I see an LLND who is treating me primarily for Bart. I went undiagnosed fro 10+ years yet didn't have "severe/typical" symptoms - most of mine have been in the GI area and with random muscle issues...
I have not posted for a long time, but do check the boards from time to time to still feel connected. I am grateful to have this board and everyone here. I continue to have more not-so-good days than...
I see an LLND in Portland OR and I like her very much. If you would like her name, email me....
I don't have any additional specific information for you beyond what others here have shared. But I wanted to add in another voice of "you are NOT crazy." You are not! And I am so so sorry that the...
Yes, I have had this - it comes and goes. It can be on one side or both. A hot water bottle gives me temporary relief. I feel for you. Hang in there....
Hello and welcome. I'm sorry you're having to deal with this including medical folks who don't get it for the most part. It is good you have information and a supportive spouse. I'm sorry I have no...
Thanks again, all. I see Dr. R near Portland, OR. I don't know who Dr. H is, Garden Peace. Roots, feel free to email me directly and I will give her my LLND contact information. I like her and her...
I'm in eastern WA -on the border between Idaho and WA. I am sure my "original" lyme/bart came fromwhen we lived in Minnesota - 11+ years ago. Interestingly, since we moved here 10 years ago we've...
Yes, I've had and continue to having migrating pains at various places in my body. It's amazing to me how long they can stay and/or quickly they can "move". Before I saw an LLND, the "regular...
2 hours ago I was scratching my head and found an attached tick!!!! I called my LLND (with whom I am under care for bartonella) who is 7 hours away to see what to do. I then went to a local clinic to...
SO very happy for you! Thank you so much for taking the time to post. It gives us all hope and a real testimonial we can hang on to. Keep living your life fully and again, thank you!...
Hang in there and get gentle with yourself. This disease is tough, tough. If you have made decisions that you later realize weren't the best, then, forgive yourself, learn from them and put one foot...
Hello all and thank you each and all for your support, ideas and suggestions. My sick feeling/nausea today is significantly less as is the headaches. My arm still feels pretty bad, but I'm grateful...
First I want to say how grateful I am to have this forum and the folks on here. I don't know where I would be without it. I am feeling beyond horrible and just want to post as a way to help me...
had frozen shoulder (right side) a few years back before I had a diagnosis for Lyme/Bart. It was terribly painful and made everyday life so challenging. One dr said "just do some exercises and it...
Yes, I juice wheatgrass everyday and have for about 4 years. It is a HUGE detoxer and very alkaline - a very good thing for the body. It packs a powerful amount of nutrition in a small amount. If one...
If you've not had a colonoscopy before, it's the prep that's the challenge. The procedure is really a "breeze" as you won't remember it at all. Here are some tips for the prep that have helped me on...
Yes, I have been on it now for about 8 months. It has really made a positive difference overall with the pain I was experiencing in the right quadrant of my stomach. I am using it in conjunction with...
Sending you much support and strong, good energy. It's so hard to wait. Be gentle with yourself....
Magnesium will work for constipation and it's something you can't "overdose" on and hurt your system. You take it and increase it each day until you have diarrhea = that means you need to back your...
Hello and welcome to the forum. First thing, I'm sorry you are going through what you are. Secondly, you're not alone. We are all here and this is a very informative and support bunch of folks. Keep...
I have no information for you regarding little ones with lyme, but it sounds like others here do. I just want to say I am so very very sorry for what you and your entire family has and is continuing...
I have had symptoms the last 11 years - and overall they got progressively worse/more as time went by. I've only started treatment in the last month. However, I made huge changes to my diet about 5...
I used to have tremendous pain in hamstrings and also long muscle along front of each leg (can't remember muscle name). It finally "got better" but no clue as to why. Occasionally it will flair, but...
First let me say how incredibly sorry and sad I am that you have had and are still going thru all you are. There is NO reason for this kind of suffering. I will also say that your post reignites the...
Hats off to you for your passion, tenacity and courage. Your boss -ie, former boss? A clear reminder that each person is on their own path and there are folks out there that are just plain unhealthy...
Thanks for doing this, MarieLS! I appreciate what all of the moderators do here for all of us and you're now in this great group! Best to you!...
I do have the symmetrical pain/discomfort. My dr (who has no clue about lyme, etc.) has said "this is fascinating - I've never seen someone with identical pain that is 100% symmetrical. I am being...
I stopped using toothpaste (!) 3 years ago now - use only baking soda. The amazing thing is what my dentist and hygienist say every 6 months when I'm there for my teeth cleaning. They always comment...
I'm afraid I don't know dosage as I juice fresh turmeric. I hope the turmeric helps you....
Ely, Minnesota...
Hello and welcome. I'm so sorry what you have/are going through. I can relate to many of the symptoms you listed. Mine wax and wane but never go away completely. The nausea is rough = shredded (raw)...
I am so sorry for you have and are continuing to go through. I believe I contracted Lyme when we lived in MN 11+ years ago. We lived south of the Twin Cities, but think I got Lyme from tick bites...
Yes, I have had this at different times - it comes and goes. Thankfully, it has not occurred for quite a while. I'm sorry you're feeling this. What helped me a bit was to have a hot water bottle on...
I don't have any experience or information that could help you. I just want to say I'm sorry you're going through this and hopefully someone will come on here with some answers or direction for you....
I do not have experience with lyme and breast cancer, but I wanted to say my heart goes out to you. That is a lot of hold. It is very, very good that you have found it early! I know of myself, a...
I too can relate. I had two (I thought) dear, dear friends. Each "left" and the one that did tell me "why" was that she couldn't take me continuing to not feel well and not getting better. Wow. Like...
Thanks Amers777. I would love to see pics. This is so strange. I thought it might be an allergic reaction to something -but it's weird to have no itch or pains, etc. They're just "there". My husband...
Had no rash, etc. Had odd vibration/buzzing feelings in my legs and hands and neck. Could go for weeks without them or they could be every day for a few seconds, repeatedly. My dr at the time was not...
I have nothing additionally to add regarding information or resources as the other great folks here have given you that. I just want to say welcome and how very sorry I am for how you feel and...
I can relate. For me, it feels sad at times and frustrating at others. And yes, sometimes it feels both. The wonderful therapist who I work with helps me keep perspective around the word "AND" .......
I will chime in here because it's too coincidental! I came down with blisters on top of my right hand this past Friday. They are small - like you describe -they look fluid filled. Mine do not itch,...
I am so sorry for what you are going through including the gross insensitivity and ignorance of so many in the medical field. You are not alone -keep coming to this forum. There is a wealth of...
I wish you all the best in whatever decision you make. It sounds like you are a real advocate for your health and have done a great deal to support yourself getting well. Good for you! I went to Dr...
I don't know the answers to your questions but I am sure someone who does will respond to your post. I just want to say I'm sorry you have this and am also grateful to hear you have been diagnosed...
Hello and welcome, I am so sorry for what you have and are continuing to go through. You did a great job of really describing your symptoms. Have you read through the "New to Lyme" thread? If not, I...
Yes, I have the exact same thing as you describe. I can go for months without it happening and what seems to be "out of the blue" - there it is. I assume it has to be lyme related and I'm about to...
to replace electrolytes, drink coconut water- not coconut milk. It's way better than Gatorade - no sugars, no colorings, etc. I hope you feel better and get to see the dr very soon....
I just reread by post and realized I had a typo - my LLND has no problem with a regular steam sauna and in fact, highly recommends them. She is not supportive of non-steam/infrared, etc saunas due to...
I'm glad someone has posted this as I am knee-deep in sauna confusion. My LLND says she has concerns about the electromagnetic waves in the "non traditional" (steam) saunas. I've looked at the...