CDC Two-tier Lyme Disease Testing: A Global Threat GENERAL INFO: Very recently, in yet another obvious attempt to keep their two-tier testing procedure firmly in place as the only approved Lyme...
I just purchased two t-shirts...
I'll be there Thursday through Saturday and have a two room suite reserved if anyone needs a place to stay....
The protest at IDSA’s IDWeek conference is an important event for everyone touched by Lyme. We need to carry on the momentum from the Mayday protest at IDSA HQ back in May. We shut down IDSA and got...
You need something like Flagyl to deal with the cysts....
Biaxin 1000mg/day and Flagyl at 1500mg/day for cysts worked for my neuro Lyme. After 2 months I stopped the Biaxin and the sympotoms came creeping back. When I started back on the Biaxin I had a herx...
This video is very good. Dr. Cowden goes into detail about the research and development behind his protocol and the protocol itself.. The only things I didn't like were his constant pitching of...
I've had very good results taking Biaxin at 1000mg/day for neuro Lyme. Zithromax and Doxycycline did not help. Three days after I started the Biaxin I had a mild herx, with increased pulse rate,...
Finally, something useful from Forbes. I think everybody knows how important quality sleep is for anyone with a chronic illness. This article explains the role of sleep in removing toxins from the...
I'm drinking lots of water, avoiding processed foods and taking zeolite. I'll think I'll add a few more things to the regimen....
Anybody else have stuff like this happen? I couldn't find the bag with all my newly filled scripts anywhere. I clearly remembered moving the bag from the kitchen table to put them away. I didn't...
I started on Mepron plus Zithromax in July 2013. The results were astonishing. After 7 days, I felt 20 years younger and began exercising spontaneously. I didn't have a herx....
My current doc believes in consistent dosing over time. He doesn’t try to treat everything at once, so he occasionally adds to or changes the mix when het get's hunches based on my symptoms, but he...
I occasionally get odd leg jerks. They seem to happen in combination with hypersensitivity to noise and increased agitation....
I once saved a rooster's life by giving it Doxycycline for humans, by breaking open the capsules and dividing the powder into the recommended doses for chickens. I don't see any reason why you...
My blood pressure shot up so high (190/110) that I went to the ER. My entire life, it had never been over 110/70. Now it's back in the normal range....
I had a similar experience going on and off Biaxin. When I first started taking it I experienced a mild herx. I took it for two months, then stopped. A month later my symptoms started to come back...
I just signed this petition. It's easy to do and only takes a couple minutes. http://www.change.org/petitions/the-u-s-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf...
I started on 1500mg / day of Flagyl 3 days ago. Today I started to get a mild herx with flare up of symptoms. Tindamax (tinidazole) is supposed to break up Lyme cysts like Flagyl. I was on it once,...
Biaxin is working well for my neuro issues. Doxy and Zithro did not help at all....
It’s time to join forces,, speak out and fight back. http://www.themaydayproject.org https://www.facebook.com/TheMaydayProject.org I can provide lodging and transport to and from IDSA for...
A good resource is the book "From Fatigue to Fantastic" by Jacob Tetelbaum, MD. He covers everything from getting good sleep to hormonal support (including Adrenal stuff) and fighting infections....
You have way more leverage than you might think. First call and ask how to file an appeal, explain you have positive tests and the treatment is within the standard of care. If they still deny...
I wrote a letter to a clueless ID doctor, demanding a refund. Next step is small claims court. After that comes a complaint to medical board. Even though they probably wont sanction her, they have to...
Sounds like you may have Babesia in addition to Lyme. The sweating and shortness of breath are common symptoms. The blood pressure issue is likely the Lyme affecting your autonomous nervous system....