I have super bad POTS. I went to a neurologist and did a tilt table test where I was diagnosed. This was the first time that something came back positive - and she looked at me so confused because...
From what I understand it can be very helpful for Lyme and to find one low in THC and high in CBD. I had it recommended to me, and was already looking into it before that. If anyone has tried it I...
I have the craziest sensations in my head/brain. Actually started about two months after I got very sick, and then during doxy it got a tiny bit better but still there. I got a brain/neck MRI that...
Mine has reappeared in the exact same spot before. Don't know if that is what's happening or if this is on a new area?...
I thought it was just me. I am soooo ill after naps. I always say I feel like I was hit by a bus....
I've mentioned it as being a big problem to two Lyme docs, neither of them thought it was an issue. You do get used to it after a while. But what my doctors have always said, if something is really...
I have tinnitus really bad starting after 2 months of doxy. Still have it 3 months later (and still on doxy)! It's starting not to bother me anymore, except at night when trying to sleep. It was a...
Is this the same as muscle testing? If so it's fascinating. I was a disbeliever until I saw it. She could tell me what is active in my body righty now. I don't believe she would make any of it up...
I have been taking 200 mg of doxy a day for 5 months along with various herbs. I am not getting any better. I understand 200 mg is too low, so I decided for a week I am going to bump it up to 300 and...
I took minocycline for 5 years many many years ago and it turned the teeth behind the gums black, making my gums blueish. Totally reversed itself afterwards....
Let us know if anything helps. I am hoping this isn't a permanent thing for either of us. People keep telling me "you will get better" but somedays it's hard to believe that when you feel near death...
CarlG - how long have you been in treatment? It's been 4.5 months for me, but didn't really start on a stronger treatment until Lyme was confirmed 1.5 months ago. It just feels like it will never go...
One big issue I have noticed since I have become sick is that my body doesn't respond correctly to external stimulus anymore. I can't go shopping, go to parties, etc. because my body stops...
I am in a similar situation-same age, similar story, but not as bad because if I can't keep my job I can get on my husband's insurance. I've been fighting to keep my job, and I am also after being...
I think it's rare.. but can happen of course. I decided not to take it due to that. Also, make sure magnesium and potassium levels are not low if taking it. I just decided it wasn't worth me worry...
This sounds exactly like me. I had the same results as your son the first time. After a little over 2 months of doxy I ended up testing positive when I sent it to Igenex again. The doxy brought out...
First time, 24 days. 2nd time 19 days, first time was around the holidays.. not sure if that is why it was longer but my dr. called me the second they came in both times....
I'm off trazodone now for sleeping issues, but when I took it I slept great. I had to get off of almost all my meds when I got suddenly sick due to all of the GI issues. But I took it for 2 years...
I was also told it was anxiety. I knew it wasn't. In fact, right before I got sick I was at the prime of my life in every way, was having a great time, was very fit and healthy (or so I thought)....
I have pretty much had a negative on almost every Lyme test except for indeterminate bands 39, 83-93... and a positive 41. This is the first test I have ever gotten a positive on... and a high one....
I'm not sure if this will be the case for you, but I was on minocycline for 5 years in middle school/highschool. My gums turned this blue grey color and when I had my wisdom teeth out he showed me...
I have been diagnosed with POTS a few weeks ago. Started on fludrocortisone and while it is not a fix to all my issues, I am not almost passing out every second anymore. I can stand and walk around...
My doctor believe I could have Lyme, but without proof my mind wanders to other conditions. I have read that Lyme and ALS can be similar. I would consider myself to have neuro-Lyme (and I do hope...
I've read conflicting reports, some say no you shouldn't take it, some say ok in very small doses. So, not sure if this is doing me any good or not....
Also, whats interesting is my cardiologist has said everything is fine. I had the treadmill test and 48 hr heart monitor. Autonomic testing is from neurologist. The cardiologist is great but says I...
Thanks for the thoughts, actually I am waiting the results of my autonomic (including tilt table) tests that I had one month ago. My results keep getting lost or something since it came from another...
I'm newer to Lyme, as I have been very ill with it for about 5 months - and started treatment 2 months ago. We have tracked the initial infection to a few years ago when I had this rash I just...