After months of little progress on oral antibiotics, and a big relapse over the past few weeks, I'm trying long term Rocephin with a PICC line, something I've been trying to avoid. Anyone had success...
Hi - I haven't been on here for a while, because I was doing rather well after 3 weeks of Rocephin in January, followed by Ceftin and Azithromycin, but slowly my neck has been getting stiff again and...
Something really should be done at an en masse level. It's unfortunate that there are so many people suffering - and with faulty testing and a lack of real knowledge in the medical community, it all...
Hi guys - I'm fairly new to this disease and the forum, which also means I'm new to the controversy surrounding Lyme. Some days I think that I feel worse due to the neglect and fight with the major...
Thanks Traveler - one of my challenges is that I have been trying to get IV Rocephin for weeks now (I'm 6 months from the tick bite) and no one has wanted to do it. I'm in touch with another LLMD so...
Hi guys - thanks for the notes. Marie - the doctors at the hospital were very concerned and noted that another two or three hours might have resulted in my death. The doctor who gave it to me did not...
Has anyone successfully used IV silver to treat Lyme? I'm seeing a doctor who swears by it, but to date it has: 1. Caused my veins to swell to a point where I can barely bend my arms. 2. Put me into...
Yeah, the problem is that right now I am temporarily at a clinic in Texas, but I don't live here long term, so doing much more would be difficult. He does not charge for the treatments, however,...
Hi - I'm looking for a Lyme doctor in Boston (would consider NYC) or Paris, France. Is there one someone can recommend?...
The clinic has a doctor who had prescribed it. Due to my travel schedule it may be tough to do more than a few but I'm also on doxycycline, IV silver, and two herbal protocols....
I'm also curious how you were able to determine it was garinni?...
I'm planning to start it in a clinic for a few weeks but it sounds like it will take a while?...
Thanks Phoiph. I'd be interested in whatever research you have! How are you now btw?...
Thanks Phoiph. I don't know which one it is, but my symptoms are predominantly neurological - which makes me suspect garinni. Brain fog, lack of concentration, fatigue that comes mostly from my head,...
Thanks guys - I think I have found an LLMD and I'll keep you posted!...
I'm an American but had a tick bite outside Barcelona, Spain in June 2013, followed by the tell-tale EM rash, although at the time I didn't know what the rash was and never had it checked due to a...