There are hats and thinner clothing with SPF in them. I have a hat that's very lightweight and pretty cute. It has a wide brim and is SPF 50. It is made by Coolibar....
During my month on IV Rocephin I often got what felt like a wicked sunburn on my upper back and shoulders. It let up after a while but I do believe it was herxing. It happened again a couple of days...
*high five* Rock on!...
My primary care doc found my vitamin D was super low too. Seems so many of us with Lyme have low D or maybe everyone does. I now know of a few friends who had low D as well. I had to laugh because...
Humor appreciated here! :)...
You know, from the moment they mentioned MS I just had a gut feeling I didn't have it but I knew I had something. It was from seeing Yolanda Foster on The Real Housewives of Beverly Hills that the...
I do realize I was very fortunate and am so grateful for how it all played out. My doc was sure it was MS based on symptoms and history. My neurologist said there was no sign of MS in my MRI. So, I...
I have had this a lot and it is miserable. Percoset was the only thing that helped. It has eased up as time has gone on but when it hits, it is the worst. So sorry you are going through it too. :(...
Here's what I have read about it: Babesiosis is an infection caused by a malaria-like parasite, also called a “piroplasm,” that infects red blood cells. Babesia microti is believed to be the most...
I don't doubt the LLMD's but I do think you can have a PCP who is informed and wants to help you get better. My doctor is really up on Lyme and has treated me with care, compassion, and good medical...
I'm in the minority here it seems, because after my experience I would have the LP again. The day before I had my LP my blood work came back positive for Lyme. My doctor thought I should have the LP...
I love that post, kathleenta! Gratitude plays a HUGE part in my healing. Some days the list is pretty basic...grateful I woke up, that I am safe and warm, that my dog loves me. Other days I can see...
I had the white spots on my scan too. At the time, the doctor didn't seem concerned because we were looking for MS and they were not located in a spot that an MS lesion would appear. Now that I have...
I am really honest with people and explain that if I am up to it, I will be there. If I can't make it I will let ya know. That's the best I can do right now and the folks in my world seem to get it....
I have Lyme meningitis and I know some people are keeping their distance not knowing there are different kinds of meningitis....
My first symptom was upper back pain. I saw a chiropractor, got a massage. Nothing helped. It kept getting worse and I thought it was just too much time on my feet at work. Then one day I woke up and...
I get the no time or energy for cooking. I really try to do what I can on good days and have simple staples I love on the not so good ones. I've done gluten free toast for dinner more times than I...
No pizza, no pasta? Heaven forbid! How about gluten free pizza with no sugar marinara, mushrooms, onions, olives and spinach? How about brown rice pasta with an artichoke pesto? How about Eggs...
I do the skin brushing, the baths, the lemon water...I howl at the moon and have a voodoo doll in the shape of a spirochete and I poke it repeatedly. I am one step away from making a pact with an...
I wish I had an answer for you. :( I would call your doctor or pharmacist. Sometimes you can develop an allergic reaction even after having taken the drug successfully in the past. Maybe someone else...
I don't know about anyone else, but if I don't find some humor in my situation, I am doomed. Good to know I can share some here. :) Felt better today and went to yoga. It was a great class but I will...
Doxy can make you photosensitive. Were you in the sun a couple of days ago?...
Most of my unusual "activity" only happens on the left side as well. The upper back pain and sunburned feeling happens on both sides though as well as the joint pain in my knees. All the numbness and...
I have had the drunk herx too! Weirdest thing ever. I also love when I am out in public, thinking I am walking like Gisele Bündchen down the catwalk, and I notice my friends' faces watching me with...
I am pretty lucky because my doc does know about herxing and warned me it would get worse before it got better. I am just confused that low dose doxy is kicking my tushie more than the IV Rocephin...
I did a full month on IV Rocephin and started feeling a bit better and now after 2 days on Doxy I am herxing something fierce. My back feels sunburned, I am so tired, my legs and knees are aching,...
My husband of 22 years passed away last spring so I have been dealing with this Lyme situation on my own. It hasn't been easy not to have my best friend here to help me, so in some way I understand...
Thanks so much for responding! Glad to know I can keep taking the Milk Thistle. For some reason I thought that one might not be good to take with the Doxy. Also glad to hear the worst of the herxing...
I was wondering if anyone here has taken oral doxycycline after a month of IV Rocephin. I would love to know what to expect. Will the herxing be less since I did the 2 grams of Rocephin for 30 days...
I was diagnosed in December. I am so blessed that my PCP was willing to test me. I came up CDC negative but on my IgM I was reactive on band 41. I had a lumbar puncture with the same results. He had...
I am two days away from completing thirty days on IV Rocephin. My symptoms when starting treatment included a wicked headache, back pain, rib pain, brain fog, and numbness on the left side. After a...